Aesthetic outcome of cleft lip and palate treatment. Perceptions of patients, families, and health professionals compared to the general public

Gkantidis, Nikolaos; Papamanou, Despina A.; Christou, Panagiotis; Topouzelis, Nikolaos

doi:10.1016/j.jcms.2012.11.034

Cited by 88 publications

(97 citation statements)

References 48 publications

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“…Differences could be related to social and cultural differences, or differing expectations regarding treatment. Further, an association has been reported between parental satisfaction with treatment outcomes and social interactions [11], and should be investigated in future studies.…”

Section: Parents' Satisfaction With Cleft-related Features and Appearmentioning

confidence: 92%

“…These perceptions cannot be considered purely as reflection of satisfaction with the outcomes of treatment as they are likely to have been affected by additional factors, including for example, the unconditional acceptance parents may feel for their child. One study demonstrated that inter-rater agreement between patients and parents tends to be moderate [11], and that professionals were more satisfied with treatment outcomes than parents [11]. Previous research has reported only weak associations between subjective and more "objective" measures of cleft-related features [14,20,21,22].…”

Section: Parents' Satisfaction With Cleft-related Features and Appearmentioning

confidence: 99%

“…A range of studies have explored this issue as assessed by professionals, lay-persons, patients and parents [5,6,7,8,9,10,11]. Studies comparing parent, patients, and professionals' satisfaction with cleft-related features report contradictory findings (for a review, see [10,12]), which may partly be explained by different methodological approaches, in addition to a significant diversity in the choice of concepts and outcome measures [13].…”

Section: Introductionmentioning

confidence: 99%

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Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

Feragen

Semb

Heliövaara

et al. 2017

Journal of Plastic Surgery and Hand Surgery

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Results:The results indicated that the majority of parents were satisfied with cleft-related features of their child's appearance. Further, most children coped well with treatment according to their parents. Nevertheless, 17.5% of the children showed minor or short-term reactions after treatment experiences, and 2% had major or lasting difficulties. There were no significant relationships between parent perceptions of treatment-related problems and the occurrence of post-surgical medical complications. Conclusions:Most parents reported satisfaction with their child's appearance. However, treatment-related problems were described in some children, urging cleft centres to be aware of potential negative emotional and behavioural reactions to treatment in some young children, with a view to preventing the development of more severe treatment-related anxiety.

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Section: Parents' Satisfaction With Cleft-related Features and Appearmentioning

confidence: 92%

Section: Parents' Satisfaction With Cleft-related Features and Appearmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

Feragen

Semb

Heliövaara

et al. 2017

Journal of Plastic Surgery and Hand Surgery

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“…Temos que os métodos qualitativos são os mais difundidos, sendo que escalas de classificação ordinal para os resultados estéticos em pacientes com fissura têm variado amplamente, com análises de quatro graduações (Thomson;Reinders, 1995), cinco graduações (Asher-McDade et al, 1991;Al-Omari et al, 2003;Goodacre et al;, Nollet et al, 2007, seis graduações (Eliason et al, 1991;Ritter et al, 2002), sete graduações (Tobiasen et al, 1991), nove pontos Hiebert, 1993) e dez graduações (Williams, 1968;Thomson;Reinders, 1995 Diversos estudos utilizaram fotografias de face inteira para avaliação do aspecto estético de pacientes com fissura labiopalatina (Marcusson et al, 2002;Foo et al, 2013;Meyer-Marcotty et al, 2011b;Gkantidis et al, 2013;Papamanou et al, 2012). E ainda que em nosso trabalho tivesse havido elevada concordância para as duas formas de apresentação fotográfica, os avaliadores relataram que as fotografias de face inteira dificultaram a análise isolada dos aspectos estéticos específicos da região nasolabial, razão pela qual se optou em utilizar as fotografias de imagem recortada na sequência da pesquisa.…”

Section: Associação Com Hospital Lado Da Fissura E Gênerounclassified

“…Revendo a literatura especializada encontramos os trabalhos de Mani et al (2010), Papamanou et al (2012), Gkantidis et al (2013) e Eichenberger et al (2013 que concordam com os nossos achados. Entretanto, existem pesquisas em que é observado o inverso, quando os leigos registraram maior atratividade em suas avaliações do que os profissionais (Eliason et al, 1991;Foo et al, 2013).…”

Section: Associação Com Hospital Lado Da Fissura E Gênerounclassified

Avaliação estética da região nasolabial em crianças com fissura labiopalatina unilateral por meio de fotografias padronizadas

Paiva¹

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AGRADECIMENTOSÀ minha orientadora Prof. Dra. Beatriz Silva Câmara Mattos, pela confiança, pelas valiosas orientações e por me permitir ingressar nesta pós-graduação.À minha mentora e grande entusiasta deste trabalho Prof. Dra. Marcia André, por todo apoio, incentivo e confiança que depositou em mim desde quando ingressei nesta Universidade. Obrigada pelas orientações, pela paciência e sobretudo por sua amizade verdadeira.Ao Prof. Dr. Reinaldo Brito e Dias e demais professores da Disciplina de Prótese Bucomaxilofacial pela enriquecedora convivência.Ao Cirurgião Plástico Dr. Diógenes Laércio Rocha por sua valiosa contribuição na elaboração deste estudo.Ao amigo, Dr. Jairo Lessa Crepaldi pelo apoio e colaboração direta na elaboração deste trabalho.Às amigas, Dra. Margareth T. Lopez e a Dra. Agda M. Moura pelo carinho e pela ajuda desde quando ingressei nesta Universidade.Aos Drs. Paulo E. Damiani, Denise Nakamura, Marcus Kobein, Simone Kawabata, Luciane Amorim, Ivan Gialain, Vera Pozzani pela disponibilidade em participar na avaliação do grupo amostral desta pesquisa.Ao Prof. Dr. Antônio Carlos L. Saboya pelas orientações no uso do Software aplicado neste estudo.Aos funcionários do Departamento de CPTMF, particularmente à Belira de Carvalho e Silva, pelo valioso apoio ao longo de todo o curso de pós-graduação.Aos pacientes e seus familiares, sem os quais esse estudo não seria possível."Conheça todas as teorias, domine todas as técnicas, mas ao tocar uma alma humana seja apenas outra alma humana". Cronbach's alpha was applied. By using the Wilcoxon Signed Rank Test, both the experienced professionals and without experience did not observe any statistically significant difference in the aesthetic attractiveness of the lip and nose; however a statistically significant difference was observed in the nasolabial region (p = 0.002) when the professional group revealed a higher degree of satisfaction as compared to the group of professionals without experience. The Mann-Whitney's Test revealed a statistically significant association between the aesthetics of the lip, nose, and nasolabial region only with regard to one variable i.e., the source hospital (p = 0.002, 0.034, and 0.026, respectively). The results of this study suggest that there was no difference in evaluation of the aesthetic results when full-face photographs or cropped images of the nasolabial region were used. Compared to the professionals without experience assessors, the experienced professionals evaluators showed higher satisfaction with the aesthetic appearance of the nasolabial region; however, no difference in results was observed in the analysis of the lip or nose alone. No correlation was observed between the aesthetic outcomes and the laterality of the cleft and sex of the patient. However, the source hospital was associated with the aesthetic outcome, thereby producing lower levels of outcome satisfaction. Carl Gustav Jung RESUMO

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A 37-year follow-up after Skoog lip repair of unilateral cleft lip and palate: what is the long-term verdict on lip appearance by different panels?

Peroz,

Falk-Delgado,

Arwidson

et al. 2024

Eur J Plast Surg

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Background The study examined long-term lip appearance after Skoog’s lip repair in unilateral cleft, lip, and palate (UCLP) patients. To include different views, three different panels respectively, rated level of lip appearance and desire for improvement. The secondary aim was to investigate the correlation between the self-reported satisfaction of UCLP patients and controls with the panel assessments. Methods Cropped frontal photographs of the lips of 74 UCLP-treated individuals and 61 non-cleft individuals were assessed twice by three panels of five cleft surgeons (Professional panel), nine laymen (Layman panel), and five individuals with CLP (Cleft panel) using a web-based platform, at a mean follow-up of 37 years post-lip surgery. Results All three panels rated the lip appearance of UCLP patients worse than that of the controls (p < 0.001). The Professional panel reported higher satisfaction levels and less desire to change lip appearance than the Layman and Cleft panels. Intra-rater agreements were, in general, moderate in the Professional panel ICC (0.57–0.82) and Laymen panel ICC (0.63–0.73) and poor in the Cleft panel ICC (0.21–0.36). The inter-rater agreement was, in general, poor in all panels. No significant correlation was found between the patient’s Self-assessments and any of the panel assessments. Conclusions All panels’ rated lip appearance of adults born with UCLP treated with Skoog’s technique as worse than that of non-cleft controls. The study highlights a significant discrepancy between the Professional panel’s more favorable assessment and the more critical views of the laymen and cleft panels, contradicting the initial hypothesis of uniform perception across panels. The lack of correlation between patient self-assessment and panel assessments underscores the subjective nature of lip satisfaction, emphasizing the need for personalized patient care strategies in CLP treatment outcomes. Level of evidence Not gradable.

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Aesthetic outcome of cleft lip and palate treatment. Perceptions of patients, families, and health professionals compared to the general public

Cited by 88 publications

References 48 publications

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

Scandcleft randomised trials of primary surgery for unilateral cleft lip and palate: 10. Parental perceptions of appearance and treatment outcomes in their 5-year-old child

Avaliação estética da região nasolabial em crianças com fissura labiopalatina unilateral por meio de fotografias padronizadas

A 37-year follow-up after Skoog lip repair of unilateral cleft lip and palate: what is the long-term verdict on lip appearance by different panels?

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