Adolescent adherence in type 1 diabetes

Hoffman, Robert P.

doi:10.1007/s12019-002-0050-8

Cited by 31 publications

(24 citation statements)

References 35 publications

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“…It is well known that older children with PKU have higher Phe concentrations (Bekhof et al 2005;MacDonald 2000;Shulman et al 1991;Walter and White 2004). Problems with dietary adherence during adolescence are in line with findings in children with chronic diseases such as diabetes (Hoffmann 2002;McQuaid and Nassau 1999). These age-related problems with the diet may be due to the fact that patients, at an age when acceptance of rules and restrictions is at a minimum, are more prone to reject a given regime, especially when it is imposed by their parents and other authority figures.…”

Section: Discussionsupporting

confidence: 66%

Behavioural factors related to metabolic control in patients with phenylketonuria

Crone¹,

Spronsen²,

Oudshoorn³

et al. 2004

J of Inher Metab Disea

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Section: Discussionsupporting

confidence: 66%

Behavioural factors related to metabolic control in patients with phenylketonuria

Crone¹,

Spronsen²,

Oudshoorn³

et al. 2004

J of Inher Metab Disea

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“…This is supported by existing literature that adherence and good glycemic control is difficult to maintain in both age groups. 10,34 Many factors unique to chronic condition management in emerging adulthood contribute to the issue, such as disrupted transitions from pediatric to adult care, changes in living environments, and heterogeneity in acquiring necessary self-care knowledge and skills to maintain good glycemic control independently. 37,38 Like emerging adults without chronic conditions, emerging adults with T1D are also vulnerable to depression, low self-esteem, and eating disorders; however, these psychological and developmental issues could lead to more severe, longer-term adverse health effects and complications related to T1D.…”

Section: Discussionmentioning

confidence: 99%

Patient Perspectives on Peer Mentoring

et al. 2014

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Purpose The purpose of the study was to identify attitudes and topics relevant to peer mentoring as an adherence-promoting intervention for adolescents and young adults (YAs) with type 1 diabetes (T1D). Methods Self-administered survey data were collected in two diabetes clinics from a convenience sample of adolescents as prospective mentees (ages 13–18) and YAs as prospective mentors (ages 19–25) with T1D. Survey topics included demographics, disease history, glycemic control, adherence, depression, barriers to disease management, social support, and interest in peer mentoring. Descriptive statistical analyses, thematic coding, and stepwise multivariate logistic regression were performed. Results A majority of the 54 adolescents and 46 YAs expressed interest in a peer mentoring program. Having supportive friends and living in a large household positively predicted adolescent interest in having a peer mentor. Approximately one third of all participants experienced social barriers to diabetes management. For adolescents, barriers included inflexible schedules, unfamiliar foods, and the embarrassment of checking blood glucose in front of others. Young adults reported barriers in tracking food consumption and remembering to check blood glucose. Various diabetes management skills were in high demand by adolescents, who especially desired to learn about managing T1D on their own and in college. Participants were open to multiple communication modes, including in-person meetings, phone, text messaging, and social media. Conclusions Many adolescents and young adults with T1D are interested in peer mentoring as a way to facilitate learning and sharing essential diabetes management skills and experiences.

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“…Although regimen adherence is critical for preventing negative health outcomes, it has been well documented that many adolescents are nonadherent (e.g., Hoffman, 2002). Various factors have been associated with nonadherence, including physiological changes due to puberty (e.g., Amiel, Sherwin, Simonson, Lauritano, & Tamborlane, 1986), diabetes knowledge (e.g., La Greca, Follansbee, & Skyler, 1990), and psychological problems (e.g., La Greca, Swales, Klemp, Madigan, & Skyler, 1995).…”

Section: Introductionmentioning

confidence: 99%

Perceptions of Type 1 Diabetes among Affected Youth and their Peers

Lehmkuhl

Merlo

Devine

et al. 2009

J Clin Psychol Med Settings

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Management of type 1 diabetes (T1D) involves balancing several components including diet, exercise, and medication. Peer involvement in management tasks is an important, but understudied, issue in T1D. This study presents results of a preliminary examination of perceptions of disease management in youth with T1D and their peers. Data were collected using a mixed methods (qualitative and quantitative data) approach during medical education time at a camp for youth with T1D and their peers. Results suggest that both youth with T1D and their peers believe that peers need more information about medical consequences of having diabetes. Further, youth with T1D and their peers would like coaching on how peers may help the child with T1D manage their illness better. Results provide preliminary ideas for intervention (i.e., including peers, assessing social support) in the medical setting as well as ideas for future research (i.e., examining relationships among perceptions and gender, time since diagnosis).

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Adolescent adherence in type 1 diabetes

Abstract: Adolescents with Type 1 diabetes have poorer glycemic control and more hypoglycemia than do adults. While physiologic reasons for these problems exist, the most common problems are failure to administer insulin, monitor glucose levels, and maintain an appropriate meal plan.

Cited by 31 publications

References 35 publications

Behavioural factors related to metabolic control in patients with phenylketonuria

Behavioural factors related to metabolic control in patients with phenylketonuria

Patient Perspectives on Peer Mentoring

Perceptions of Type 1 Diabetes among Affected Youth and their Peers

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