Advance Care Planning in Indonesia: Current state and future prospects

Martina, Diah; Witjaksono, Maria A; Putranto, Rudi

doi:10.1016/j.zefq.2023.05.016

Cited by 7 publications

(2 citation statements)

References 25 publications

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Section: Methodsmentioning

confidence: 99%

“…While services are as yet limited to tertiary health facilities and limited non-governmental initiatives in a few major cities, 20,38,39 a growing number of policy, community and scholarly initiatives is currently being developed to implement advance care planning. 40 In all the three countries, important reasons for the limited availability of palliative care have been noted to be the insufficient medical specialization options, insufficient policy attention, limited availability of opioid analgesics and cultures of non-disclosure between physician and patient -a practice conflicting with prevailing global palliative care models as developed through the modern hospice movement. 20,32,35,41 The selected countries are further comparable because they are democratic countries, with rising middle classes, expanding availability of biomedical treatment and aging populations.…”

Section: Country Case Studiesmentioning

confidence: 99%

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Palliative care practices and policies in diverse socio-cultural contexts: aims and framework of the ERC globalizing palliative care comparative ethnographic study

Samuels,

Lemos Dekker

2023

Palliat�Care

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Background: Palliative care as a specialist professional practice of care for people with advanced illness is becoming increasingly influential worldwide. This process is affected by global health inequalities as well as cultural dimensions of approaching death and practicing care in life-limiting illness. Objectives: The European Research Council-funded Globalizing Palliative Care (ENDofLIFE) project aims to understand how palliative care policies, discourses and practices are translated, adapted and reconstituted in diverse socio-cultural settings and how cultural dimensions of approaching death and local practices of care shape palliative care implementation. Methods and Analysis: Using a multi-scalar and multi-sited ethnographic approach, the project uses person-centered ethnography, participant observation, semi-structured interviewing, focus group discussions and policy and discourse analysis at transnational, national and local levels. Ethnographic case-studies are conducted in Brazil, India and Indonesia. Discussion: The globalizing palliative care project develops a novel ethnographic methodology of studying end-of-life care trajectories through long-term participant observation with individual patients and families as they manage and practice formal and informal health care in advanced illness. By analyzing how patients and families experience and navigate care over time, complemented by stakeholder interviews, the study advances critical theoretical insight into the relation between (large-scale and dynamically traveling) palliative care models, policies and discourses on the one hand and the experience and practice of palliative care in the lives of patients and informal care givers in local health care practices on the other hand. Insights are expected to benefit culturally situated palliative care policies and practices.

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Section: Methodsmentioning

confidence: 99%