African Americans and Decisions About Hospice Care: Implications for Health Message Design

Dillon, Patrick; Roscoe, Lori A.; Jenkins, J. Jacob

doi:10.1080/10646175.2012.667724

Cited by 15 publications

(27 citation statements)

References 57 publications

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“…In fact, one study participant revealed that misconceptions definitely exist in the African American community about what hospice is and does (Dillon et al, 2012). The study revealed that some African Americans assumed that hospice was only available if patients had adequate private insurance, and others expressed concern that hospice care would cause a financial burden on their families (Born, Greiner, Sylvia, Butler, & Ahluwalia, 2004;Dillon et al, 2012). Some African Americans assumed that hospice was a location, and were unwilling to move loved ones out of their homes.…”

Section: Lack Of Information and Misconceptionsmentioning

confidence: 88%

Section: Lack Of Information and Misconceptionsmentioning

confidence: 93%

“…Research revealed that many African Americans lacked specific information that they described as important in making decisions about enrolling in hospice care, specifically the nature of hospice services, locations, payment, and the quality of hospice care (Dillon et al, 2012). In fact, one study participant revealed that misconceptions definitely exist in the African American community about what hospice is and does (Dillon et al, 2012). The study revealed that some African Americans assumed that hospice was only available if patients had adequate private insurance, and others expressed concern that hospice care would cause a financial burden on their families (Born, Greiner, Sylvia, Butler, & Ahluwalia, 2004;Dillon et al, 2012).…”

Section: Lack Of Information and Misconceptionsmentioning

confidence: 98%

“…For many African Americans, spiritual beliefs lead them to view death as a transition and not as a final state and to equate being right with God with a good death experience (Bullock, McGraw, Blank, & Bradley, 2005;Campbell & Ash, 2007;Dillon, Roscoe, & Jenkins, 2012). Ideally, many African Americans would rather be in a place where their traditions are embraced and not just tolerated, meaning the inclusion of time for prayer, Bible reading, spiritual counseling, and singing religious hymns as a part of end-of-life care (Dillon et al, 2012).…”

Section: Spirituality and Religionmentioning

confidence: 99%

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Barriers to Using Palliative Care

Drisdom

2013

Clinical Journal of Oncology Nursing

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As the hospice care setting becomes more racially and ethnically diverse, attending to the different conditions and needs of various groups is essential to providing optimal care. African Americans make up only a small percentage of hospice users in the United States. This article highlights barriers associated with the underenrollment of African Americans into hospice and palliative care programs. A thorough analysis of the literature was conducted to define hospice and palliative care and assess circumstances that impact the use of hospice services by African Americans. Many African Americans are not choosing hospice care because of cultural issues or knowledge deficits, whether through lack of communication or low literacy. Healthcare providers can begin by familiarizing themselves with hospice organizations and developing and putting into practice strategies to communicate with and educate patients and families about hospice care in a culturally sensitive manner.

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Section: Lack Of Information and Misconceptionsmentioning

confidence: 88%

Section: Lack Of Information and Misconceptionsmentioning

confidence: 93%

Section: Lack Of Information and Misconceptionsmentioning

confidence: 98%

Section: Spirituality and Religionmentioning

confidence: 99%

See 2 more Smart Citations

Barriers to Using Palliative Care

Drisdom

2013

Clinical Journal of Oncology Nursing

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“…One review of the research on African Americans' perspectives on similar issues recommends tailoring interventions to ensure that they are culturally appropriate through consultation and piloting. 69 Similarly, a detailed research study looked at the acceptability of two brochures to provide information about advance care planning. That study recommends involving community representatives in writing such materials.…”

Section: Palliative Care Campaigns S-31mentioning

confidence: 99%

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

Seymour

2018

Journal of Palliative Medicine

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Objective: The right to health includes a right of access to good quality palliative care, but inequalities persist. Raising awareness is a key plank of the public health approach to palliative care, but involves consideration of subjects most of us prefer not to address. This review addresses the question: ''do public health awareness campaigns effectively improve the awareness and quality of palliative care''? Background: The evidence shows that public awareness campaigns can improve awareness of palliative care and probably improve quality of care, but there is a lack of evidence about the latter. Methods: Rapid review and synthesis. Results: A comprehensive public awareness campaign about palliative care (including advance care planning and end-of-life decision making) should be based on clear and shared terminology, use well piloted materials, and the full range of mass media to suit different ages, cultures, and religious/spiritual perspectives. Arts and humanities have a role to play in allowing individuals and communities to express experiences of illness, death, and grief and encourage conversation and thoughtful reflection. There is evidence about key factors for success: targeting, networking, and use of specific, measurable, achievable, realistic time-bound objectives; continuous evaluation; and complementarity to national and international policy. Discussion: Campaigns should be located within the framework of public health promotion and the synergy between short national mass media campaigns and longer term local community action initiatives carefully considered. National and local projects to raise awareness should identify and address any barriers at the level of individuals, communities, and systems of care, for example, literacy skills and unequal access to resources.

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