Activities of Daily Living and Self-Care Agency in Patients with Multiple Sclerosis for the First 10 Years

Basak, RN Tulay; Unver, RN Vesile; Demirkaya, Şeref

doi:10.1002/rnj.153

Cited by 12 publications

(14 citation statements)

References 23 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The study results are given with reference to the total number of respondents, and also with regard to their division into two groups depending on the duration of the disease due to the fact that the clinical symptoms, including fatigue, intensify in the first 10 years after diagnosis (Basak, Unver, Demirkaya, 2015). In our study, we divided the respondents into two groups in order to determine whether there are differences in the frequency of fatigue incidence, and in its impact on the performance of daily activities over a shorter period (the first five years of disease duration).…”

Section: Resultsmentioning

confidence: 99%

“…Multiple sclerosis manifests itself in the clinical picture by a range of symptoms which often vary between patients, but which generally intensify in each patient in the first ten years after diagnosis, "with the main negative effects centering on physical decline" (Basak, Unver, Demirkaya, 2015). Fatigue is one of the so-called non-specific symptoms of the disease.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Problem of Fatigue in Patients With Multiple Sclerosis

Miertová

Bezdeda

Ovšonková

et al. 2017

Cent Eur J Nurs Midw

View full text Add to dashboard Cite

Aim: The aim of the study was to determine the frequency of the incidence of fatigue, and its impact on the performance of activities of daily living in patients with the diagnosis of multiple sclerosis (MS), regarding their cognitive, physical, and psychosocial functioning, and also to identify differences in the frequency of its occurrence in patients diagnosed with the disease for up to five years, and in those diagnosed for more than five years. Design: A quantitative cross-sectional study. Methods: A total of 94 MS patients with the mean age of 38.70 ± 11.20, and average disease duration of 6.5 ± 4.7, were included in the sample. An adapted version of a self-assessed questionnaire, the Modified Fatigue Impact Scale (MFIS), was used to collect empirical data. Results: Fatigue had the greatest incidence and impact on activities in the physical subscale of the used tool (19.98 ± 8.71). We identified statistically significant differences between the first group of MS patients with disease duration of up to five years, and the second group with disease duration of over five years in the physical (p = 0.019) and psychosocial subscales (p = 0.006). The group of respondents with MS for more than five years reported higher incidence of fatigue on both subscales. No significant differences were identified on the cognitive subscale. Conclusion: Objectification of the frequency of fatigue incidence -a burdensome symptom of the disease -and the monitoring of its impact on activities of daily living by means of suitable measuring instruments, such as the MFIS, contribute to a better understanding of the issue in diagnostics. It also opens up possibilities for its effective management. In terms of further research, it would be valuable to conduct validation studies of this instrument in the Slovak sociocultural environment.

show abstract

Section: Resultsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Problem of Fatigue in Patients With Multiple Sclerosis

Miertová

Bezdeda

Ovšonková

et al. 2017

Cent Eur J Nurs Midw

View full text Add to dashboard Cite

show abstract

“…Studies have pointed to improvements of health status over face to face educational interventions, demonstrated by MRI ( 16 ). Studies have also revealed a significant correlation between education level and self-care knowledge ( 17 ). In fact, people with higher awareness can better get along with the disease and tend to report a greater quality of life ( 18 ).…”

Section: Introductionmentioning

confidence: 99%

The Effect of Educational Intervention on Knowledge and Self-efficacy for Pain Control in Patients with Multiple Sclerosis

et al. 2016

View full text Add to dashboard Cite

Introduction:Multiple Sclerosis (MS) is one of the most common autoimmune diseases affecting the central nervous system. The prevalence of it is increasing in our country too. The pain from disorders can affect quality of life. Several studies have pointed to the improvement of patients through educational intervention. This study attempted to evaluate the effectiveness of an educational intervention based on raising the awareness and self-efficacy for pain control among patients with multiple sclerosis during 2015 under the coverage of Isfahan MS Society (IMSS).Materials and methods:This was a quasi-experimental study involving pre-test, post-test and randomized control group conducted on 100 patients with MS referred to the Isfahan MS Society (IMSS). The educational intervention group learned the pain management self-care lesson during 4 weekly sessions. The data were collected through a self-structured questionnaire with adequate validity and reliability, containing demographic data, awareness and self-efficacy of pain control. The data were assessed through descriptive and analytical tests assisted by SPSS 17. The significant level was considered as P<0.05.Results:Concerning the questionnaire, 96% of the items were responded. Most participants were women. The frequency distribution of demographic variables was not significantly different between the two pre-test groups. After the intervention, the mean score of knowledge and efficacy among patients in the intervention group was significantly higher than the control group (P<0.001).Conclusions:Educational interventions can improve awareness and self-efficacy for pain control among patients with MS. Therefore, such interventions can be designed to reduce physical and psychological complications following multiple sclerosis.

show abstract

“…4,5 Therefore, persons with MS are faced with the daily management of multiple impairments related to daily life activity participation. 6,7 For example, Basak et al 8 examined performance of activities of daily living (ADLs) and self-care in persons with MS 10 years or more after diagnosis. They found that 79.1% of the sample participants were mildly dependent on various types of assistance (eg, cutting food, use of a wheelchair) to perform ADLs as indicated by the Barthel Index, a measure of performance in ADLs.…”

mentioning

confidence: 99%

Changes in Activity Participation After Multiple Sclerosis Diagnosis

Goverover¹,

Genova²,

Smith³

et al. 2020

International Journal of MS Care

View full text Add to dashboard Cite

Background: Multiple sclerosis (MS) results in impairments in cognitive and motor skills, which may reduce the level of activity participation in people with MS. This study compares past and current levels of activity participation in adults with MS and controls. The relationship between retained activity participation (since diagnosis) and cognitive, motor, functional status, and depression symptoms of persons with MS was examined. Methods: Twenty-seven individuals with MS living in the community and 21 controls completed cognitive and motor tests and rated their activity participation (using the Activity Card Sort), depression symptoms, and functional status. Results: The MS group reported significantly lower current activity participation than the control group. Percentage of retained activity participation (from prediagnosis to current) in the MS group correlated with time since diagnosis, executive function and motor skill ability, depression symptoms, and current functional status. Conclusions: Persons with MS report negative changes in activity participation in most aspects of life after diagnosis. These findings call attention to changes in activity participation in people with MS that are directly related to disease symptoms. Therefore, using a quantitative measure of activity participation—the Activity Card Sort—can provide important information to aid the clinician in developing individualized treatment goals for people with MS.

show abstract

Activities of Daily Living and Self-Care Agency in Patients with Multiple Sclerosis for the First 10 Years

Abstract: Activities of daily living; self-care agency; multiple sclerosis. Correspondence

Cited by 12 publications

References 23 publications

Problem of Fatigue in Patients With Multiple Sclerosis

Problem of Fatigue in Patients With Multiple Sclerosis

The Effect of Educational Intervention on Knowledge and Self-efficacy for Pain Control in Patients with Multiple Sclerosis

Changes in Activity Participation After Multiple Sclerosis Diagnosis

Contact Info

Product

Resources

About