Accessibility to Power: Framing of the Disability Rights Movements in
                        India and Nepal

Schedin, Henrik

doi:10.5463/dcid.v28i3.642

Cited by 7 publications

(5 citation statements)

References 9 publications

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“…Many people with disabilities in India experience poverty due to barriers to accessing education and employment. The Indian disability rights movement continues to push for the realisation of disability rights and positive change (although there has been some criticism that the movement is dominated by the urban middle classes) (Schedin 2017).…”

Section: Disability Experience In Indiamentioning

confidence: 99%

Freedom of Religious Belief and People with Disabilities: A Case Study of People with Disabilities from Religious Minorities in Chennai, India

Thompson¹,

Rohwerder²,

C³

2021

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India has a unique and complex religious history, with faith and spirituality playing an important role in everyday life. Hinduism is the majority religion, and there are many minority religions. India also has a complicated class system and entrenched gender structures. Disability is another important identity. Many of these factors determine people’s experiences of social inclusion or exclusion. This paper explores how these intersecting identities influence the experience of inequality and marginalisation, with a particular focus on people with disabilities from minority religious backgrounds. A participatory qualitative methodology was employed in Chennai, to gather case studies that describe in-depth experiences of participants. Our findings show that many factors that make up a person’s identity intersect in India and impact how someone is included or excluded by society, with religious minority affiliation, caste, disability status, and gender all having the potential to add layers of marginalisation. These various identity factors, and how individuals and society react to them, impact on how people experience their social existence. Identity factors that form the basis for discrimination can be either visible or invisible, and discrimination may be explicit or implicit. Despite various legal and human rights frameworks at the national and international level that aim to prevent marginalisation, discrimination based on these factors is still prevalent in India. While some tokenistic interventions and schemes are in place to overcome marginalisation, such initiatives often only focus on one factor of identity, rather than considering intersecting factors. People with disabilities continue to experience exclusion in all aspects of their lives. Discrimination can exist both between, as well as within, religious communities, and is particularly prevalent in formal environments. Caste-based exclusion continues to be a major problem in India. The current socioeconomic environment and political climate can be seen to perpetuate marginalisation based on these factors. However, when people are included in society, regardless of belonging to a religious minority, having a disability, or being a certain caste, the impact on their life can be very positive.

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Section: Disability Experience In Indiamentioning

confidence: 99%

Freedom of Religious Belief and People with Disabilities: A Case Study of People with Disabilities from Religious Minorities in Chennai, India

Thompson¹,

Rohwerder²,

C³

2021

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“…On the other hand, field-specific conditions and frameworks seem to matter in many ways (Diani, 2019;Fligstein and McAdam, 2011;Lahusen et al, 2020;London and Schneider, 2012;Schedin, 2017). Overall, our study paints a complex picture of the interplay between the various factors underlying TSOs' solidarity conceptions.…”

Section: Discussionmentioning

confidence: 70%

What Is Solidarity About? Views of Transnational Organisations’ Activists in Germany, Poland, and Greece

Zschache

Theiss

Paschou

2020

Sociological Research Online

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The notion of solidarity plays an important role in debates about the future of Europe. Yet, it can be used in a diverse or even contradictory manner as contemporary discussions about refugees in Europe or the implementation of social rights at the EU-level well illustrate. While the focus of public attention is often on political leaders, the goal of this article is to deepen our knowledge about the understanding of solidarity by its practitioners at the grassroots-level of solidarity work. Our study is based on 97 individual interviews with representatives of transnational solidarity organisations (TSOs) located in Germany, Poland, and Greece. We show how their understanding of solidarity varies across three basic themes: the rationale of action, the scope of beneficiaries, and relations with and among beneficiaries. Most strikingly, our research reveals that the core understanding of solidarity among the TSOs under review reflects a progressive, transnational type of solidarity that emphasises universalism, connection-building between targets of solidarity and establishing group identities based on collective action and not pre-defined features. At the same time, our study shows how TSOs adapt to complex country- and field-specific contextual conditions.

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“…poverty, financial and food security, experiences of violence) [28,52,53]. Research from India and Nepal found that the focus on human rights advocacy by national-level (elite) disability activists did not reflect the concern for basic needs expressed by people with disabilities at subnational levels [54]. Interest in participation is also likely to be influenced by service use.…”

Section: Discussionmentioning

confidence: 99%

Service user and family participation in mental health policy making in Timor-Leste: a qualitative study with multiple stakeholders

et al. 2020

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Background: Participation in mental health system strengthening by people with mental health problems and their families is a cornerstone of people-centred mental health care, yet there is a dearth of research about participation from low-and middle-income countries (LMICs), particularly from the Asia Pacific region. Hence, this study aimed to assess the current situation, challenges, enabling factors and future actions for service user and family participation in mental health policy making in Timor-Leste. Methods: In-depth interviews were conducted with 85 adults (≥18 years) who were: (1) mental health service users (n = 20) and their families (n = 10); (2) government decision makers (n = 10); (3) mental health and social service providers (n = 23); (4) civil society (n = 9); and (5) other groups (n = 13). Interview data was analysed using framework analysis. Results: There was limited service user, family and community participation in mental health policy making in Timor-Leste. Perceptions that policy making is a technical exercise and that people with mental health problems lack cognitive capacity, and a lack of supportive mechanisms challenged participation. Enabling factors were a strong focus on human rights within the social sector, and existing mechanisms for advocacy and representation of people with disabilities in social policy making. Participants suggested bolstering civil society representation of people with mental health problems, and increasing mental health awareness and literacy, including government competencies to facilitate service user participation. Conclusion: The findings highlight the need for theoretical and practical focus on the role of family within mental health system development in LMICs. Global mental health research and practice should adopt a critical approach to mental health service user and family participation to ensure that the concept and strategies to achieve this are embedded in LMIC knowledge.

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Accessibility to Power: Framing of the Disability Rights Movements in India and Nepal

Cited by 7 publications

References 9 publications

Freedom of Religious Belief and People with Disabilities: A Case Study of People with Disabilities from Religious Minorities in Chennai, India

Freedom of Religious Belief and People with Disabilities: A Case Study of People with Disabilities from Religious Minorities in Chennai, India

What Is Solidarity About? Views of Transnational Organisations’ Activists in Germany, Poland, and Greece

Service user and family participation in mental health policy making in Timor-Leste: a qualitative study with multiple stakeholders

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