Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit

Milligan, James; Lee, Joseph; Smith, Matt; Donaldson, Lindsay; Athanasopoulos, Peter; Bassett-Spiers, Kent; Howcroft, Jeremy; Jeji, Tara; Joshi, Phalgun B.; Mehan, Upender; Noonan, Vanessa K.

doi:10.1080/10790268.2018.1552643

Cited by 18 publications

(26 citation statements)

References 27 publications

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“…Many primary care and emergency clinicians are unfamiliar with both the unique physiology associated with SCI/D 31 and the specialized respiratory interventions and techniques to treat individuals with SCI/D. The choice of treatments will depend on the person's neurological level of injury, functional status, and clinical presentation.…”

Section: Treatmentmentioning

confidence: 99%

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Initial assessment and management of respiratory infections in persons with spinal cord injuries and disorders in the COVID‐19 era

et al. 2020

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Section: Treatmentmentioning

confidence: 99%

“…Some may already be ventilator‐ or non‐invasive ventilation‐dependent. Additional staff may be required to address unique care needs of patients with SCI/D, such as turning and repositioning, management of neurogenic bowel and bladder, feeding, drinking, and respiratory care during their time in an ED 31 …”

Section: Logistical Concernsmentioning

confidence: 99%

Initial assessment and management of respiratory infections in persons with spinal cord injuries and disorders in the COVID‐19 era

et al. 2020

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“…Most common issues for their visit to PCPs include pressure sore management, bowel and urinary tract dysfunctions, shoulder pain, spasticity, and autonomic dysreflexia (AD). 6 The care is often relationship-based and involves PCPs and specialists. The special needs often lead to inadequate treatment of their health issues and secondary complications, fewer preventive screenings, and less general health promotion.…”

Section: Case Reportmentioning

confidence: 99%

“…In 2016, a Primary and Community Care Spinal Cord Injury Summit was conducted in Ontario, Canada, with the goal of understanding key needs and future directions. 6 The summit involved key stakeholders such as PCPs, individuals with SCI, researchers, allied health, policy makers, and funders. The summit yielded five areas of recommendation for improving primary care to individuals with SCI:…”

Section: Attitudes Knowledge and Expertisementioning

confidence: 99%

A Primary Care Provider’s Guide to Accessibility After Spinal Cord Injury

Lee

Varghese

Brooks

et al. 2020

Topics in Spinal Cord Injury Rehabilitation

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Individuals with spinal cord injury (SCI) continue to have shorter life expectancies, limited ability to receive basic health care, and unmet care needs when compared to the general population. Primary preventive health care services remain underutilized, contributing to an increased risk of secondary complications. Three broad themes have been identified that limit primary care providers (PCPs) in providing good quality care: physical barriers; attitudes, knowledge, and expertise; and systemic barriers. Making significant physical alterations in every primary care clinic is not realistic, but solutions such as seeking out community partnerships that offer accessibility or transportation and scheduling appointments around an individual’s needs can mitigate some access issues. Resources that improve provider and staff disability literacy and communication skills should be emphasized. PCPs should also seek out easily accessible practice tools (SCI-specific toolkit, manuals, modules, quick reference guides, and other educational materials) to address any knowledge gaps. From a systemic perspective, it is important to recognize community SCI resources and develop collaboration between primary, secondary, and tertiary care services that can benefit SCI patients. Providers can address some of these barriers that lead to inequitable health care practices and in turn provide good quality, patient-centered care for such vulnerable groups. This article serves to assist PCPs in identifying the challenges of providing equitable care to SCI individuals.

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“…68 Therefore, the integration of primary care in SCI models of care should be considered and a recent Canadian summit outlined plans to advance primary and community care following SCI. 69…”

mentioning

confidence: 99%

Models of Care Delivery from Rehabilitation to Community for Spinal Cord Injury: A Scoping Review

Atchison

Noonan

et al. 2021

Journal of Neurotrauma

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Spinal cord injury (SCI) is a chronic condition that results in high healthcare utilization and lifetime cost across the care continuum. In the absence of a standardized model of care delivery for SCI in western countries such as Canada, a scoping review of the literature was performed to identify and summarize existing international SCI models of care delivery. Four databases were searched using key words and subject headings for concepts such as: ''spinal cord injury,'' ''delivery of healthcare,'' ''model of care,'' ''patient care planning,'' and ''care pathway.'' Title, abstract, and full text review were competed by two independent reviewers. A combined total of 46 peer-reviewed and gray literature articles were included. No single SCI model of care has been adopted across different countries internationally. However, optimal attributes of models of care were identified, including the importance of having multidisciplinary SCI specialty care providers along the continuum, provision of rural SCI services and outreach, integration of primary care, peer mentoring, and using a hub and spokes model of care. These findings inform the future development of an SCI model of care, which ideally would serve all geographical locations and span the continuum of care, improving the health status and quality of life of persons with SCI.

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Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit

Abstract: Context: Persons with spinal cord injury (SCI) experience significant challenges when they access primary care and community services. Design: A provincial summit was held to direct research, education, and innovation for primary and community care for SCI.

Cited by 18 publications

References 27 publications

Initial assessment and management of respiratory infections in persons with spinal cord injuries and disorders in the COVID‐19 era

Initial assessment and management of respiratory infections in persons with spinal cord injuries and disorders in the COVID‐19 era

A Primary Care Provider’s Guide to Accessibility After Spinal Cord Injury

Models of Care Delivery from Rehabilitation to Community for Spinal Cord Injury: A Scoping Review

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