Actual and Perceived Knowledge of Kidney Transplantation and the Pursuit of a Live Donor.

Gupta, Nilakshi; Salter, Megan L.; Reese, Peter P.; Dagher, Nabil N.; Desai, Nikita; Segev, Dorry L.

doi:10.1097/00007890-201407151-01626

Cited by 3 publications

(3 citation statements)

References 16 publications

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“…tients' self-efficacy regarding their transplant knowledge may also influence their pursuit of LDKT. However, in a cross-sectional study of transplant candidates at a single center, perceived knowledge about kidney transplantation better-predicted participants' likelihood of asking someone to donate than actual kidney transplant knowledge 27. Second, we conducted our study among participantsfrom a single transplant center in central North Carolina, and our findings may not generalize to patients awaiting transplantation from other regions of the US Practices on LDKT education may vary across transplant centers.…”

mentioning

confidence: 94%

Associations of perceived information adequacy and knowledge with pursuit of live donor kidney transplants and living donor inquiries among African American transplant candidates

Cabacungan

Ellis

Sudan

et al. 2020

Clinical Transplantation

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We studied associations between perceived adequacy of live donor kidney transplant (LDKT) information or knowledge with pursuit of LDKT or receipt of live donor inquiries among 300 African American kidney transplant candidates. Participants reported via questionnaire how informed or knowledgeable they felt regarding LDKT. Participants also reported their pursuit of LDKT, categorized as “low” (no discussion with family or friends about LDKT and no identified donor), “intermediate” (discussed LDKT with family but no identified donor) or “high” (discussed LDKT with family and identified a potential donor). We reviewed participants' electronic health records to identify potential donors' transplant center inquiries on participants' behalves. A minority of participants reported they felt “very” or “extremely” well informed about LDKT (39%) or had “a great deal” of LDKT knowledge (38%). Participants perceiving themselves as “very” or “extremely” (vs “not” or “slightly”) well informed about LDKT had statistically significantly greater odds of intermediate or high (vs low) pursuit of LDKT (odds ratio [95% confidence interval] 2.71 [1.02‐7.17]). Perceived LDKT knowledge was not associated with pursuit of LDKT. Neither perceived information adequacy nor knowledge was associated with living donor inquiries. Efforts to better understand the role of education in the pursuit of LDKT among African American transplant candidates are needed.

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mentioning

confidence: 94%

Associations of perceived information adequacy and knowledge with pursuit of live donor kidney transplants and living donor inquiries among African American transplant candidates

Cabacungan

Ellis

Sudan

et al. 2020

Clinical Transplantation

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“…We considered sociodemographic, clinical, LDKT-related, and psychosocial characteristics potentially relevant to engagement in LDKT discussions with family or friends based on their theoretical or empirical association with discussion occurrence in past studies. [6][7][8][9][10][11][12][24][25][26][27]…”

Section: Participant Characteristicsmentioning

confidence: 99%

African Americans’ discussions about living‐donor kidney transplants with family or friends: Who, what, and why not?

DePasquale

Ellis

Sudan

et al. 2021

Clinical Transplantation

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Background: Although discussions with family or friends can improve access to livingdonor kidney transplantation (LDKT), they remain an understudied step in the LDKT process.Methods: Among 300 African American transplant candidates, we examined how sociodemographic, clinical, LDKT-related, and psychosocial characteristics related to the occurrence of LDKT discussions with family or friends. We also analyzed the relation between discussion occurrence and donor activation on transplant candidates' behalves (at least one donor inquiry or completed donor evaluation in the medical record). We assessed associations of discussion characteristics (context, content, and perceptions) with donor activation among discussants, and we identified discussion barriers among non-discussants.Results: Most candidates (90%) had discussed LDKT. Only family functioning was statistically significantly associated with discussion occurrence. Specifically, family dysfunction was associated with 62% lower odds of discussion than family function.Family functioning, discussion occurrence, and different discussion characteristics were statistically significantly related to donor activation. The most prevalent discussion barrier was never having thought about discussing LDKT.Conclusions: Family functioning affected the likelihood of discussing LDKT, and family functioning, discussion occurrence, and discussion characteristics were associated with donor activation. Advancing understanding of how family functioning and LDKT discussions affect progression to LDKT may benefit interventions to increase LDKT.

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“…Patients often receive information about LDKT from health professionals as well as through sharing information about LDKT with their family members or friends. (11,16,17) To date however, studies have not evaluated the impact of receiving and sharing LDKT-speci c information on LDKT knowledge among persons with chronic kidney disease (CKD). Studies examining associations between LDKT knowledge and information sharing could provide valuable insight into the mechanisms through which transplant candidates' knowledge could be increased.…”

Section: Introductionmentioning

confidence: 99%

Receipt and Sharing of Information to Improve Knowledge About Living Donor Kidney Transplant Among Individuals With Advanced CKD

Mohottige¹,

Davenport²,

Lee³

et al. 2021

Preprint

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Background: Knowledge about living donor kidney transplant (LDKT) is associated with greater LDKT access. Yet, little is known about factors associated with high LDKT knowledge.Methods: As part of a clinical trial, we conducted a cross-sectional analysis of data obtained from individuals seen in nephrology clinics who were deemed candidates for pre-emptive LDKT. We assessed participants’ LDKT knowledge [10-point scale based on correct answers to questions about prognosis, donation, and financial aspects of LDKT; (high knowledge ≥8)], self-reported receipt of information about LDKT from various health professionals, and self-reported history of having shared information about LDKT with family members or friends. In multivariable logistic regression models adjusting for participants’ age, race, and total household income, we quantified the association of participants’ high LDKT knowledge with their receipt of LDKT information from health professionals and their sharing of LDKT information with family/friends. Results: Among 130 participants, the median (IQR) age was 59.5 (52.0-65.0) years, 60% were female, 47.7% were Black or African American, and 49.2% had a high school education or less. Participants had seen their nephrologists for a median (IQR) of 2.0 (1.0-4.0) years. Over half (55.4%) had high LDKT knowledge. Nearly one third reported having received LDKT information (33.1%) or sharing LDKT information with family/friends (28.5%). After adjustment, those who received (versus did not receive information) and shared information with family/friends had 3-fold higher odds of high LDKT knowledge (3.05 [1.24, 8.08]). Individuals who received LDKT information (versus did not receive information) from health professionals had 4-fold higher odds of high LDKT knowledge (adjusted OR [95% CI]: 4.01 [1.49, 12.18]. Conclusions: Both the receipt of LDKT information from health professionals and sharing of LDKT information with family members/friends were associated with high LDKT knowledge. Improved provision of LDKT information to patients with advanced CKD and encouragement to share information with family members or friends could aid efforts to improve LDKT rates.Trial registration: ClinicalTrials.gov number, NCT00932334.

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Actual and Perceived Knowledge of Kidney Transplantation and the Pursuit of a Live Donor.

Cited by 3 publications

References 16 publications

Associations of perceived information adequacy and knowledge with pursuit of live donor kidney transplants and living donor inquiries among African American transplant candidates

Associations of perceived information adequacy and knowledge with pursuit of live donor kidney transplants and living donor inquiries among African American transplant candidates

African Americans’ discussions about living‐donor kidney transplants with family or friends: Who, what, and why not?

Receipt and Sharing of Information to Improve Knowledge About Living Donor Kidney Transplant Among Individuals With Advanced CKD

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