Agreement between Internet-Based Self- and Proxy-Reported Health Care Resource Utilization and Administrative Health Care Claims

Abstract

This study's agreement values suggest that Internet-based surveys are an effective method to collect self- and proxy-reported HCRU data. These results should increase confidence in the use of the Internet for evaluating disease burden.

Evaluating the use of parental reports to estimate health care resource utilization in children with suspected genetic disorders

“…Our results are consistent with previous studies of the accuracy of parental reports of health care resource utilization for paediatric patient populations . Taken together, they suggest that parental surveys can be a useful data collection tool for generating health care resource utilization estimates in evaluations of paediatric diagnostic GWS services.…”

“…Agreement for hospitalizations was high, with ratings for only 5 of 89 cases disagreeing. Despite the low prevalence of hospital admissions, categorical measures of agreement indicated “substantial” or “almost perfect” agreement (κ = 0.71, 95% CI: 0.50‐0.91; PABAK = 0.89, 0.75‐0.96), which is comparable or better than the kappa scores reported for hospitalizations in other studies of paediatric patients (eg, 0.53, 0.55, 0.57, and 0.80). Moreover, the agreement in the frequency of hospitalizations was “excellent” (ICC = 0.77, 0.66‐0.84) and much higher than that reported in a study of the general patient population (ICC = 0.14, 0.11‐0.17) …”

“…These studies, however, have significant limitations in their applicability to evaluating diagnostic GWS programmes because patients receiving diagnostic GWS tend to have a wide variety of conditions and extremely high levels of health care resource utilization due both to the severity of their health conditions and their families' and physicians' need to obtain an etiologic diagnosis . Three of the studies cited in the preceding paragraph considered the general patient population in paediatric practices or patients enrolled in an employer‐sponsored health insurance plan, while the last examines utilization for asthmatic children, which is generally a well‐understood and manageable condition. Moreover, all but one of these studies considers only the occurrence or nonoccurrence of a given category of resource use rather than its frequency, which is arguably more relevant when costing utilization in patient populations with severe conditions and high levels of utilization.…”

Professional health care use and subjective unmet need for social or emotional problems: a cross-sectional survey of the married and divorced population of Flanders

“…With regard to health care use, a dichotomous measure was used as several studies based on comparisons with registered data have indicated that measures of any medical use (0–1) were more accurate than measures of the quantity of use [54-56]. Respondents who had contacted a GP, psychiatrist, or psychologist because of social or emotional problems in the year before the interview were given a score of 1 (16.4%) on professional health care use.…”

Mental Health Care Use Among Recently Cohabiting and Newlywed Couples: An Application of the Social Control Theory

“…A dichotomous measure was used as several studies based on comparisons of survey data with registered data have indicated that measures of any medical use (0-1) were more accurate than measures of the quantity of use (Palmer et al, 2012;Ritter et al, 2001). …”