Advances in Cystic Fibrosis Research in Qatar: A Commentary

Hammoudeh, Samer; Janahi, Ibrahim A.

doi:10.3390/jpm13030448

Cited by 2 publications

(1 citation statement)

References 29 publications

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“…The same trend is observed in Asia; CF is more prevalent in West Asia compared with East Asia. [2][3][4][5] Obtaining accurate statistics on the prevalence of a certain disease in Iran is challenging due to the lack of a comprehensive registration system, the limited availability of diagnostic tests, and the economic and social conditions in certain areas. 6 Recent studies have shown that this disease is more common among children under the age of 18 in Iran than previously thought.…”

Section: Introductionmentioning

confidence: 99%

Development and validation of a supportive programme for family caregivers of children suffering from cystic fibrosis: protocol for a sequential exploratory mixed-methods study

Shadi,

Jabraeili,

Hassankhani

et al. 2024

BMJ Open

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IntroductionFamilies with children who have cystic fibrosis (CF) face a multitude of challenges. They require complex and time-consuming daily care, various forms of knowledge and intricate care responsibilities. One of the most critical challenges that Iranian families of children with CF face is the lack of adequate support from health teams in the early stages of diagnosis, frequent hospitalisation and the postdischarge process. Unfortunately, limited studies have been conducted in this field, and the Iranian society lacks a comprehensive support programme for these families after leaving treatment centres or home care teams. Therefore, it is necessary to identify and redefine the needs of these families for better care and support in Iran.Methods and analysisA mixed-method research design with an exploratory sequential approach will be used in this study. The study consists of three stages: stage (1) the qualitative phase (conventional content analysis and scoping review); stage (2) the programme design phase (development of a support programme) and stage (3) the quantitative phase (validation of the programme through the Delphi method). In the first stage, data will be collected through interviews. Key concepts, evidence and gaps in research will also be identified, collected and analysed through a scoping review. In the second stage, a support programme will be designed based on the results of the content analysis of interviews and the findings from the scoping review. In the final phase, the study will aim to validate the designed programme through a Delphi study.Ethics and disseminationThis study formed part of a Ph.D. degree and was approved by the ethics committee of Tabriz University of Medical Sciences (IR.TBZMED.REC.1402.395). Informed consent will be obtained from all study participants. Findings will be published in a peer-reviewed journal.

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