African American Parents and Attitudes About Child Disability and Early Intervention Services

Evans, Deneen L.; Feit, Marvin D.; Trent, Theresa

doi:10.1080/01488376.2015.1081118

Cited by 11 publications

(26 citation statements)

References 19 publications

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“…Parental perceptions of developmental disabilities, their child's needs, and EI services influenced EI receipt, party modified by culture (Birkin et al, 2008; Chauhan et al, 2017; Evans et al, 2016; Shyu et al, 2010). For example, parents’ attributions of the causes of ASD influenced EI decisions in a Taiwan study (Shyu et al, 2010).…”

Section: Factors Influencing Access To Early Interventionmentioning

confidence: 99%

“…Being a father, as opposed to a mother, was a barrier to EI receipt, modified by perceptions of parental roles, cultural norms, societal expectations, work schedules and timing (Evans et al, 2016; Herbert & Carpenter, 1994; Ridding & Williams, 2019). In a UK study, Herbert and Carpenter (1994) reported no support was directly offered to fathers, as EI was focused on support for the mother and child with Down syndrome.…”

Section: Factors Influencing Access To Early Interventionmentioning

confidence: 99%

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Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review

Sapiets

Totsika

Hastings

2020

Research Intellect Disabil

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Access to early intervention (EI) has been identified as a priority for global research in developmental disability (Collins et al., 2017;Tomlinson et al., 2014). As a term, developmental disability refers to several developmental conditions but especially developmental delay, intellectual disability and autism spectrum disorder (ASD) 1 .The onset of developmental disabilities takes place during early development and lasts throughout an individual's lifetime (Patel & Merrick, 2011). Whilst the individual needs of children with developmental disabilities are unique, general delays in cognitive and adaptive skills are present by definition (American Psychiatric Association, 2013;Carulla et al., 2011;McDonald et al., 2006). A range of other adverse outcomes are associated with developmental disabilities, such as poorer mental health, poorer physical health and social inequalities (Emerson, 2003;Emerson & Hatton, 2007;Gurney et al., 2006;Vasilopoulou & Nisbet, 2016). For example, an increased risk for behaviour problems is present in children with developmental disabilities as young as 3-5 years old (Totsika et al., 2011), and this increased risk persists into adolescence and adulthood (Gray 1 While autism spectrum disorder (ASD) is predominately used in the current paper in line with the Diagnostic and Statistical Manual of Mental Disorders-5, other autism diagnostic labels (Asperger syndrome, autism, Pervasive Developmental Disorder Not Otherwise Specified, Rett syndrome, autistic traits) are used to describe studies completed in the context prior to the widespread use of ASD as an all-encompassing autism diagnosis in instances where autism diagnostic label is pertinent to the findings.

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Section: Factors Influencing Access To Early Interventionmentioning

confidence: 99%

Section: Factors Influencing Access To Early Interventionmentioning

confidence: 99%

Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review

Sapiets

Totsika

Hastings

2020

Research Intellect Disabil

View full text Add to dashboard Cite

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“…Both Latina mothers and Muslim American mothers from South Asia reported being blessed by God or Allah to raise a child with ASD (Jegatheesan, Miller, & Fowler, 2010; Salkas et al, 2016). African American mothers actively engage in advocacy, training and educating others, and focus on developing self-help skills of their children to counter the discrimination they perceive their child will experience (Burkett et al, 2015; Evans, Feit, & Trent, 2016). Thus, although parents experience high levels of parenting stress, they simultaneously report having positive experiences with and feelings about their child on the autism spectrum.…”

Section: The Impact Of Autism Spectrum Disorder On Familiesmentioning

confidence: 99%

Autism spectrum disorder and the science of social work: A grand challenge for social work research

Bishop-Fitzpatrick

Dababnah

Baker-Ericzén

et al. 2018

Social Work in Mental Health

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The social work profession has not yet taken a leadership role in addressing the myriad of challenges that individuals on the autism spectrum encounter across the lifespan. In this essay, we argue that social workers are well equipped to engage in research and practice aimed at promoting full and meaningful inclusion in society, as well as social and economic justice, for individuals on the autism spectrum. We highlight short- and long-term goals that provide the social work profession with a framework to engage in research, practice, education, and advocacy aimed at supporting individuals on the autism spectrum and their families.

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“…Appropriate implementation of supports can be the beginning of an enhanced quality of life for an individual with a disability and one's family (Evans, Feit, & Trent, 2016).…”

Section: Implementation Of Supportsmentioning

confidence: 99%

“…There is a perception that these individuals are receiving those services from school. Many disparities are discussed, but little research that focuses on how families are unable to access the appropriate services to address individual needs (Evans, Feit, & Trent, 2016). In fact Nachshen, Woodford, and Minnes (2003) created a Family Stress and Coping Interview to examine the experiences of parents with children with developmental disabilities.…”

Section: Introduction and Purposementioning

confidence: 99%

Beyond the classroom: The need for support for parents with a child diagnosed with autism, ID, and behavioral problems

Curington¹

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Beyond the classroom: The need for support for parents with a child diagnosed with autism, ID, and behavioral problems Erica Curington Families with individuals with special needs face many different struggles such as identifying needs and/or appropriate supports, accessing those supports, and then locating providers to help implement those supports (Boehm & Carter, 2016). These individuals may need continuous support to live meaningful and productive lives outside of the classroom. As students leave the classroom, the need for addressing these struggles becomes of greater value and difficulty for families. This is especially true in more rural areas due to lack of services. The following research questions were utilized during this study: What services have been used outside of the classroom to address the needs of your child? What barriers have you encountered when attempting to access these services? What changes in your child's behavior have occurred since having access to the necessary supports? A case study interview was conducted with family members of two individuals that have been diagnosed with Autism, a Moderate Intellectual Disability, Attention Deficit Hyperactivity Disorder, and Intermittent Explosive Disorder in a more rural setting. In regards to services used outside of the classroom to address individual needs, the study found that the initial experience with accessing supports and the process of determining service acquisition was very emotional and stressful for both families. Barriers encountered when attempting to access the appropriate supports outside of the classroom became frustrating due to a lack of understanding of how to appropriately locate the services available, as well as fully understanding the diagnoses rendered. The changes in the participant's behaviors were less stressful once having access to the necessary supports, and the family's abilities to understand their child's needs was also improved. Implication of the study is that supports provided more knowledge which in turn provided a better understanding from family members.

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African American Parents and Attitudes About Child Disability and Early Intervention Services

Cited by 11 publications

References 19 publications

Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review

Factors influencing access to early intervention for families of children with developmental disabilities: A narrative review

Autism spectrum disorder and the science of social work: A grand challenge for social work research

Beyond the classroom: The need for support for parents with a child diagnosed with autism, ID, and behavioral problems

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