Advance care planning: A qualitative investigation on patients’ perspectives with advanced heart failure

Abstract

The ACP discussions should to be aligned to patients' preferences in terms of communication and content. It is important to accept a rejection of dealing with ACP or conducting an advance directive. The patients' view needs to be integrated into future research.

Healthcare experiences of patients with chronic heart failure in Germany: a scoping review

“…23 26 28 30 32 38 39 Experiences of patient-provider communication, 24 25 27 28 31 32 36 relationships 23 27 28 30 32 33 36 as well as patient empowerment, 24 25 27 30 36 38 39 were addressed in seven of the 18 studies, thus focusing on relational aspects of experiences, while coordination and continuity of care were reported in one-third of studies, 26 28 29 31 32 36 reflecting a focus on the organisational dimensions of HCX. Little research explored experiences with emotional or physical support, 30 32 38 the integration of medical and non-medical care, 31 essential characteristics of the provider, 27 28 patient perceptions of being a unique person 27 and the involvement of family and friends. 38 No study investigated experiences of patients with teamwork and teambuilding of healthcare providers.…”

“…28 35–37 The included references were published between 2008 and May 2018, with approximately half having been published within the past 3 years, possibly indicating a slight upward trend in publication activity. With regard to study design, most publications were designed as observational studies (61%) 23–26 30 31 34 35 37 38 40 followed by qualitative (22%) 27 28 32 33 and interventional studies (18%). 29 36 39 We found no systematic reviews or non-clinical study designs, such as preference-based experiments.…”

“…Surprisingly, HCX was mostly evaluated quantitatively (10/18 studies) using questionnaires, 23–25 29 30 35 36 38 40 of which most were self-developed, as well as one interview. 34 Only six studies used qualitative evaluation (interviews, 27 28 31 32 group discussion 33 and questionnaire 39 ). Two of 18 studies used mixed methods analysis.…”

“…The majority of studies aimed to evaluate the relational aspects of how patients experience the interaction with providers. [23][24][25][26][27][28][29][30][31][32][33] Some assessed, for instance, patients' utilisation of healthcare services, 28 31 34-36 or the knowledge they gained by using certain services, 23 28 37 38 others collected less impersonal data. Figure 2 depicts the number of times specific topics associated with HCX were described in the included studies.…”

Advance Directives of German People with Parkinson’s Disease Are Unspecific in regard to Typical Complications

“…If new PD-related aspects emerge, the patient should be counseled by a neurological specialist to modify the AD specifically and communicate these wishes to the healthcare proxy. Specific scenarios of disease complications might help PwP to address their wishes concerning advance care planning [31].…”