Adaptation and Preliminary Validation of the Advance Care Planning Engagement Survey for Surrogate Decision Makers

Scoy, Lauren Jodi Van; Day, Andrew G.; Howard, Michelle; Sudore, Rebecca L.; Heyland, Daren K.

doi:10.1016/j.jpainsymman.2019.01.008

Cited by 24 publications

(19 citation statements)

References 26 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Some instruments have been developed to elicit information regarding attitude towards patient autonomy [15] and to examine the difference in influence of cultural values and beliefs among African and White Americans towards ACP [16]. Other instruments were developed and validated to evaluate behaviour change as a result of an ACP intervention [17][18][19]43] and to assess the role of surrogate decision makers of patients with chronic illness in ACP [44]. Most of the validated instruments were developed in Korean [15], English [14,16,17,19], French [45] or Spanish languages [46].…”

Section: Discussionmentioning

confidence: 99%

Validation of the psychometric properties of the Malay advance care planning questionnaire

et al. 2021

View full text Add to dashboard Cite

Background There is a growing interest among the developing countries on advance care planning (ACP) due to the reported benefits of planning ahead in the developed countries. Validated instruments in various languages have been developed to facilitate study on the views of public prior to its implementation. However, instrument to explore the views on ACP in Malay has not been developed and validated yet, even though Malay is spoken extensively by approximately 220 million people in the Malay Archipelago. There is also a need for instrument in Malay language to facilitate the assessment of knowledge, attitude and practice (KAP) of Malaysians regarding ACP. Therefore, the aim of this study was to validate the psychometric properties of the Malay Advance Care Planning Questionnaire (ACPQ-M). Methods The ACPQ was translated according to international guidelines. This validation study was conducted from January to June 2018. Participants who were ≥ 21 years old, and able to understand Malay were recruited from an urban primary care clinic and a tertiary education institution in Malaysia. A researcher administered the ACPQ-M to participants via a face-to-face interview at baseline and 2 weeks later. Each interview took approximately 10–20 min. Results A total of 222/232 participants agreed to participate (response rate = 96.0%). Exploratory factor analysis and confirmatory factor analysis found that the ACPQ-M was a 4-factor model. The Cronbach’s α values for the four domains ranged from 0.674–0.947. Only 157/222 participants completed the test-retest (response rate = 71%). At test-retest, quadratic weighted kappa values for all domains ranged from 0.340–0.674, except for two domains which ranged from − 0.200-0.467. Conclusions The ACPQ-M was found to be a 4-factor model, and a valid and reliable instrument to assess the KAP regarding ACP. This instrument can contribute to profound understanding of the KAP of Malaysians regarding ACP, and assist policy makers in determining the readiness for legislation of ACP in Malaysia.

show abstract

Section: Discussionmentioning

confidence: 99%

Validation of the psychometric properties of the Malay advance care planning questionnaire

et al. 2021

View full text Add to dashboard Cite

show abstract

“…(16) Other instruments were developed and validated to evaluate behaviour change as a result of an ACP intervention (17)(18)(19)44) and to assess the role of surrogate decision makers of patients with chronic illness in ACP. (45) Most of the validated instruments were developed in Korean (15), English (14,16,17,19), French (46) or Spanish languages (47). To date, there is a lack of validated instruments that assessed the KAP of adults regarding ACP.…”

Section: Discussionmentioning

confidence: 99%

Validation of the Psychometric Properties of the Malay Advance Care Planning Questionnaire

Lim

Lai²,

Wong

et al. 2020

Preprint

View full text Add to dashboard Cite

Background There is a growing interest among the developing countries on advance care planning (ACP) due to the reported benefits of planning ahead in the developed countries. Validated instruments in various languages have been developed to facilitate study on the views of public prior to its implementation. However, instrument to explore the views on ACP in Malay has not been developed and validated yet, even though Malay is spoken extensively by approximately 220 million people in the Malay Archipelago. There is also a need for instrument in Malay language to facilitate the assessment of knowledge, attitude and practice (KAP) of Malaysians regarding ACP. Therefore, the aim of this study was to validate the psychometric properties of the Malay Advance Care Planning Questionnaire (ACPQ-M). Methods The ACPQ was translated according to international guidelines. This validation study was conducted from January to June 2018. Participants who were ≥21 years old, and able to understand Malay were recruited from an urban primary care clinic and a tertiary education institution in Malaysia. A researcher administered the ACPQ-M to participants via a face-to-face interview at baseline and two weeks later. Each interview took approximately 15-20 minutes. Results A total of 222/232 participants agreed to participate (response rate=96.0%). Exploratory factor analysis and confirmatory factor analysis found that the ACPQ-M was a 4-factor model. The Cronbach’s α values for the four domains ranged from 0.674-0.947. Only 157/222 participants completed the test-retest (response rate=71%). At test-retest, quadratic weighted kappa values for all domains ranged from 0.340-0.674, except for two domains which ranged from -0.200-0.467. Conclusions The ACPQ-M was found to be a 4-factor model, and a valid and reliable instrument to assess the KAP regarding ACP. This instrument can contribute to profound understanding of the KAP of Malaysians regarding ACP, and assist policy makers in determining the readiness for legislation of ACP in Malaysia.

show abstract

“…The primary outcome will be evaluated in the SDM. We will use a validated ‘SDM ACP Engagement Survey’ measure of behavioural change that conveys SDM engagement (knowledge, contemplation, self-efficacy and readiness) for their role with respect to the patient 32. The survey is based on a previously validated patient ACP Engagement Survey, which measures the same ACP behavioural change as well as several ACP actions, including identifying the SMD, identifying values and goals for medical care, and documenting one’s wishes.…”

Section: Methods and Analysismentioning

confidence: 99%

“…Validity, reliability and responsiveness of the patient ACP Engagement Survey and validation of short versions have been previously described 35 41 42. The patient version was adapted to a version for SDMs by modifying the language of items to reflect the SDM’s perspective, and reducing items and confirming factors through psychometric analyses using data from 65 respondents who were family members of patients in a hospital inpatient setting 32. The version contains 17 items, with three factors that explained 91% of variance.…”

Section: Methods and Analysismentioning

confidence: 99%

“…A separate randomised trial of the patient’s decisional outcomes is reported elsewhere (unpublished) (registration at clinicaltrials.gov; NCT03434626). We will use a validated ‘SDM ACP Engagement Survey’ measure that asks about SDM engagement related to that role for a loved one 32. Our primary hypothesis is that the SDM’s presence while the patient is guided through the Plan Well Guide will result in increased engagement in behavioural change processes concerning ACP in relation to being involved in the loved one’s future decision-making, as measured in the SDM (see the Outcomes and Measures section), compared with usual care.…”

Section: Research Aims and Study Hypothesesmentioning

confidence: 99%

See 1 more Smart Citation

Decision support intervention (Plan Well Guide) for patients and their substitute decision-makers to improve engagement in advance care planning: protocol for a randomised trial

et al. 2019

Self Cite

View full text Add to dashboard Cite

ObjectiveThe purpose of this randomised trial is to evaluate the efficacy of a decision support intervention for serious illness decisions (the Plan Well Guide decision aid;www.PlanWellguide.com) in increasing the engagement of substitute decision-makers (SDMs) in the patient’s advance care planning process (ie, ‘ACP engagement’), specifically the SDM’s confidence and readiness for the role in the future.Methods and analysisThis study is a parallel group randomised controlled trial. We aim to enrol 90 participant dyads: patients aged 65 years and older attending outpatient healthcare settings and with indicators they would be at high risk of needing future medical decisions and their SDM. The intervention is the Plan Well Guide decision aid, administered to the patient by a facilitator, with the SDM present. The primary endpoint is change after 3 months in the SDM’s ACP engagement using a validated measure of behavioural change (SDM’s knowledge, contemplation, self-efficacy and readiness) to enact the role. The secondary endpoints are (1) ACP engagement of the patient measured by a validated survey; (2) change in SDM decisional conflict regarding involvement in future decision-making and (3) postintervention patient decisional conflict regarding preference for life-sustaining treatments. Primary and secondary continuous outcomes will be analysed using the linear regression. The mean difference and 95% CIs will be reported.Ethics and disseminationApproval was received August 2017 (2017-3714-GRA) from the Hamilton Integrated Research Ethics Board. We plan to disseminate trial results in peer-reviewed journals, at national and international conferences, and via our web-based knowledge translation platforms.Trial registration numberNCT03239639; Pre-results.

show abstract

Adaptation and Preliminary Validation of the Advance Care Planning Engagement Survey for Surrogate Decision Makers

Cited by 24 publications

References 26 publications

Validation of the psychometric properties of the Malay advance care planning questionnaire

Validation of the psychometric properties of the Malay advance care planning questionnaire

Validation of the Psychometric Properties of the Malay Advance Care Planning Questionnaire

Decision support intervention (Plan Well Guide) for patients and their substitute decision-makers to improve engagement in advance care planning: protocol for a randomised trial

Contact Info

Product

Resources

About