Affaire Wakefield : 12ans d’errance car aucun lien entre autisme et vaccination ROR n’a été montré

Maisonneuve, Hervé; Floret, D.

doi:10.1016/j.lpm.2012.03.022

Cited by 19 publications

(7 citation statements)

References 16 publications

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“…If data considered sensitive would be published in scientific journals, its presentation should emphasize the not-ready-to-market status of the drug, and potential consequences of using it before there are established treatment guidelines. Moreover we should always take into account the risks of improper dissemination of information to the media (see the Wakefield case [ 57 ] and its severe consequences regarding vaccination practices [ 58 , 59 ]. Another risk with data obtained from translational research is its potential use for bioterrorism/military applications.…”

Section: Some Proposals For General Ethical Principles Guiding Translmentioning

confidence: 99%

Translational research—the need of a new bioethics approach

et al. 2016

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Translational research tries to apply findings from basic science to enhance human health and well-being. Many phases of the translational research may include non-medical tasks (information technology, engineering, nanotechnology, biochemistry, animal research, economy, sociology, psychology, politics, and so on). Using common bioethics principles to these areas might sometimes be not feasible, or even impossible. However, the whole process must respect some fundamental, moral principles. The purpose of this paper is to argument the need for a different approach to the morality in translational bioethics, and to suggest some directions that might be followed when constructing such a bioethics. We will show that a new approach is needed and present a few ethical issues that are specific to the translational research.

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Section: Some Proposals For General Ethical Principles Guiding Translmentioning

confidence: 99%

Translational research—the need of a new bioethics approach

et al. 2016

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“…To our knowledge, this is the first study addressing vaccination literacy and empowerment together in the context of parents’ decision to have their child immunized or not. The MMR vaccination features a number of unique characteristics compared to other childhood vaccinations – such as being at the center of the autism controversy [ 61 ]. Moreover, administering this vaccine can be seen by parents as the closest thing to a natural infection, since it is made of live attenuated viruses of its three target diseases [ 62 ].…”

Section: Introductionmentioning

confidence: 99%

Addressing issues of vaccination literacy and psychological empowerment in the measles-mumps-rubella (MMR) vaccination decision-making: a qualitative study

2015

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BackgroundWhether or not to vaccinate one’s child is one of the first health-related decisions parents have to make after their child’s birth. For the past 20 years, the share of parents choosing not to immunize their children has increased in many countries, for various reasons. Among these, rumors affirming that vaccinations contain dangerous chemicals or might trigger severe chronic diseases have negatively affected parental attitudes towards pediatric immunizations, particularly the vaccination against measles, mumps and rubella (MMR), raising a number of public health concerns. The primary aim of this qualitative study is to understand what drives parents’ decision, giving special attention to vaccination literacy and psychological empowerment in such a context.MethodsTwenty individual semi-structured interviews were conducted in the Canton of Ticino (Switzerland) between January and June 2014. Participants were either mothers or fathers of children less than 1 year old living in Switzerland. An inductive thematic analysis was performed to identify the main themes with regard to vaccination literacy and psychological empowerment in the MMR vaccination decision-making.ResultsParents’ reports yielded four main themes: (a) the paradox of the free choice, referring to the misinterpretation of current vaccination policies; (b) giving up the power, pointing at the outcomes of a low perceived competence; (c) a far-reaching decision, reflecting the importance attributed to the MMR choice and the different levels of impact the decision can have; (d) the demand for shared-decision making, referring to the parental needs in relation to the child’s healthcare provider.ConclusionUnderstanding what drives parents’ management of their children’s immunization schedule in terms of vaccination literacy and psychological empowerment can help health professionals to communicate more effectively with parents in order to facilitate an informed decision, and stakeholders to design tailored health education programs and materials. This can ultimately help increase the coverage of the MMR vaccination.Electronic supplementary materialThe online version of this article (doi:10.1186/s12889-015-2200-9) contains supplementary material, which is available to authorized users.

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“…37 The decision-making process focus of the present study is specific to the context of the MMR vaccination decision due to a number of features that make this vaccination unique compared with other childhood vaccinations. Not only is MMR at the centre of the autism controversy 38 but also, since it is made of live attenuated viruses, administering this vaccine might be seen by parents as the closest thing to causing a natural infection. 39 Furthermore, MMR coverage is decreasing in several developed countries and postponing this vaccination may have serious consequences for future outbreaks.…”

Section: Introductionmentioning

confidence: 99%

What are parents' perspectives on psychological empowerment in the MMR vaccination decision? A focus group study

et al. 2016

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ObjectivesMost developed countries do not have compulsory immunisation requirements, but instead issue recommendations. Although parents are expected to make an informed, autonomous (ie, empowered) decision regarding their children's vaccinations, there is no evidence about how parents' interpret this demand nor on the latitude of their decision-making. The goal of this study is to gain insights from parents residing in a low measles-mumps-rubella (MMR) uptake area on what constitutes feelings of empowerment in the decision they have to make on their child's MMR vaccination.DesignA qualitative study employing focus group interviews.Setting11 vaccination centres and hospitals in the Province of Trento, Italy.Participants24 mothers and 4 fathers of children for whom the MMR vaccination decision was still pending participated in 6 focus groups.ResultsAutonomy and competence were salient themes in relation to empowerment, and were further connected with beliefs regarding legal responsibility and ethics of freedom concerning the decision, parents' relationship with the paediatrician (trust), feelings of relevance of the decision and related stress, and seeking, avoidance, or fear of vaccination-related information. Competence was interpreted as medical knowledge and information-seeking skills, but it was also related to the extent parents perceived the paediatrician to be competent.ConclusionsSince parents' interpretation of empowerment goes beyond mere perceptions of being informed and autonomous and differs across individuals, it is important that this construct be correctly interpreted and implemented by best practice, for instance by explicitly adopting a relational conception of autonomy. Knowing whether parents want to make an empowered decision and what their information and autonomy needs are might help health professionals adapt their communication about immunisation, and promote parental perception of making an informed, autonomous decision.

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Affaire Wakefield : 12ans d’errance car aucun lien entre autisme et vaccination ROR n’a été montré

Cited by 19 publications

References 16 publications

Translational research—the need of a new bioethics approach

Translational research—the need of a new bioethics approach

Addressing issues of vaccination literacy and psychological empowerment in the measles-mumps-rubella (MMR) vaccination decision-making: a qualitative study

What are parents' perspectives on psychological empowerment in the MMR vaccination decision? A focus group study

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