Adult survivors’ lived experience of burns and post-burn health: A qualitative analysis

Abrams, Thereasa E.; Ogletree, Roberta J.; Ratnapradipa, Dhitinut; Neumeister, Michael W.

doi:10.1016/j.burns.2015.09.011

Cited by 29 publications

(34 citation statements)

References 33 publications

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“… 37 These findings are in keeping with the current calls for more psychological support for burn injury survivors and that such support should promote resilience. 8 , 38 , 39 The desire to make meaning and sense of the traumatic experience was evident across all participants. In the early postburn period, participants searched for an explanation, a causal factor, or the apportioning of blame to self or others.…”

Section: Discussionmentioning

confidence: 93%

The patient–body relationship and the "lived experience" of a facial burn injury: a phenomenological inquiry of early psychosocial adjustment

McLean¹,

Rogers²,

Kornhaber³

et al. 2015

JMDH

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BackgroundThroughout development and into adulthood, a person’s face is the central focus for interpersonal communication, providing an important insight into one’s identity, age, sociocultural background, and emotional state. The face facilitates important social, including nonverbal, communication. Therefore, sustaining a severe burn, and in particular a facial burn, is a devastating and traumatizing injury. Burn survivors may encounter unique psychosocial problems and experience higher rates of psychosocial maladjustment, although there may be a number of potentially mediating factors.ObjectivesThe purpose of this phenomenological study was to examine the early recovery experience of patients with a facial burn. In particular, this study focused on how the injury impacted on the participants’ relationship with their own body and the challenges of early psychosocial adjustment within the first 4 months of sustaining the injury.MethodsIn 2011, six adult participants encompassing two females and four males ranging from 29 to 55 years of age with superficial to deep dermal facial burns (with background burns of 0.8%–55% total body surface area) were recruited from a severe burn injury unit in Australia for participation in a Burns Modified Adult Attachment Interview. Narrative data were analyzed thematically and informed by Colaizzi’s method of data analysis.ResultsThree overarching themes emerged: relationship to self/other, coping, and meaning-making. Themes identified related to how the experience affected the participants’ sense of relationship with their own bodies and with others, as well as other challenges of early psychosocial adjustment. All participants indicated that they had experienced some early changes in their relationship with their body following their burn injury.ConclusionThese findings highlight the struggle burn survivors experienced with postburn adjustment, but expressed altruism and optimism around their recovery. Past trauma was observed to be a significant finding in this sample. Understanding the “lived experience” supports the way clinical and family systems can foster positive adjustment and coping. Consequently, multidisciplinary burn teams and health care professionals need to understand the principles of trauma-informed care and translate these into practice in the treatment of this group of patients.

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Section: Discussionmentioning

confidence: 93%

The patient–body relationship and the "lived experience" of a facial burn injury: a phenomenological inquiry of early psychosocial adjustment

McLean¹,

Rogers²,

Kornhaber³

et al. 2015

JMDH

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“…We categorized the 41 papers according to their primary focus. The category with the most papers was adaptation to life following burn injury (n = 13) [ 15–27 ], followed by research focused on the experience of specific treatments (n = 9) [ 5 , 28–35 ], relating to a specific group or demographic (n = 7) [ 36–42 ], social issues and relationships (n = 4) [ 43–46 ], experience of pain (n = 3) [ 47–49 ], return to work (n = 3) [ 50–52 ] and QoL (n = 2) [ 3 , 53 ]. Of the 41 papers included, 36 were judged to be well reported using the CASP qualitative checklist ( Table S2 ).…”

Section: Resultsmentioning

confidence: 99%

Ensuring that the outcome domains proposed for use in burns research are relevant to adult burn patients: a systematic review of qualitative research evidence

et al. 2020

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Background There have been several attempts to define core outcome domains for use in research focused on adult burns. Some have been based in expert opinion, whilst others have used primary qualitative research to understand patients’ perspectives on outcomes. To date there has not been a systematic review of qualitative research in burns to identify a comprehensive list of patient-centred outcome domains. We therefore conducted a systematic review of qualitative research studies in adult burns. Methods We searched multiple databases for English-language, peer-reviewed, qualitative research papers. We used search strategies devised using the SPIDER tool for qualitative synthesis. Our review utilized an iterative three-step approach: (1) outcome-focused coding; (2) development of descriptive accounts of outcome-relevant issues; and (3) revisiting studies and the broader theoretical literature in order to frame the review findings. Results Forty-one articles were included. We categorized papers according to their primary focus. The category with the most papers was adaptation to life following burn injury (n = 13). We defined 19 outcome domains across the 41 articles: (1) sense of self; (2) emotional and psychological morbidity; (3) sensory; (4) scarring and scar characteristics; (5) impact on relationships; (6) mobility and range of joint motion; (7) work; (8) activities of daily living and self-care; (9) treatment burden; (10) engagement in activities; (11) wound healing and infection; (12) other physical manifestations; (13) financial impact; (14) impact on spouses and family members; (15) analgesia and side effects; (16) cognitive skills; (17) length of hospital stay; (18) access to healthcare; and (19) speech and communication. We suggest that sense of self is a core concern for patients that, to date, has not been clearly conceptualized in the burns outcome domain literature. Conclusions This outcome domain framework identifies domains that are not covered in previous attempts to outline core outcome domains for adult burn research. It does so with reference to existing theoretical perspectives from the sociology and psychology of medicine. We propose that this framework can be used as a basis to ensure that outcome assessment is patient-centred. Sense of self requires further consideration as a core outcome domain.

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“…Twenty‐two quantitative and 10 qualitative studies were included. Four focused on pediatric burn survivors (Duke et al, 2018; Maskell, Newcombe, Martin, & Kimble, 2013; Sveen, Sjöberg, & Öster, 2014; Willebrand et al, 2011); 25 studies focused on adults (Abrams, Ogletree, Ratnapradipa, & Neumeister, 2016; Bayuo, Agbenorku, & Amankwa , 2016; Christiaens et al, 2015; Elsherbiny, Salem, El‐Sabbagh, Elhadidy, & Eldeen, 2011; Goyatá & Rossi, 2009; Hunter et al, 2013; Idrees, Faize, & Akhtar, 2017; Jang, Park, Chong, & Sok, 2017; Johnson, Taggart, & Gullick, 2016; Juozapavicien, Rimdlka, & Karbonskiene, 2012; Kornhaber, Wilson, Abu‐Qamar, & McLean, 2014; Liang, Wang, Yao, Pan, & Wang, 2012; Martin, Byrnes, McGarry, Rea, & Wood, 2017; Mashreky et al, 2008; Ohrtman et al, 2018; Park, Choi, Jang, & Oh, 2008; Pfitzer et al, 2016; Shahid, Ismail, & Khan, 2018; Sproul, Malloy, & Abriam‐Yago, 2009; Titscher, Lumenta, Kamolz, Mittlboeck, & Frey, 2010; Wasiak et al, 2014; Wiechman et al, 2018; Yuxiang et al, 2012; Zamanzadeh, Valizadeh, Lotfi, Salehi, & Khalili, 2016; Zhang et al, 2014); and three studies focused on both adults and children with burns (Ahuja, Mulay, & Ahuja, 2016; Simons, Price, Kimble, & Tyack, 2016; Vetrichevvel et al, 2018).…”

Section: Resultsmentioning

confidence: 99%

“…The studies covered a range of study periods: 1 week to discharge (Goyatá & Rossi, 2009); 1 to 3 weeks post‐discharge (Johnson et al, 2016); 3, 6, and 12 months post‐discharge (Wasiak et al, 2014), and 6 to 12 months post‐discharge (Abrams et al, 2016; Ahuja, Mulay, & Ahuja, 2016; Mashreky et al, 2008; Shahid et al, 2018; Zamanzadeh et al, 2016). Some studies extended beyond 1 year, such as one that covered a period from 1 month to 5 years post‐burn (Elsherbiny et al, 2011).…”

Section: Resultsmentioning

confidence: 99%

“On the Recovery Journey:” An Integrative Review of the Needs of Burn Patients From Immediate Pre‐Discharge to Post‐Discharge Period Using the Omaha System

Bayuo

Wong

Agyei

2020

J of Nursing Scholarship

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Background To establish a conceptual understanding of the needs of burn patients, the specific research question asked is: “What are the needs of burn patients from 1‐week pre‐discharge to the post‐discharge period?” Methods Whittemore and Knafl's integrative review approach was used to answer the review question. The databases searched were the Cumulative Index to Nursing and Allied Health Literature (CINAHL), PubMed, Embase, and Scopus. Thirty‐two primary studies were retained at the end of the screening process. Directed content analysis was undertaken, with the Omaha system as an organizing framework. Results Recovery after burns is not a linear process, but an intricate one filled with varied needs in the physiological (pain, skin, neuro‐musculo‐skeletal, and infection), psychosocial (social contact, role changes, spirituality, grief, mental health, and sexuality), health‐related behavior (nutrition, sleep and rest patterns, and physical activity), and environmental (income) domains of the Omaha system. The nature and intensity of these needs change over time, suggesting that recovery for the burn patient is an ongoing process. Conclusions Several needs exist from 1 week before discharge to the post‐discharge period. The mutual relationship and evolving nature of these needs create an avenue for a flexible, regular, holistic transitional program, similar to the support offered to persons living with chronic conditions. Clinical Relevance Hospital discharge does not imply an end to the recovery of burn patients, and burn survivors still require holistic care even after discharge. The review shows the applicability of the Omaha system in exploring and classifying the needs of burn survivors and situates nursing at the core of such a program. It is possible that a nurse‐led program of care needs to be considered.

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Adult survivors’ lived experience of burns and post-burn health: A qualitative analysis

Cited by 29 publications

References 33 publications

The patient–body relationship and the "lived experience" of a facial burn injury: a phenomenological inquiry of early psychosocial adjustment

The patient–body relationship and the "lived experience" of a facial burn injury: a phenomenological inquiry of early psychosocial adjustment

Ensuring that the outcome domains proposed for use in burns research are relevant to adult burn patients: a systematic review of qualitative research evidence

“On the Recovery Journey:” An Integrative Review of the Needs of Burn Patients From Immediate Pre‐Discharge to Post‐Discharge Period Using the Omaha System

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Adult survivors’ lived experience of burns and post-burn health: A qualitative analysis

Cited by 29 publications

References 33 publications

The patient&ndash;body relationship and the &quot;lived experience&quot; of a facial burn injury: a phenomenological inquiry of early psychosocial adjustment

The patient&ndash;body relationship and the &quot;lived experience&quot; of a facial burn injury: a phenomenological inquiry of early psychosocial adjustment

Ensuring that the outcome domains proposed for use in burns research are relevant to adult burn patients: a systematic review of qualitative research evidence

“On the Recovery Journey:” An Integrative Review of the Needs of Burn Patients From Immediate Pre‐Discharge to Post‐Discharge Period Using the Omaha System

Contact Info

Product

Resources

About

The patient–body relationship and the "lived experience" of a facial burn injury: a phenomenological inquiry of early psychosocial adjustment

The patient–body relationship and the "lived experience" of a facial burn injury: a phenomenological inquiry of early psychosocial adjustment