Acute pain in adolescents and young adults with sickle cell disease: Delayed and increased opioid dosing following transition to adult care

Stehouwer, Nathan; Edge, Preston; Park, Bohyung Katie; Piccone, Connie M.; Little, Jane A.

doi:10.1002/ajh.24647

Cited by 9 publications

(3 citation statements)

References 6 publications

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“…It is estimated that 95.7% of patients with specific pediatric chronic diseases other than malignant neoplasms reach adulthood (3). However, these patients often develop complications in adulthood due to age-related changes in therapeutic areas, poor treatment adherence, and the development of lifestyle-related diseases (4)(5)(6). Therefore, there is a need to transition from the pediatric to the adult health care system; a smooth transition of these patients to the adult health care system appropriate to their needs, where they can receive appropriate medical care and the life they desire, is needed.…”

Section: Introductionmentioning

confidence: 99%

“…Clinical Reporting in Transitional Care, recommended by the American Academy of Pediatrics, the American Academy of Family Physicians, and the American Board of Internal Medicine (7), uses Got Transition R (10). The Six Core Elements of the National Resource Center on Health Care Transitions specifically describe both pediatric and adult health care programs and include the following: (1) establishing the transition policy, (2) tracking and monitoring transition progress, (3) assessing the patient's readiness for transition, (4) developing the transition plan with a medical summary, (5) transferring the patient, (6) completing the transfer and following up with the patient and family. These consist of and define the basic elements in a structured transition process.…”

Section: Introductionmentioning

confidence: 99%

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Prevalence and barriers to health care transition for adolescent patients with childhood-onset chronic diseases across Japan: A nation-wide cross-sectional survey

et al. 2022

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Since the Japan Pediatric Society published its “Recommendations on Transitional Care for Patients with Childhood-Onset Chronic Diseases” in 2014, there has been an increased interest in the health care transition of adolescents with childhood-onset chronic diseases in Japan. However, the actual status of healthcare transition was not studied yet. The purpose of this study was to explore the prevalence of transitional support for adolescent patients with childhood-onset chronic disease and the factors hindering their transition. We conducted an anonymous questionnaire survey in August 2020, targeting physicians and nurses involved in health care transition at 494 pediatric facilities in Japan. Survey items included demographic data, health care systems related to transition to adult departments, health care transition programs based on Six Core Elements (establishing transition policy, tracking and monitoring transition progress, assessing patient readiness for transition, developing the transition plan with a medical summary, transferring the patient, completing the transfer/following up with the patient and family), barriers to transition (34-item, 4-point Likert scale), and expectations in supporting transition (multiple-choice responses), which consisted of five items (78 questions); all questions were structured. Descriptive statistics were used for analysis. Of the 225 responses collected (45.5% response rate), 88.0% were from pediatricians. More than 80% of respondents transferred patients of 20 years or older, but only about 15% had took a structured transition process of four or more based on the Six Core Elements. The top transition barriers were “intellectual disability/rare disease” and “dependence on pediatrics” as patient/family factors, and “lack of collaboration with adult healthcare (relationship, manpower/system, knowledge/understanding)” as medical/infrastructure factors. The study provides future considerations, including the promotion of structured health care transition programs, development of transitional support tailored to the characteristics of rare diseases and disorders, and establishment of a support system with adult departments.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Prevalence and barriers to health care transition for adolescent patients with childhood-onset chronic diseases across Japan: A nation-wide cross-sectional survey

et al. 2022

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“…Studies suggest that even when patients are successfully transitioned to adult programs, they appear to have a marked increase in emergency room use, and their visits may be associated with significantly longer waiting times . Stehouwer analyzed the time to treatment in emergency rooms for patients with SCD in transition programs and compared the waiting time at both pediatric and adult sites; disappointingly, the time to treatment after transfer often doubled or tripled …”

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confidence: 99%

Lifespan care in SCD: Whom to transition, the patients or the health care system?

Minniti

Vichinsky

2017

American J Hematol

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Health Care Transition: Need of the Hour

Basu

2020

Indian J Pediatr

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Acute pain in adolescents and young adults with sickle cell disease: Delayed and increased opioid dosing following transition to adult care

Cited by 9 publications

References 6 publications

Prevalence and barriers to health care transition for adolescent patients with childhood-onset chronic diseases across Japan: A nation-wide cross-sectional survey

Prevalence and barriers to health care transition for adolescent patients with childhood-onset chronic diseases across Japan: A nation-wide cross-sectional survey

Lifespan care in SCD: Whom to transition, the patients or the health care system?

Health Care Transition: Need of the Hour

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