Advanced Breast Cancer Patients' Perceptions of Decision Making for Palliative Chemotherapy

Abstract

Women offered second-line chemotherapy were more likely to undergo chemotherapy because of the hope it offers and were more likely to take an active role in that decision compared with women who were offered first-line chemotherapy. Compassionate and honest communication about prognosis and likelihood of benefit from treatment may help to close the gap between hope and expectation and enable patients to make fully informed decisions about palliative chemotherapy.

Retention and Use of Breast Cancer Recurrence Risk Information from Genomic Tests: The Role of Health Literacy

“…Both questions used a response scale adapted from Degner et al's Control Preferences Scale (40) and had the following response options: ''I prefer to leave the decision to my doctor''; ''I prefer that my doctor makes the decision, but seriously consider my opinion''; ''I prefer that my doctor and I share responsibility for deciding''; ''I prefer to make my own decision after seriously considering my doctor's opinion''; ''I prefer to make my own decision regardless of my doctor's opinion.'' As is common in the literature, the first two response options were collapsed in data analyses and designated a ''passive'' decision style, and the last two response options were collapsed and designated an ''active'' decision style (41,42).…”

Understanding the complexities of shared decision-making in cancer: a qualitative study of the perspectives of patients undergoing colorectal surgery

“…Previous studies have focused almost exclusively on the physician-patient interaction, with little, if any, emphasis on the impact of familial or cultural factors in the SDM process. [1][2][3][4][5][6][7][8][9][10][11][17][18][19][20][21][22][23][24][25][26][27][28] Patients in our cohort valued family as a crucial adjunct to the health care team, recognizing 3 specific roles for family members (collaborators, interpreters and supporters) that enable and influence decisionmaking while reducing the burden on patients and enhancing their overall experience. Consequently, within a model of patient-centred care, the involvement of family in patient decision-making is an important consideration for surgeons and other health care providers involved in their cancer care.…”

“…In the field of cancer care specifically, the evidence suggests that critically ill patients generally prefer to be involved in decision-making with the health care team and that providing information about care options and maintaining realistic expectations may increase patient engagement. [2][3][4][5][6][7][8][9][10] While the literature on SDM focuses on the patient's direct encounter with the physician and health care team, there is little to no emphasis on the interplay between familial and cultural influences and decision-making within a model of patient-centred care. Research on this topic is especially scarce in the field of surgical oncology, with a lack of studies using qualitative interviews to explore these issues from the patient's perspective.…”

“…2 In fact, various studies have investigated the shared decision-making (SDM) process between the phys ician and patient across different clinical settings. [3][4][5][6][7][8][9][10] For instance, Bélanger and colleagues 11 elucidated the concept in palliative care using narrative synthesis, exploring patient preferences for SDM, the level of patient participation in decision-making and the barriers and facilitators to SDM. In the field of cancer care specifically, the evidence suggests that critically ill patients generally prefer to be involved in decision-making with the health care team and that providing information about care options and maintaining realistic expectations may increase patient engagement.…”

La théorisation enracinée dans l’étude de la transition des perceptions de l’état de santé de femmes atteintes d’un cancer du sein

“…On remarque que les études sur les femmes atteintes d'un cancer du sein sont réalisées à quatre moments principaux pendant la trajectoire de la maladie chronique : 1) la période d'attente avant de recevoir le diagnostic officiel (Doré, Gallagher, Saintonge, & Hébert, 2013;Drageset, Lindstrom, & Underlid, 2010;Montgomery, 2010), 2) la période de choc à la suite du diagnostic (Al-Azri et al, 2009;Beckjord, Glinder, Langrock, & Compas, 2009;Bennett, Compas, Beckjord, & Glinder, 2005) et pendant les interventions (Coreil, Wilke, & Pintado, 2004;Loiselle, Edgar, Batist, Lu, & Lauzier, 2010;Rosenzweig, Donovan, & Slavish, 2010), 3) la chronicité et l'adaptation (Allen, Savadatti, & Levy, 2009;Danhauer, Crawford, Farmer, & Avis, 2009) et 4) la récidive et les soins palliatifs (Dalgaard, Thorsell, & Delmar, 2010;Grunfeld et al, 2006;Sand, Olsson, & Strang, 2009). Par contre, peu d'attention est portée sur les perceptions de l'état de santé (Bouchard & Desmeules, 2011;Hébert & Côté, 2011;Massé, 2003).…”