Aged Care Policy and Structural Burden: Transnational Ambiguities in India and Australia

Brijnath, Bianca; Gilbert, Andrew Simon

doi:10.1007/978-981-16-1914-4_41-1

Cited by 2 publications

(2 citation statements)

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“…We draw on the concept of ‘structural burden’ to analyse the systemic sources of carer burden among CALD groups. Taylor and Quesnel‐Vallee (2017, p. 20) define structural burden as ‘a new dimension of carer burden that arises from managing complex interactions within the fragmented structures of formal health and social care.’ As populations have aged in recent decades, health and social care policy have shifted caregiving responsibilities onto informal carers to meet the needs of increasing numbers of older people with long‐term conditions such as dementia (Brijnath & Gilbert, 2022). Services along the dementia care pathway may be distributed between different organisations or government departments, with different eligibility criteria and applications (Gilbert et al, 2020).…”

Section: Introductionmentioning

confidence: 99%

“…However, as we have shown in cognate areas such as mental health, the neoliberal imperative to self‐manage is infused within this rhetoric of choice (Brijnath & Antoniades, 2016). Consumer‐directed aged care has been criticised for burdening vulnerable or minority groups, who may lack the literacy or resources to manage their care (Brijnath & Gilbert, 2022; McCallum & Rees, 2017; Moore, 2021).…”

Section: Introductionmentioning

confidence: 99%

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The experience of structural burden for culturally and linguistically diverse family carers of people living with dementia in Australia

Gilbert

Antoniades

Croy

et al. 2022

Health Social Care Comm

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Evidence suggests that family carers of culturally and linguistically diverse (CALD) people living with dementia experience higher stress and unmet need than the general Australian population. These disparities are often framed as the result of CALD communities failing to seek formal support. Challenging this, we draw on the concept of 'structural burden' to explore how the complexity of health and aged systems contribute to the burden that CALD carers experience. We conducted semi-structured interviews with 104 family carers for CALD people with dementia in Australia, followed by thematic analysis of transcripts. Additional to structural burdens encountered by the general older population, CALD carers faced challenges understanding Australia's Anglo-centric aged care system, locating culturally appropriate care and were required to translate the languages and operations of health and aged care systems into terms their family members understood. This burden was mitigated by the presence of ethno-specific organisations and other navigation support. Australia's aged care system has moved towards centralised governance and consumer-directed care provision. This system involves a confusing array of different programmes and levels, bureaucratic applications and long waiting times. Carers' encounters with these systems demonstrates how some CALD people are being left behind by the current aged care system. While ethno-specific services can reduce this burden, not all CALD groups are represented. Consequently, improving access to dementia care among CALD populations requires entry point and navigation support that is culturally appropriate and linguistically accessible.

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Section: Introductionmentioning

confidence: 99%