Adolescents With Inflammatory Bowel Disease Have Decreased Rates of Health Maintenance Visits

Moran, Christopher J.; Aryee, Emmanuel; Perrin, James M.

doi:10.1097/mpg.0000000000003155

Cited by 6 publications

(5 citation statements)

References 13 publications

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“…In our sample, this finding could not be replicated. Comparable studies looking at factors influencing health service utilisation in PIBD are limited and focused on the USA, making comparisons to a German population difficult [ 15 ].…”

Section: Discussionmentioning

confidence: 99%

“…With the increase in the incidence and prevalence of PIBD in recent years, especially in developed countries [ 7 – 9 ], and the description of a gap between guidelines and real-world medicine [ 10 – 12 ] research on healthcare provision for this patient group has gained traction [ 13 – 15 ]. In German speaking countries, the implementation of multidisciplinary care teams for the treatment of PIBD is mostly coordinated by the GPGE e.V.…”

Section: Introductionmentioning

confidence: 99%

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Healthcare service use in paediatric inflammatory bowel disease: a questionnaire on patient and parent care experiences in Germany

Boerkoel,

Tischler,

Kaul

et al. 2023

BMC Gastroenterol

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Background Paediatric inflammatory bowel disease (PIBD) patients require chronic care over the lifespan. Care for these patients is complex, as it is adapted for childrens’ life stages and changing disease activity. Guideline based care for this patient group recommends a multidisciplinary approach, which includes in addition to paediatric gastroenterologists, nutritional and psychological care services. For PIBD patients, a discrepancy between available guideline-based multidisciplinary care and actual care has been found from the provider side, but to what extent patients experience this is unclear. Objectives To identify which healthcare services were used and whether socio-demographic, geographic or disease related factors have an influence on health service utilisation. Methods A standardised questionnaire (CEDNA) was distributed amongst parents of children aged 0–17 diagnosed with PIBD and adolescents (aged 12–17) with a PIBD. Items related to health service use were analysed, these included specialist care, additional care services, reachability of services and satisfaction with care. Logistic regression models on additional service use were calculated. Service availability and reachability maps were made. Results Data was analysed for 583 parent and 359 adolescent questionnaires. Over half of the respondents had Crohn’s Disease (CD, patients n = 186 parents n = 297). Most patients and parents reported their paediatric gastroenterologist as their main care contact (patients 90.5%; parents 93%). Frequently reported additional services were nutritional counselling (patients 48.6%; parents 42.2%) and psychological support (patients 28.1%; parents 25.1%). Nutritional counselling was more frequently reported by CD patients in both the patient (OR 2.86; 95%CI 1.73–4.70) and parent (OR 3.1; 95%CI 1.42–6.71) sample. Of the patients, 32% reported not using any additional services, which was more likely for patients with an illness duration of less than one year (OR 3.42; 95%CI 1.26–9.24). This was also observed for the parent population (OR 2.23; 95%CI 1.13–4.4). The population-based density of specialised paediatric gastroenterologists was not proportionate to the spatial distribution of patients in Germany, which may have an influence on access. Conclusions Parents and children reported highly specialised medical care. Multidisciplinary care offers do not reach the entire patient population. Access to multidisciplinary services needs to be ensured for all affected children.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Healthcare service use in paediatric inflammatory bowel disease: a questionnaire on patient and parent care experiences in Germany

Boerkoel,

Tischler,

Kaul

et al. 2023

BMC Gastroenterol

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“…They concluded that AYA with public insurance, a mental health history, medication nonadherence, and evidence of active disease may be at greater risk for suboptimal and poor health outcomes at transition. Moran et al (5) examined health maintenance visits (HME) with primary care provider in patients with IBD compared to controls. Overall, patients with IBD had less frequent HME (62% vs 74%, P ¼ 0.0486).…”

Section: Inflammatory Bowel Diseasementioning

confidence: 99%

Journal of Pediatric Gastroenterology and Nutrition—The Highlights of 2021

Belli

Gupta

2022

J. pediatr. gastroenterol. nutr.

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and Nutrition (JPGN) is the premier global journal serving our professional community of colleagues in pediatric gastroenterology, hepatobiliary diseases, nutrition, functional and motility disorders, pancreatology, and endoscopy/procedures. JPGN is the official publication of ESPGHAN and NASPGHAN serves multiple functions for three major groups-the authors, the reviewers, and the readers. The Journal balances its roles in an independent, objective manner with the primary lens of scientific inquiry and dissemination of peerreviewed information.In this inaugural article we, the Editors of JPGN, present the Journal's journey in 2021 and its services to the stakeholders and individuals. We share the journal's scientific contributions and discuss some articles of interest published in JPGN in 2021. The second part will outline the initiatives taken at JPGN in 2021.

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“…To the Editor: We read with interest the recent study by Moran et al (1). They found that adolescents with inflammatory bowel disease (iBD) have lower rates of health maintenance visits with their primary care physicians (PCPs), and lower rates of certain vaccinations, compared with their peers.…”

mentioning

confidence: 99%

Improving Adherence to Preventive Care Among Adolescents With Inflammatory Bowel Disease

Basnayake

2022

J. pediatr. gastroenterol. nutr.

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Adolescents With Inflammatory Bowel Disease Have Decreased Rates of Health Maintenance Visits

Abstract: Supplemental Digital Content is available in the text

Cited by 6 publications

References 13 publications

Healthcare service use in paediatric inflammatory bowel disease: a questionnaire on patient and parent care experiences in Germany

Healthcare service use in paediatric inflammatory bowel disease: a questionnaire on patient and parent care experiences in Germany

Journal of Pediatric Gastroenterology and Nutrition—The Highlights of 2021

Improving Adherence to Preventive Care Among Adolescents With Inflammatory Bowel Disease

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