Adolescents &amp; young adults: Issues in transition from active therapy into follow-up care

Thompson, Kate; Palmer, Susan; Dyson, Gavin

doi:10.1016/j.ejon.2009.05.001

Cited by 76 publications

(113 citation statements)

References 17 publications

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“…As all three of the foregoing studies demonstrated, the needs of young adult cancer survivors in countries such as Canada, the United States, and Australia are not being met in a comprehensive manner 11,17 .…”

Section: Discussionmentioning

confidence: 99%

“…Although their study did not focus exclusively on cfc, the study participants discussed cfc issues 17 . The findings from the Thompson et al study are similar to ours, albeit less detailed.…”

Section: Discussionmentioning

confidence: 99%

“…Participants reported that they felt unprepared for the transition from acute treatment to follow-up care and were not sure who could best help them with the physical, emotional, and social issues that later arose from the lingering effects of treatment. Thompson et al proposed a model of cfc that includes a transitional care plan, monitoring for recurrence and late effects, and assistance with getting back to "normal" 17 . Other authors have identified the need for financial assistance for young adult cancer survivors 18,19 .…”

Section: Discussionmentioning

confidence: 99%

“…Thompson et al conducted focus groups with young adult cancer survivors to discuss cfc and identified 3 categories of concerns: transition to follow-up care, psychosocial issues, and social issues 17 . Participants reported that they felt unprepared for the transition from acute treatment to follow-up care and were not sure who could best help them with the physical, emotional, and social issues that later arose from the lingering effects of treatment.…”

Section: Discussionmentioning

confidence: 99%

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Do Current Cancer Follow-Up Care Practices Meet the Needs of Young Adult Cancer Survivors in Canada? A Aualitative Inquiry

2013

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Purpose: The purpose of the present study was to assess whether current cancer follow-up care practices meet the needs of young adult cancer survivors in Canada. Methods: This qualitative study used a constructivist grounded theory framework to analyze telephone interviews with cancer survivors from across Canada diagnosed between the ages of 18 and 39 years. The focus was specifically on cancer follow-up care (cfc). Results: Interviews were conducted with 55 participants, and 53 interviews were used for the analysis. The overall theme that emerged from the data was the lack of age-specific cfc. Some of the subthemes that emerged were the absence or inadequacy of fertility and infertility treatment options; of psychological services such as family, couples, and sexuality counseling; of social supports such as assistance with entry or re-entry into the education system or workplace; of access to supplemental health insurance; and of survivorship care plans. Based on the data resulting from the interviews, we developed a conceptual model of young-adult cfc incorporating the major themes and subthemes that emerged from our study. The proposed model aims to ensure a more age-appropriate and comprehensive approach to cfc for this group of cancer patients. Conclusions: Current Canadian cfc practices are inadequate and do not provide comprehensive care for young adult cancer survivors in Canada. The conceptual model presented here aims to ensure a more comprehensive approach to cfc that meets the needs of this unique cancer population and reduces further possible physical, psychological, or social cancer sequelae.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Do Current Cancer Follow-Up Care Practices Meet the Needs of Young Adult Cancer Survivors in Canada? A Aualitative Inquiry

2013

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“…[38][39][40] As such, attention has also been given to the development of a formalized AYA Oncology Psychosocial Survivorship Care Process, 41 utilizing the DT and a PCL designed to capture potential areas of concern associated with psychosocial recovery and post-treatment functioning. As with the "ontreatment" version of the DT/PCL, the survivorship version is yet to be validated for use in AYAs with cancer.…”

mentioning

confidence: 99%

Validation of the distress thermometer for use among adolescents and young adults with cancer in Australia: a multicenter study protocol

Patterson¹,

McDonald²,

Anazodo³

et al. 2015

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Nonmetropolitan residence and other factors affecting clinical trial enrollment for adolescents and young adults with cancer in a US population–based study

Mobley

Charlton

Ward

et al. 2019

Cancer

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Background Cancer survival rates in adolescents and young adults (AYAs) have shown slow improvements in comparison with other age groups, and this may be due to lower participation in clinical trials. Little evidence has been provided regarding how nonmetropolitan residence may influence clinical trial enrollment for AYAs with cancer. This study sought to determine whether AYAs from nonmetropolitan areas have lower rates of clinical trial enrollment than their urban counterparts and to examine factors associated with enrollment variation. Methods Data from the National Cancer Institute’s 2006 and 2013 Surveillance, Epidemiology, and End Results Patterns of Care AYA cohorts were analyzed. Patients with acute lymphoblastic leukemia, Hodgkin lymphoma, non‐Hodgkin lymphoma, and sarcoma were included (n = 3155). Urban influence codes were used to measure the rurality of the county of residence at diagnosis, which was categorized as large metropolitan, small metropolitan, or nonmetropolitan. Logistic regression compared trial participants and nonparticipants while adjusting for patient and provider factors. Results Compared with AYAs from large metropolitan counties, AYAs from small metropolitan (odds ratio [OR], 2.04; 95% confidence interval [CI], 1.57‐2.64) or nonmetropolitan counties (OR, 1.86; 95% CI, 1.23‐2.81) experienced greater trial enrollment. AYAs treated at a hospital with a residency program (OR, 2.27; 95% CI, 1.63‐3.16) or by a pediatric oncologist (OR, 4.02; 95% CI, 3.03‐5.32) were associated with greater enrollment. There was a significant interaction between rurality and hospital size, which had the greatest impact on nonmetropolitan enrollment. Conclusions Clinical trial enrollment was higher among AYAs from nonmetropolitan counties than those from metropolitan counties, predominantly when they were treated at large hospitals.

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Adolescents & young adults: Issues in transition from active therapy into follow-up care

Cited by 76 publications

References 17 publications

Do Current Cancer Follow-Up Care Practices Meet the Needs of Young Adult Cancer Survivors in Canada? A Aualitative Inquiry

Do Current Cancer Follow-Up Care Practices Meet the Needs of Young Adult Cancer Survivors in Canada? A Aualitative Inquiry

Validation of the distress thermometer for use among adolescents and young adults with cancer in Australia: a multicenter study protocol

Nonmetropolitan residence and other factors affecting clinical trial enrollment for adolescents and young adults with cancer in a US population–based study

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