Acquired disability in young women: a challenge for identity?

Tanssi, sisäinen tarina ja sairausnarratiivit

“…Damasion mainitsema ei-kielellisen tasolla tapahtuva kehollinen läsnäolo tanssiessa voi mahdollistaa myös niin sanottujen rikkoutuneiden narratiivien kokemisen ja myöhemmin myös niiden kertomisen. Nämä rikkoutuneet narratiivit ovat yleisiä etenkin sairausnarratiiveissa, jos sairaus vaikuttaa esimerkiksi kognitiiviseen tai motoriseen toimintakykyyn (Hydén ja Brockmeier 2008;Pohjola 2020). Tällöin tanssimisen ytimessä ei ole "juonellistettu" ja koherentti tarina, vaan aistiminen ja kokemuksellisuus.…”

Identity and Masculinity in Two Cases of Early-Onset Disability Autobiography

“…For example, physical impairment and disability impose concrete limitations on activities of daily living and may create friction for an individual's social identity and agency (Coleman-Fountain & McLaughlin, 2013;Nolan, 2013;Smith & Sparkes, 2004). Disability also poses challenges to what might be considered as normal life expectations such as education, forming relationships, and finding employment (Pohjola, 2018). These challenges will be discussed, based on the autobiographical accounts of two men.…”

“…These stories allow those with disabilities to be heard in their own voices and provide valuable means of recovery and resources for the (re)construction of identity. They also add a vital element to the larger cultural stock of life stories (Pohjola, 2018). Thus, life narratives "can provide controlled access to lives that might otherwise remain opaque or exotic, and offer an important, if not unique, entrée for inquiry into one of the fundamental aspects of human diversity" (Couser, 2006, p. 401).…”