Adaptation and validation of the Caregiver Burden Inventory in eating disorders

Bertelli, Sara; Ferrara, Paolo; Modica, Sharon Di; Bergamelli, Emilio; Gambini, Orsola; D’Agostino, Armando; Destrebecq, Anne; Terzoni, Stefano

doi:10.1186/s40337-022-00560-7

Cited by 3 publications

(1 citation statement)

References 28 publications

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“…The Caregiver Burden Inventory (CBI) comprises 24 closed questions spanning five dimensions (timedependence, developmental, physical, social, and emotional burden) [24]. Each is scored between 0 (not at all relevant) and 4 (very relevant), with a total score in the 0-96 range [25]. A total score ≥ 24 indicates need for respite, and a total score ≥ 36 indicates a high risk of burnout [26].…”

Section: Commonly Reported Care Partner Burden Instrumentsmentioning

confidence: 99%

A Literature Review on the Burden of Alzheimer’s Disease on Care Partners

Frederiksen,

Lanctôt,

Weidner

et al. 2023

JAD

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Background: Many individuals with Alzheimer’s disease (AD) are dependent on nonprofessional care partners. Providing informal care can result in emotional, physical, and financial burdens; however, there is a need for a better understanding of the impact of AD on care partners to support the clinical and economic assessment of potential new treatments. Objective: We conducted a literature review to evaluate the burden experienced by care partners of individuals with AD. Methods: Electronic screening and supplementary searches identified studies published from 2011 to 2022 describing the association between AD and the quality of life (QoL) and physical health of care partners, and the economic or financial burden of AD. Results: Following electronic screening, 62, 25, and 39 studies were included on care partner burden, cost, and healthcare resource use in AD, respectively. Supplementary searches identified an additional 32 studies, resulting in 149 unique studies. These studies showed that care partners of individuals with AD report moderate to severe burden. Higher burden and lower QoL were observed in those caring for individuals with more severe AD. Care partners of individuals with AD experience higher burden, lower QoL, and higher levels of stress, depression, and anxiety than those without caring responsibilities. Informal care costs increased with AD severity and accounted for the greatest proportion of overall societal cost. Conclusions: Care partners of individuals with AD experience emotional and economic burden, which increases with AD severity. These impacts should be quantified comprehensively in future studies and captured in economic evaluations of AD interventions.

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Section: Commonly Reported Care Partner Burden Instrumentsmentioning

confidence: 99%

A Literature Review on the Burden of Alzheimer’s Disease on Care Partners

Frederiksen,

Lanctôt,

Weidner

et al. 2023

JAD

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An investigation of the factor structure of a German version of the Eating Disorder Symptom Impact Scale (EDSIS) among parents of adolescents and young adults with anorexia nervosa

et al. 2023

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Substantial Impact of Later-Life Depression Among Community Older Adults on the Family Caregivers’ Burden in the Home Care Setting of Chiang Mai, Northern Thailand

Shimizu,

Aung,

Moolphate

et al. 2025

Medicina

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Background and Objectives: Depression is a common geriatric problem globally. It is particularly burdensome in low- and middle-income countries, where care for older people mainly relies on the family in the absence of long-term care facilities. This study aimed to assess the level of caregivers’ burden among family caregivers who are taking care of older persons with depression in the home care setting within the communities of Chiang Mai, Northern Thailand. Materials and Methods: This cross-sectional study investigated 867 pairs of community-dwelling older adults and their family caregivers in Chiang Mai, Thailand. The depression of older people was screened using the 15-item Geriatric Depression Scale. The family caregivers’ burden and quality of life were measured using the Caregiver Burden Inventory (CBI) and the European Quality of Life (EQ) Five Dimension Five Level scales. The analysis applied was multivariable regression. Results: Two-thirds of the family caregivers were female. The mean age was 55.3 ± 13.8 years. The family caregivers caring for older persons with depression experienced significantly higher levels of burden in terms of the CBI total score (Coefficient: 10.60, 95% CI: 8.60, 12.60) and lower quality of life in terms of the EQ visual analogue scale (Coefficient: −5.52, 95% CI: −8.41, −2.62). They were more likely to take sick leave from their jobs (adj. OR 4.00, 95% CI: 1.73, 9.24) and more often to get sick (adjusted OR 7.26, 95% CI: 2.68, 19.64) than the caregivers of older adults without depression. Conclusions: Urgent interventions to prevent depression among older adults and systematic support to relieve family caregiver burden are necessary. The measures to relieve family caregiver burden include care capacity building, psychological support, respite care service, financial support, and other health promotion activities.

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Adaptation and validation of the Caregiver Burden Inventory in eating disorders

Cited by 3 publications

References 28 publications

A Literature Review on the Burden of Alzheimer’s Disease on Care Partners

A Literature Review on the Burden of Alzheimer’s Disease on Care Partners

An investigation of the factor structure of a German version of the Eating Disorder Symptom Impact Scale (EDSIS) among parents of adolescents and young adults with anorexia nervosa

Substantial Impact of Later-Life Depression Among Community Older Adults on the Family Caregivers’ Burden in the Home Care Setting of Chiang Mai, Northern Thailand

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