Activity Pacing Self-Management in Chronic Fatigue Syndrome: A Randomized Controlled Trial

Kos, Daphne; Eupen, Inge Van; Meirte, Jill; Cauwenbergh, Deborah Van; Moorkens, Greta; Meeus, Mira; Nijs, Jo

doi:10.5014/ajot.2015.016287

Cited by 41 publications

(82 citation statements)

References 54 publications

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“…In MS, an individualized outpatient rehabilitation program including occupational therapy focusing on energy conservation did not show any changes in fatigue (impact) scores, which is in line with our findings (Rietberg et al, 2014). However, a similar individual program did show improvements both in COPM and in fatigue scores in patients with chronic fatigue syndrome (Kos et al, 2015). These results may suggest that group dynamics are highly important in reducing fatigue (impact) scores in patients with MS, but no studies have as yet compared individual and group approaches.…”

Section: Discussionsupporting

confidence: 93%

The effectiveness of a self-management occupational therapy intervention on activity performance in individuals with multiple sclerosis-related fatigue: a randomized-controlled trial

Kos

Duportail

Meirte

et al. 2016

International Journal of Rehabilitation Research

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Purpose to evaluate the effectiveness of an individual self-management occupational therapy intervention program (SMOoTh) versus relaxation on the performance of and satisfaction with relevant daily activities in individuals with multiple sclerosis (MS)-related fatigue. in a single-blind randomized-controlled trial, 31 patients with MS (SMOoTh: n=17, relaxation: n=14) were randomly allocated to three individual sessions focusing on pacing, prioritizing, ergonomics, and self-management (SMOoTh) or on stress management and relaxation (relaxation). Outcomes (blind assessor): Canadian Occupational Performance Measure (COPM) (primary), Modified Fatigue Impact Scale, Checklist Individual Strength and Short-Form Health Measure. COPM improved in the SMOoTh and relaxation group after the intervention and 3 months later (COPM performance: F=13.1, P=0.001 and COPM satisfaction: F=10.4, P=0.001); nonsignificant group differences showed a trend in favor of SMOoTh. Modified Fatigue Impact Scale, Checklist Individual Strength, and most of the Short-Form Health Measure subscales did not change. Clinically relevant changes in COPM performance scores were found in 71 and 27% of patients in the SMOoTh versus the relaxation group. Both interventions seem to be feasible approaches to improve performance of and satisfaction with relevant daily activities in people with MS, with a sustained effect after 3 months. Neither program altered change fatigue (impact) or quality of life. Future studies with larger sample sizes are needed.

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Section: Discussionsupporting

confidence: 93%

The effectiveness of a self-management occupational therapy intervention on activity performance in individuals with multiple sclerosis-related fatigue: a randomized-controlled trial

Kos

Duportail

Meirte

et al. 2016

International Journal of Rehabilitation Research

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“…Furthermore, a group-based self-management program for chronic fatigue syndrome patients seems to be useful in relief of fatigue severity, despite unsustained at the one-year follow-up, [67] therefore, it is needed to support CFS/ME patients to access reliable, evidence-based information outside primary care, and an online resource for patients to support self-management may be a good choice [68]. In addition, activity pacing self-management was also found to be feasible and effective in desired daily life activities and reducing fatigue in women with CFS [69]. …”

Section: Discussionmentioning

confidence: 99%

Acupuncture and moxibustion for chronic fatigue syndrome in traditional Chinese medicine: a systematic review and meta-analysis

Wang

Pan

et al. 2017

BMC Complement Altern Med

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BackgroundAs the etiology of chronic fatigue syndrome (CFS) is unclear and the treatment is still a big issue. There exists a wide range of literature about acupuncture and moxibustion (AM) for CFS in traditional Chinese medicine (TCM). But there are certain doubts as well in the effectiveness of its treatment due to the lack of a comprehensive and evidence-based medical proof to dispel the misgivings. Current study evaluated systematically the effectiveness of acupuncture and moxibustion treatments on CFS, and clarified the difference among them and Chinese herbal medicine, western medicine and sham-acupuncture.MethodsWe comprehensively reviewed literature including PubMed, EMBASE, Cochrane library, CBM (Chinese Biomedical Literature Database) and CNKI (China National Knowledge Infrastructure) up to May 2016, for RCT clinical research on CFS treated by acupuncture and moxibustion. Traditional direct meta-analysis was adopted to analyze the difference between AM and other treatments. Analysis was performed based on the treatment in experiment and control groups. Network meta-analysis was adopted to make comprehensive comparisons between any two kinds of treatments. The primary outcome was total effective rate, while relative risks (RR) and 95% confidence intervals (CI) were used as the final pooled statistics.ResultsA total of 31 randomized controlled trials (RCTs) were enrolled in analyses. In traditional direct meta-analysis, we found that in comparison to Chinese herbal medicine, CbAM (combined acupuncture and moxibustion, which meant two or more types of acupuncture and moxibustion were adopted) had a higher total effective rate (RR (95% CI), 1.17 (1.09 ~ 1.25)). Compared with Chinese herbal medicine, western medicine and sham-acupuncture, SAM (single acupuncture or single moxibustion) had a higher total effective rate, with RR (95% CI) of 1.22 (1.14 ~ 1.30), 1.51 (1.31–1.74), 5.90 (3.64–9.56). In addition, compared with SAM, CbAM had a higher total effective rate (RR (95% CI), 1.23 (1.12 ~ 1.36)). In network meta-analyses, similar results were recorded. Subsequently, we ranked all treatments from high to low effective rate and the order was CbAM, SAM, Chinese herbal medicine, western medicine and sham-acupuncture.ConclusionsIn the treatment of CFS, CbAM and SAM may have better effect than other treatments. However, the included trials have relatively poor quality, hence high quality studies are needed to confirm our finding.Electronic supplementary materialThe online version of this article (doi:10.1186/s12906-017-1647-x) contains supplementary material, which is available to authorized users.

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“…In addition, participating in these courses can be very difficult because they require attendance at in-person treatment sessions. This is problematic because instances of PEM are associated with changes in routine, prolonged cognitive effort, and travelling [40]. Individuals with ME/CFS have reported that their symptoms worsen as a result of participating in such programs [29] and thus many receive no formal treatment for their condition [32].…”

Section: Self-management For Me/cfsmentioning

confidence: 99%

“…One of the immediate challenges of conducting research with ME/CFS patients is that it is unclear how their involvement might exacerbate the symptoms of their condition. As noted above, some patients can suffer serious consequences when deviating from set routines [40] and thus participation in a research study could cause undue harm by inducing PEM, for example. This presents major challenges in terms of configuring their involvement, not just from a practical perspective (what techniques should be employed to involve patients?)…”

Section: Recruitment and Ethical Considerationsmentioning

confidence: 99%

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Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome

Davies

Jones

Kelly

2019

Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems

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Chronic Fatigue Syndrome (CFS) is a debilitating medical condition that is characterized by a range of physical, cognitive and social impairments. This paper investigates CFS patients' perspectives on the potential for technological support for self-management of their symptoms. We report findings from three studies in which people living with CFS 1) prioritized symptoms that they would like technologies to address, 2) articulated their current approaches to self-management alongside challenges they face, and 3) reflected on their experiences with three commercial smartphone apps related to symptom management. We contribute an understanding of the specific needs of the ME/CFS population and the ways in which they currently engage in self-management using technology. The paper ends by describing five high-level design recommendations for ME/CFS self-management technologies. CCS CONCEPTS • Human-centered computing → Empirical studies in HCI .

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Activity Pacing Self-Management in Chronic Fatigue Syndrome: A Randomized Controlled Trial

Cited by 41 publications

References 54 publications

The effectiveness of a self-management occupational therapy intervention on activity performance in individuals with multiple sclerosis-related fatigue: a randomized-controlled trial

The effectiveness of a self-management occupational therapy intervention on activity performance in individuals with multiple sclerosis-related fatigue: a randomized-controlled trial

Acupuncture and moxibustion for chronic fatigue syndrome in traditional Chinese medicine: a systematic review and meta-analysis

Patient Perspectives on Self-Management Technologies for Chronic Fatigue Syndrome

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