Accuracy and Reliability of Internet Resources for Information on Idiopathic Pulmonary Fibrosis

Abstract

Patient-directed online information on IPF is frequently incomplete, inaccurate, and outdated. There is no reliable method for patients to identify sites that provide appropriate information on IPF.

A systematic method for reviewing and analysing health information on consumer‐oriented websites

“…In a study of postpartum depression, for example, much of the information on websites about this condition was inaccurate or incomplete and pitched at a high level of readability (Moore & Ayers, ; Summers & Logsdon, ). Similar findings have been reported in analyses of websites for conditions as diverse as oral leukoplakia (Wiriyakijja, Fedele, Porter, & Riordain, ), pulmonary fibrosis (Fisher, O'Connor, Flexman, Shapera, & Ryerson, ) and pancreatic cancer (Storino et al., ). Much less visible are website analyses of health problems that frequently fall into the nursing domain, such as managing symptoms of fatigue.…”

“…Exemplary published studies evaluating consumer‐oriented websites also are a source for identifying methods of reviewing websites on health topics (e.g. Fisher et al., ; Moore & Ayers, ; Storino et al., ; Wiriyakijja et al., ).…”

Identifying Barriers to Idiopathic Pulmonary Fibrosis Treatment: A Survey of Patient and Physician Views

“…The majority of the patients surveyed searched for more information on IPF online; however, a recently published analysis found that online health information on IPF is frequently incomplete, inaccurate, and outdated [32]. Results from other surveys suggest that the majority of patients want to be provided with more information about IPF, including its progression and treatment [33,34].…”

Estimate the educational need on knowledge of rheumatoid arthritis in the range of their own disease and its self-care in a view to develop a self -care module

“…Participants' RA knowledge scores were on average only moderate, a finding that supports their desire for more information 7 . Now a days, Increasingly, patients are turning to internet, websites and chat rooms for advice, and some of these may be of poor quality 7 . Rheumatology nurses have an important role in educating patients with rheumatoid arthritis.…”