Adults with Cerebral Palsy

McMorris, Carly A.; Lake, Johanna K.; Lunsky, Yona; Dobranowski, Kristin; Bayley, Mark; McGarry, Caitlin; Balogh, Robert

doi:10.1016/bs.irrdd.2015.03.003

Cited by 8 publications

(2 citation statements)

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“…While depressive symptoms were prevalent in almost 25% of the people with SB, these were studied in <50% of the studies included. Other original studies also highlighted the risk of depression and anxiety in people with CP and SB and the need for more attention for mental health in these groups (94,120,121). Moreover, literature suggests that comprised mental health is associated with health issues such as pain and fatigue (4, 20).…”

Section: Discussion Main Findingsmentioning

confidence: 99%

“…More attention is needed for this matter of how current healthcare practice can be tailored to these increased needs of people with CP or SB. The need for prevention and clinical follow-up of health issues (including mental health) has been emphasized before (120,126). Moreover, comorbidities not only reflect medical challenges, preventive measures may positively impact social participation of adults with lifelong disabilities as well (125, 127).…”

Section: Discussion Main Findingsmentioning

confidence: 99%

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Impairments and comorbidities in adults with cerebral palsy and spina bifida: a meta-analysis

Sattoe

Hilberink

2023

Front. Neurol.

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IntroductionAging with a childhood-onset disability, such as cerebral palsy (CP), spina bifida (SB), and muscular diseases (MD), comes along with significant impairments and comorbidities. Despite the increasing evidence an overall picture is lacking. This study aimed to review the literature about adults with CP/SB/MD and impairments and comorbidities to perform a meta-analysis.Materials and methodsEmbase, PubMed, Cinahl, and Google Scholar were searched (2000–2020). Search terms included adults with one of the aforementioned disabilities combined with impairments and comorbidities. If specific impairments or comorbidities were reported by at least four studies, these were included in the study. Pooled prevalence (95% Confidence Interval) of impairments/comorbidities were calculated.ResultsThe search yielded 7,054 studies of which 95 were included in the meta-analysis (64 CP, 31 SB, 0 MD). In total estimates were calculated for 26 (CP) and 11 (SB) outcomes. In adults with CP, pain [56.4% (95%CI 48.8–63.8)], deformities [44.2% (95%CI 12.9–78.4)], intellectual disability [37.2% (95%CI 26.7–48.3)], and fatigue [36.9% (95%CI 24.6–50.1)] were most prevalent; renal disease [3.0% (95%CI 2.1–4.2)] and stroke/rheumatic diseases {4.8% (95%CI 3.4–6.5; 4.8% (95%CI 1.5–9.9)] respectively} were least prevalent. For adults with SB, bladder incontinence [60.0% (95%CI 50.5–69.2)], bowel incontinence [49.2% (95%CI 34.5–64.0)], pain [44.1% (95%CI 27.4–61.5)], and sleeping problems [30.3% (95%CI 4.7–65.8)] were most prevalent; diabetes [4.8% (95%CI 2.8–7.3)] and renal disease [8.7% (95%CI 2.0–19.9)] were least prevalent. The included studies showed large heterogeneity.ConclusionsMore research is needed to study health issues in adults with MD. Adults with CP or SB deal with a variety of health issues. More attention for the mental health of these adults is needed. There also is a need for accessible and adequate screening, preventive measures and clinical follow-up.

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Section: Discussion Main Findingsmentioning

confidence: 99%

Section: Discussion Main Findingsmentioning

confidence: 99%

Impairments and comorbidities in adults with cerebral palsy and spina bifida: a meta-analysis

Sattoe

Hilberink

2023

Front. Neurol.

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Mirror therapy for phantom limb pain in moderate intellectual disability. A case report

Folch

Gallo

Miró

et al. 2021

European Journal of Pain

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Background Phantom limb pain (PLP) is a common problem after limb amputation. There is mounting evidence supporting the use of mirror therapy (MT) in the treatment of individuals with PLP. However, there is no research studying the effects of MT on PLP in individuals with intellectual developmental disorders (IDD). The aim of this study was to increase our understanding of MT when used with adults with IDD and PLP through a case study approach. Methods Here, we describe the use of MT with a 53‐year‐old female with moderate IDD and PLP, related to her left leg being amputated after ulcer complications. The study followed an A‐B‐A‐B design (baseline—treatment—withdrawal of treatment—re‐introduction of treatment), lasting 2 years, which included a long‐term follow‐up. Results The data showed that the PLP sensation decreased after the MT treatment, with a raw change of 3.92 points and a 48% decrease in mean pain intensity ratings from pre‐ to post‐treatment. Conclusions This is a unique case‐report on the use of MT with an individual with IDD suffering from PLP. The findings show that MT helped to significantly reduce the intensity of the PLP in this patient. Significance This is a case‐report that illustrates how mirror therapy can be applied to people with intellectual developmental disorders and phantom limb pain. The results showed that phantom limb pain decreased after the mirror therapy, with a raw change of 3,92 points and a percent change of 48%.

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