Adjustment and social behaviour in older adults with chronic obstructive pulmonary disease: the family's perspective

Leidy, Nancy Kline; Traver, Gayle A.

doi:10.1111/j.1365-2648.1996.tb02664.x

Cited by 31 publications

(36 citation statements)

References 31 publications

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“…The partners’ relationship satisfaction was found to predict the partners’ supportive behavior. Studies have shown that the well‐being of family members is inherently important and can influence the family’s ability to provide the support necessary for patient coping and disease management (Leidy & Traver, 1996; Sandhu, 1986; Siegrist & Junge, 1990). The patients’ illness is likely to affect the partners’ family roles and responsibilities, social activities, sleep, and sexual functioning (Bergs, 2002; Sexton & Munro, 1985).…”

Section: Discussionmentioning

confidence: 99%

Relationship Among Differentiation of Self, Relationship Satisfaction, Partner Support, and Depression in Patients With Chronic Lung Disease and Their Partners

Lal¹,

Bartle‐Haring²

2011

J Marital Family Therapy

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The purpose of the present study is to test the relationships among differentiation of self, relationship satisfaction, perceived partner support, and depression in a sample of patients with chronic lung disease (CLD) and their partners. The sample consisted of 52 patients with CLD and their partners. Hierarchical multiple regression was used for data analysis. The results indicate that (a) patients' differentiation of self is significantly lower than partners' differentiation of self, (b) patients' relationship satisfaction is positively correlated with partners' relationship satisfaction, (c) patients' relationship satisfaction predicts perceived partner supportive behavior, (d) perceived partner unsupportive behavior predicts patients' depression, (e) partners' differentiation of self predicts partners' relationship satisfaction, (f) partners' relationship satisfaction predicts partner supportive behavior, and (g) partners' differentiation of self and relationship satisfaction predicts partners' depression. The study serves to highlight the fact that the patient is part of a system, and that taking the system into account is relevant to the well-being of both the patient and the partner, in particular for patients with CLD, a heretofore unstudied population. The results of such studies have significant implications for couple and family therapists.

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Section: Discussionmentioning

confidence: 99%

Relationship Among Differentiation of Self, Relationship Satisfaction, Partner Support, and Depression in Patients With Chronic Lung Disease and Their Partners

Lal¹,

Bartle‐Haring²

2011

J Marital Family Therapy

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“…The KAS-R has been shown to approximate clinical judgment and has discriminated between well-adjusted patients and poorly adjusted patients 27,28. It has also been used successfully in studies of patients with COPD 29–31. Two subscales were used to validate the FPI-SF: performance of socially expected activities (16 items, α = 0.88) and free-time activities (22 items, α = 0.85).…”

Section: Methodsmentioning

confidence: 99%

In search of parsimony: reliability and validity of the Functional Performance Inventory-Short Form

Leidy

Knebel²

2010

COPD

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Purpose:The 65-item Functional Performance Inventory (FPI), developed to quantify functional performance in patients with chronic obstructive pulmonary disease (COPD), has been shown to be reliable and valid. The purpose of this study was to create a shorter version of the FPI while preserving the integrity and psychometric properties of the original.Patients and methods:Secondary analyses were performed on qualitative and quantitative data used to develop and validate the FPI long form. Seventeen men and women with COPD participated in the qualitative work, while 154 took part in the mail survey; 54 completed 2-week reproducibility assessment, and 40 relatives contributed validation data. Following a systematic process of item reduction, performance properties of the 32-item short form (FPI-SF) were examined.Results:The FPI-SF was internally consistent (total scale α = 0.93; subscales: 0.76–0.89) and reproducible (r = 0.88; subscales: 0.69–0.86). Validity was maintained, with significant (P < 0.001) correlations between the FPI-SF and the Functional Status Questionnaire (activities of daily living, r = 0.71; instrumental activities of daily living, r = 0.73), Duke Activity Status Index (r = 0.65), Bronchitis-Emphysema Symptom Checklist (r = −0.61), Basic Need Satisfaction Inventory (r = 0.61) and Cantril’s Ladder of Life Satisfaction (r = 0.63), and Katz Adjustment Scale for Relatives (socially expected activities, r = 0.51; free-time activities, r = −0.49, P < 0.01). The FPI-SF differentiated patients with an FEVl% predicted greater than and less than 50% (t = 4.26, P < 0.001), and those with severe and moderate levels of perceived severity and activity limitation (t = 9.91, P < 0.001).Conclusion:Results suggest the FPI-SF is a viable alternative to the FPI for situations in which a shorter instrument is desired. Further assessment of the instrument’s performance properties in new samples of patients with COPD is warranted.

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“…It was important for the spouse to have a part-time job in order to reduce both the isolation and the economic burden (Brewin, 2004). When studying the family's perspective on adjustment and social behaviour of older adults with severe COPD, it was clear that the caregivers were dissatisfied with leisure activities, and that relatives of chronically ill men experienced more dissatisfaction with socially expected activity performance than did relatives of chronically ill women (Leidy and Traver, 1996). As the COPD progresses, the relationship is affected, with a decrease in shared activities and less time being spent together as a couple (Simpson et al, 2010).…”

Section: Introductionmentioning

confidence: 99%

Conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease

Lindqvist

Albin

Heikkilä

et al. 2012

Prim Health Care Res Dev

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Four main descriptive categories were found: unchanged life situation where no support was needed; socially restricted life and changed roles; changes in health; and changes in the couple's relationship where support was needed. The categories are described in relation to the woman herself, in relation to the man, and in relation to others. No support was needed from society or health care when the men had mild COPD and the women experienced no change in their daily life. As the disease progressed, the women's responsibilities increased and their role changed from being a spouse to being an informal carer. Social contacts became limited, and they began to feel isolated. The women prioritized their spouse's health and well-being and compromised their own health. They experienced lack of support from health professionals and from the municipality.

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Adjustment and social behaviour in older adults with chronic obstructive pulmonary disease: the family's perspective

Cited by 31 publications

References 31 publications

Relationship Among Differentiation of Self, Relationship Satisfaction, Partner Support, and Depression in Patients With Chronic Lung Disease and Their Partners

Relationship Among Differentiation of Self, Relationship Satisfaction, Partner Support, and Depression in Patients With Chronic Lung Disease and Their Partners

In search of parsimony: reliability and validity of the Functional Performance Inventory-Short Form

Conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease

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