Adolescents’ and Young Adults’ Experiences of Childhood Cancer

Doukkali, Eva; Winterling, Jeanette; Eriksson, Lars E.; Lampic, Claudia; Hagström, Anneli Silvén; Wettergren, Lena

doi:10.1097/ncc.0b013e31829fd80e

Cited by 26 publications

(23 citation statements)

References 36 publications

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“…For some CCS, it has been reported that their illness experience has led to an improved view of life and of themselves (Parry & Chesler ; Enskar & Bertero ; Doukkali et al . ).…”

Section: Introductionmentioning

confidence: 97%

The long-term psychosocial impact of cancer: the views of young adult survivors of childhood cancer

Brown

Pearce

Bailey

et al. 2015

Eur J Cancer Care (Engl)

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It is rare for studies to approach psychosocial outcomes of childhood cancer in a holistic and explanatory way. Doing so would enable a greater understanding of why and in what way a young person's life may be affected by cancer. This qualitative study aimed to explore the views of childhood cancer survivors (CCS) regarding how they perceive their illness to have influenced them and their subsequent lives. Twelve CCS with a median age of 23 years old took part in either a focus group or a telephone interview. Data were analysed using thematic analysis. The main themes were altered life perspectives, perceptions of self and lasting effects on relationships. Through these themes, the survivors gave insight into how their experience had influenced their views and how this had impacted on different areas of their lives. Although positive aspects were discussed, enduring issues were reported by some. Findings suggest that despite high levels of achievement, some survivors may still benefit from further information and support especially in relation to relationships and fertility. This study will inform the development of a questionnaire aiming to collect important information on the many factors which may influence long-term psychosocial outcomes in CCS.

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“…For some CCS, it has been reported that their illness experience has led to an improved view of life and of themselves (Parry & Chesler ; Enskar & Bertero ; Doukkali et al . ).…”

Section: Introductionmentioning

confidence: 97%

The long-term psychosocial impact of cancer: the views of young adult survivors of childhood cancer

Brown

Pearce

Bailey

et al. 2015

Eur J Cancer Care (Engl)

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“…While its occurrence in this population is uncommon, the impact is significant in these often productive members of society (9, 10). Factors that explain the occurrence of the disease specifically in young patients are sparse.…”

Section: Introductionmentioning

confidence: 99%

A rising trend in the incidence of advanced gastric cancer in young Hispanic men

et al. 2016

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BACKGROUND Although the incidence of gastric cancer has been decreasing, recent reports suggest an increased rate in select populations. We sought to evaluate trends in gastric cancer incidence to identify high risk populations. METHODS Gastric cancer incidence rates from 1992 to 2011 were computed using the Surveillance, Epidemiology and End Results (SEER) registry. We evaluated trends in incidence rates by calculating annual percent change (APC) across 3 age groups (20–49, 50–64, ≥65) and 4 racial/ethnic groups (Hispanics, non-Hispanic Whites, Blacks, and Asian/Pacific Islanders). RESULTS We identified 41,428 patients with gastric cancer. For the entire cohort over the study period, the APC was decreased. When patients were grouped according to sex, APC was flat or decreased in women regardless of age or race/ethnicity. APC was also flat or decreased for all men except young Hispanic males (20–49 years), who had an increased APC of nearly 1.6% per year (1.55%, 95% CI:0.26 to 2.86%). Furthermore, young Hispanic males were the only group to have increased incidence of Stage 4 disease (APC 4.34%, 95% CI:2.76 to 5.94%) and poorly differentiated tumors (APC 2.08%, 95% CI:0.48 to 3.70%). CONCLUSIONS The APC of young Hispanic male gastric cancer places it among the top cancers with rising incidence in the United States. This is concomitant with increased incidence of advanced disease at presentation. This major public health concern warrants additional research to determine the etiology of the increasing incidence in this group.

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“…The interview guide covered areas of present life situation, school situation and/or occupational situation, leisure and relationships to friends. The interviews were audio recorded, transcribed verbatim and analysed using content analysis, findings reported elsewhere (Doukkali et al, 2013). The analysis resulted in the identificationofthreegroups"Feelinglikeanyoneelse";"Feelingalmost like others"and"Feelingdifferent"basedonhowthecancerexperienceinfluenceddaily lives for the survivors.…”

Section: Disabkids Chronic Generic Modulementioning

confidence: 99%

“…The survivors in the group "Feelinglikeanyoneelse"describedthattheyseldomthought about the cancer experience, they had minor or no complications, and if any complications, those were handled easily and survivors in this group expressed hardly anyinfluenceonviewoflife.Forthegroup"Feelingalmostlike others"descriptions included that they sometimes thought about the experience, they had complications that to a small degree influenced, without hampering, daily life and they often mentioned that the experience had influence over their view on life. Survivors in the group "Feeling different"expressedthattheyoftenthoughtabouttheexperience,had complications largely influencing and hampering daily life and described that the experience often influenced view on life (Doukkali, et al, 2013).…”

Section: Disabkids Chronic Generic Modulementioning

confidence: 99%

Survivors of Childhood Cancer Report High Levels of Independence Five Years After Diagnosis

Jervaeus

Sandeberg

Johansson

et al. 2014

J Pediatr Oncol Nurs

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The aim was to compare self-rated independence in childhood cancer survivors 5 years after diagnosis with corresponding ratings during initial cancer treatment and those in a comparison group. A further aim was to determine whether and how certain clinical and demographic variables affected self-rated independence. Self-rated independence, a dimension included in the health-related quality of life (HRQoL) measure DISABKIDS Chronic Generic Measure (DCGM-37), was assessed in a Swedish cohort of survivors (n = 63, aged 12-22 years) and compared with ratings during initial cancer treatment and those in an age-matched comparison group (n = 257). Potential predictors of self-rated independence were estimated using multiple regression analysis. Survivors rated their independence significantly higher 5 years after diagnosis than during initial cancer treatment and higher than the comparison group. Neither demographic nor clinical variables (age, sex, diagnosis, initial cancer treatment) predicted self-rated independence 5 years post diagnosis. Five years after diagnosis, survivors of childhood cancer appear to have reached a satisfactory level of independence. However, survivors are likely to experience complications over the longer term, and therefore continued follow-up is warranted to follow possible changes in self-reported independence.

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Adolescents’ and Young Adults’ Experiences of Childhood Cancer

Abstract: This is the unspecified version of the paper.This version of the publication may differ from the final published version. Permanent repository link:

Cited by 26 publications

References 36 publications

The long-term psychosocial impact of cancer: the views of young adult survivors of childhood cancer

The long-term psychosocial impact of cancer: the views of young adult survivors of childhood cancer

A rising trend in the incidence of advanced gastric cancer in young Hispanic men

Survivors of Childhood Cancer Report High Levels of Independence Five Years After Diagnosis

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