Ageing, Diversity and Equality: Social Justice Perspectives (Open Access)

Westwood, Sue

doi:10.4324/9781315226835

Cited by 23 publications

(1 citation statement)

References 24 publications

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“…Family carers who provided almost all of their relative's care often saw this as the only available option that met the care recipient's needs for culturally appropriate care, yet achieving this often left family carers who wanted a different care arrangement with no recourse to meet their own needs, for example for employment or relationships. These tensions in the transnational caring relationship have also been identified in other cultures and countries, for example in relation to Iranian migrants to Sweden (Torres, 2018).…”

Section: Discussionmentioning

confidence: 75%

“In the Bengali Vocabulary, There Is No Such Word as Care Home”:Caring Experiences of UK Bangladeshi and Indian Family Carers of People Living With Dementia at Home

et al. 2019

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Background and Objectives We aimed to explore experiences of South Asian carers of people with dementia receiving health or social care in the United Kingdom, purposively recruited to encompass a range of migration, economic and cultural experiences. While previous work in this area has reported carers’ understanding of, and attitudes to dementia, we explored how carers’ cultural identities and values influenced their experiences, negotiation of the caring role and relationship with services. Research Design and Methods We conducted semi-structured interviews with 10 Bangladeshi and Indian family carers of people living with dementia at home. We recruited participants from community settings in London and Bradford, UK. Interviews were audio recorded, transcribed and thematically analyzed. Results We identified 4 themes: an expectation and duty to care, expectation and duty as a barrier to accessing formal care (family carer reluctance, care recipient reluctance, and service organization), culturally (in)sensitive care, and the importance of support from informal care networks. Discussion and Implications Interviewees described tensions between generations with different understandings of familial care obligations. Expectations to manage led to burden and guilt, and the cost of caring, in terms of lost employment and relationships was striking. Unlike in previous studies, interviewees wanted to engage and be supported by services, but were frequently offered care models they could not accept. There was a tension between a state-provided care system obliged to provide care when there are no alternatives, and family carers who feel a duty to always provide alternatives. Informal social networks often provided valued support.

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Section: Discussionmentioning

confidence: 75%