Adolescent–Parent Dyadic Retention in an Interview Study and Changes in Willingness to Participate in a Hypothetical Microbicide Safety Study

Francis, Jenny; Roche, Ariel M. de; Mauro, Christine; Landers, Sara E.; Chang, Jane Pei-Chen; Catallozzi, Marina; Breitkopf, Carmen Radecki; Rosenthal, Susan L.

doi:10.1016/j.jpag.2018.06.001

Cited by 4 publications

(3 citation statements)

References 25 publications

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“…Thus, the current analysis is comprised of 248 dyads, 256 individual adolescents, and 253 individual parents. Of note, dyads comprised of adolescents who were female or 14–15 years old at baseline were more likely to be retained than those comprised of adolescents who were male or 16–17 years old at baseline (Francis et al, in press). Willingness to participate at baseline was not associated with dyad retention (Francis et al, in press).…”

Section: Resultsmentioning

confidence: 99%

Adolescents’ and Parents’ Attitudes Toward Adolescent Clinical Trial Participation: Changes Over One Year

Tsevat

Breitkopf

Landers

et al. 2018

Journal of Empirical Research on Human Research Ethics

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Little is known about how adolescents' and parents' thoughts about participation in clinical trials change over time. In this study, adolescent (14-17 years)-parent dyads were asked about willingness to participate in a hypothetical reproductive health study. A year later, they were asked how their thoughts about the study had changed. Qualitative responses were coded and analyzed using framework analysis. Thirty-two percent of adolescents and 18% of parents reported changes in thoughts; reasons included general changes in perception, clearer understanding, new knowledge or experiences, increased maturity/age of adolescents, and changes in participants independent of the study. Adolescents and parents may benefit from learning about studies multiple times, and investigators should account for development and new experiences to optimize adolescent research enrollment.

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Section: Resultsmentioning

confidence: 99%

Adolescents’ and Parents’ Attitudes Toward Adolescent Clinical Trial Participation: Changes Over One Year

Tsevat

Breitkopf

Landers

et al. 2018

Journal of Empirical Research on Human Research Ethics

Self Cite

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“…Research with adolescents must balance respect for their emerging capacity for independent decision making with the need for special protections in the context of contemplating risks and benefits . There is a paucity of ED‐based literature and studies that describe parental and adolescent views on research participation are needed.…”

Section: Discussionmentioning

confidence: 99%

A Research Agenda for Emergency Medicine–based Adolescent Sexual and Reproductive Health

Miller

Chernick

Goyal

et al. 2019

Academic Emergency Medicine

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Objective: The objective was to identify key questions for emergency medicine (EM)-based adolescent sexual and reproductive health and to develop an evidence-based research agenda. Methods:We recruited national content experts to serve as advisory group members and used a modified Delphi technique to develop consensus around actionable research questions related to EM-based adolescent reproductive and sexual health care. Author subgroups conducted literature reviews and developed the initial list of research questions, which were iteratively refined with advisory members. External stakeholders then independently rated each item for its importance in expanding the evidence base (1 = not important to 5 = very important) via electronic survey.Results: Our final list of 24 research questions included items that intersected all sexual and reproductive health topics as well as questions specific to human immunodeficiency virus/sexually transmitted infections (HIV/STIs), pregnancy prevention, confidentiality/consent, public health, and barriers and facilitators to care. External stakeholders rated items related to HIV/STI, cost-effectiveness, brief intervention for sexual risk reduction, and implementation and dissemination as most important. Conclusions:We identified critical questions to inform EM-based adolescent sexual and reproductive health research. Because evidence-based care has potential to improve health outcomes while reducing costs associated with HIV/STI and unintended pregnancy, funders and researchers should consider increasing attention to these key questions.A lthough preventable, sexually transmitted infections (STIs), human immunodeficiency virus (HIV) infection, and unintended pregnancy are significant and costly public health problems in the United States that disproportionately impact adolescents, especially racial and ethnic minorities and those From the

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“…Study limitations include the small sample size and the lack of a control group, both of which precluded hypothesis testing. Our multiple methods and attempts to contact the original participants, who were initially enrolled via parent consent and child assent, as consenting adults yielded a retention rate of 58%; a relatively strong rate for this demographic ( 6 , 7 ). The small sample size and use of a nonstandardized or validated survey clearly limit the conclusions that can be drawn from this study.…”

Section: Limitations and Future Directionsmentioning

confidence: 99%

Not Quite Meeting the Mark: College Experiences for Patients With Celiac Disease

Khan,

Keenan,

Jericho

2023

JPGN Reports

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Strict adherence to a gluten-free diet (GFD), the current treatment for celiac disease (CD), is socially challenging for adolescents, especially in the college setting. We conducted a survey of factors contributing to GFD adherence during college among patients meeting the ESPGHAN criteria for CD. One-hundred-one young adults (18 years and older) were contacted; 59 completed the survey, of which 47 were enrolled or had attended college. The survey was developed by the study team. Most patients were able to maintain strict adherence to the GFD, whereas at college and reported that GF food was available and consistent with expectations. Nearly all participants reported a lack of resources for students with CD. Strong family support helped, and school stress and lack of peer support impeded diet adherence. Although colleges may meet the basic needs of celiac students, the availability and quality of gluten-free options, and improved campus resources are needed.

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Adolescent–Parent Dyadic Retention in an Interview Study and Changes in Willingness to Participate in a Hypothetical Microbicide Safety Study

Abstract: Over 1 year, parent contact might positively influence successful adolescent retention. Parents become more willing to let their adolescents participate over time, with dyads becoming more concordant about research participation.

Cited by 4 publications

References 25 publications

Adolescents’ and Parents’ Attitudes Toward Adolescent Clinical Trial Participation: Changes Over One Year

Adolescents’ and Parents’ Attitudes Toward Adolescent Clinical Trial Participation: Changes Over One Year

A Research Agenda for Emergency Medicine–based Adolescent Sexual and Reproductive Health

Not Quite Meeting the Mark: College Experiences for Patients With Celiac Disease

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