Achieving Equity: Including Women with Disabilities in Maternal and Child Health Policies and Programs

Long‐Bellil, Linda M.; Valentine, Anne; Mitra, Monika

doi:10.1007/978-1-0716-0888-3_10

Cited by 2 publications

(4 citation statements)

References 76 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…However, despite Quebec and Canadian policies in place, our study findings question how parents’ rights are being addressed when multiple service gaps are identified ( Gibson & Mykitiuk, 2012 ). Over the past 30 years, American parents’ rights have failed to be adequately protected, despite established civil rights laws ( Long-Bellil et al, 2021 ; Powell et al, 2020 ). In our study, participants depicted striking differences between the support services provided to different families.…”

Section: Discussionmentioning

confidence: 99%

“…Advocacy, like many of our study participants did, is a potential solution ( Mitra et al, 2016 ; Smeltzer et al, 2017 ), yet not always feasible for struggling parents. Adopting a life course approach ( Long-Bellil et al, 2021 ; Tarasoff, 2017 ) that goes beyond babycare support services and prevents service discontinuity and family disruptions is another pathway to consider. This would require flexible, collaborative, and family-centred services that are inclusive of parenting ( Handberg et al, 2020 ; Morriss et al, 2013 ).…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

“What Services?”: Stakeholders’ Perceived Unmet Support Needs for Parents With Neurological Disorders

Pituch,

Ben Lagha,

Aunos

et al. 2023

Can J Occup Ther

View full text Add to dashboard Cite

Background. Knowledge about the needs of parents with neurological disorders who take care of young children is limited. Purpose. The overall aim of this qualitative study was to explore the perceived unmet parent needs, current supports, and potential solutions to optimize supports of parents with neurological disorders in early childhood in a Canadian setting. Method. Focus groups and individual interviews with parents ( n = 8), spouses ( n = 5), rehabilitation clinicians ( n = 8), community partners ( n = 7), and researchers ( n = 7) were conducted with a total of 35 participants recruited using convenience sampling. Inductive iterative thematic analysis was performed. Findings. The participants identified the need for society to officially recognize parenting with disabilities, adjust public policies, increase the scope of public programs, consider child development and family well-being, and have barrier-free communities. Conclusion. Providing customized solutions that will adequately fill perceived service gaps is of utmost importance to address these families’ needs.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

“What Services?”: Stakeholders’ Perceived Unmet Support Needs for Parents With Neurological Disorders

Pituch,

Ben Lagha,

Aunos

et al. 2023

Can J Occup Ther

View full text Add to dashboard Cite

show abstract

“…More broadly, policy initiatives can be implemented to better support the health needs of incarceration-exposed mothers. For instance, the Maternal and Child Health Bureau (MCHB) supports children and families with disabilities, yet does not have active programs supporting prospective or recent mothers with disabilities [ 25 ]. A fruitful avenue is for programs such as MCHB to work with state and local agencies and community organizations to provide resources to disabled women and mothers.…”

Section: Discussionmentioning

confidence: 99%

“…This is a notable gap considering incarceration-exposed pregnant women must reckon with considerable challenges related to their or their partner’s incarceration and they may have to do so while contending with multiple disabilities. Moreover, considering both incarceration [ 7 , 8 , 24 ] and disability [ 2 , 25 ] are public health issues alongside the common reproductive issues facing many women in the U.S., greater insight of the interconnections between incarceration exposure and disability can enhance precision for targeted services to meet the needs of recent mothers and promote health equity. To address this gap, the current study examines the connection between incarceration and six forms of functional disabilities among a large sample of recently pregnant women.…”

Section: Introductionmentioning

confidence: 99%

Incarceration exposure during pregnancy and maternal disability: findings from the Pregnancy Risk Assessment Monitoring System

et al. 2022

View full text Add to dashboard Cite

Background Extant research reveals that currently and formerly incarcerated individuals exhibit higher rates of disability. Moreover, recent research highlights that women exposed to incarceration during pregnancy —either personally or vicariously through a partner— face poorer health. However, prior research has not detailed the connection between incarceration exposure and risk for maternal disability. Methods The aim of this study is to evaluate the association between a women’s exposure to incarceration during pregnancy and disability including difficulty with: communication, hearing, remembering, seeing, self-care, or walking. Data are from Pregnancy Risk Assessment Monitoring System (PRAMS), 2019 (N = 12,712). Logistic and negative binomial regression were used to assess the relationship between incarceration exposure and maternal disability. Results Among the sample of women who delivered a recent live birth, approximately 3.3% of the sample indicated they were personally or vicariously exposed to incarceration in the 12 months before birth. Compared to those who did not have incarceration exposure, women with incarceration exposure have elevated odds of several disabilities, including difficulty remembering (Adjusted Odds Ratio [AOR] = 1.971; 95% Confidence Interval [CI] = 1.429, 2.718), difficulty seeing (AOR = 1.642, 95% CI = 1.179, 2.288), difficulty walking (AOR = 1.896, 95% CI = 1.413, 2.544), and a greater number of cumulative disabilities (Incidence Risk Ratio [IRR] = 1.483; 95% CI = 1.271, 1.731). Conclusions Women personally or vicariously exposed to incarceration during pregnancy endure greater odds of having a disability. Considering both incarceration and disability are important public health issues with implications for maternal and child well-being, these findings highlight the need for further research that can better understand the connection between incarceration and disability.

show abstract

Achieving Equity: Including Women with Disabilities in Maternal and Child Health Policies and Programs

Cited by 2 publications

References 76 publications

“What Services?”: Stakeholders’ Perceived Unmet Support Needs for Parents With Neurological Disorders

“What Services?”: Stakeholders’ Perceived Unmet Support Needs for Parents With Neurological Disorders

Incarceration exposure during pregnancy and maternal disability: findings from the Pregnancy Risk Assessment Monitoring System

Contact Info

Product

Resources

About