Adolescent Shared Decision-Making: Where We Have Been and Where We are Going

Marron, Jonathan M.

doi:10.1016/j.jadohealth.2021.04.009

Cited by 5 publications

(3 citation statements)

References 16 publications

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“…Third, despite the increasing emphasis on patient decision-making and patient preference, only 3 of the 11 quantitative studies collaborated with patients on attribute selection for the CR program. 60 Excluding patients from attribute selection may result in selection bias and, therefore may lead to biased results for patient preference. 17 Fourth, only English and Chinese studies were included.…”

Section: Discussionmentioning

confidence: 99%

Patient Preferences for Cardiac Rehabilitation – A Systematic Review

Liu¹,

Su²,

Lei³

et al. 2023

PPA

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Background Although a large number of studies have demonstrated the effectiveness of cardiac rehabilitation(CR), patient preferences for CR remain unclear. Knowing patient preferences may contribute to increasing patient participation and adherence, thus improving patient prognosis. Methods A systematic search was carried out using electronic databases and manual reference checks from inception until 15th June 2022. Quantitative studies, qualitative studies and mixed methods studies assessing patient preferences for CR were included. Two researchers independently conducted study selectionand data extraction. CR preferences were divided into three categories: CR settings, CR components, and CR contents. A narrative synthesis was applied to integrate the results of the included studies. The Mixed Methods Appraisal Tool (MMAT) was used to assess the quality of included studies. Results Ultimately, 17 publications were included in this study. Regarding CR settings, most patients preferred the hospital to home, some considered both, and a few were willing to accept the local CR club as an alternative setting to the hospital. For CR components, regardless of age and gender, patients considered exercise training and nutrition counseling to be the most important and smoking cessation to be the least important. In exercise intervention of CR contents, progress discussion and encouragement were rated as most critical, and non-conflicting with other activities was rated as least critical. In psychological intervention of CR contents, most patients were willing to accept psychological intervention, and a few patients wanted to heal the trauma with the passage of time. Conclusion This systematic review provides important insights into patient preferences for CR, clarifying patient preferences for CR settings, components, and contents, along with possible influencing factors. Patient preferences may change due to the COVID-19 epidemic, and there is still a need to focus on patient preferences for CR and conduct more relevant primary research to validate the findings of this paper in the future.

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Section: Discussionmentioning

confidence: 99%

Patient Preferences for Cardiac Rehabilitation – A Systematic Review

Liu¹,

Su²,

Lei³

et al. 2023

PPA

View full text Add to dashboard Cite

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“…The BIS describes a broad cluster of children's interests, and includes basic needs, emotional development, play and pleasure, to live a long life and to have a relationship with a parent [37]. Multiple approaches to decision-making have been described and all focus on the key principles of the best interests of the child in the context of their family and the minimisation of harm [38].…”

Section: Discussionmentioning

confidence: 99%

“…Nonetheless there are ethical and practical challenges in many clinical situations. Ethical tools, such as the Zone of Parental Discretion (ZPD) [41], have been developed to help clinicians address these ethically complicated cases [38,41]. The ZPD provides a way to explore difficult decisions and uncertainty, and to balance parent authority and children's best interests.…”

Section: Discussionmentioning

confidence: 99%

Perioperative Care of Children with Severe Neurological Impairment and Neuromuscular Scoliosis—A Practical Pathway to Optimize Perioperative Health and Guide Decision Making

Antolovich

Cooper

Johnson

et al. 2022

JCM

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Neuromuscular scoliosis is a common feature in children with severe neurological impairment (SNI), including those with severe cerebral palsy. Surgical correction of scoliosis is the mainstay of treatment. This group of patients also have associated medical complexity. The complication rates post-surgery are high, although, for many, they are worth the risk. There are currently no published practice guidelines or care pathways for children with SNI who are undergoing scoliosis corrective surgery. In response to the high uptake of this surgery, coupled with the expected complication rates, our hospital established a perioperative clinic. The purpose of this paper is to describe our perioperative approach. This clinic has developed into a service beyond perioperative care and, with the collaborative meeting, enables shared decision-making to identify the right candidate for surgery. The process involves surgical expertise, understanding the family and child at the centre, and optimisation of medical care pre- and post-surgery. In this paper, we describe the process in a step-by-step manner. We provide clinical vignettes, as well as the proformas that we use, and we highlight the benefits of the team-based process.

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