Albinism in Negro Children

Beckham, Albert Sidney

doi:10.1080/08856559.1946.10533389

Cited by 9 publications

(7 citation statements)

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“…The table is organized by author, research participants, instruments used, and main findings. Taken together, these few studies suggest that the cognitive development of people with albinism is similar to that of their siblings or to that of those without albinism (Beckham, 1946;Stewart & Keeler, 1965). Interestingly, participants with albinism in Manganyi et al's (1974) study were found to be intellectually more mature than their counterparts without albinism.…”

Section: Overall Findings Of Available Researchmentioning

confidence: 96%

Research on psychological and personal aspects of albinism: A critical review.

Estrada-Hernández¹,

Harper²

2007

Rehabilitation Psychology

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Through electronic and manual searches, the authors identified research articles on albinism that covered a period of more than 20 years. Results: People with albinism were reported to experience many physical, mental/emotional, and social challenges. Data from the research literature suggest that most individuals with albinism have average cognitive abilities and achievement skills. Personal adaptation studies were mixed and indicated that many of these individuals struggle with the social impact of visible differences associated with the albinism condition. Public attitudes toward albinism reflected a general lack of information and a related degree of negativism. Conclusions: The authors conclude that available studies lack the methodological soundness to produce findings that lead to better understanding of this phenomenon. Moreover, certain contextual variables, such as culture, socioeconomic level, and severity of disability, have been overlooked and need to be incorporated in subsequent research on factors impacting the adaptation of individuals with albinism. Implications for rehabilitation research and practice are discussed.

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Section: Overall Findings Of Available Researchmentioning

confidence: 96%

Research on psychological and personal aspects of albinism: A critical review.

Estrada-Hernández¹,

Harper²

2007

Rehabilitation Psychology

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“…A single respondent rated people with albinism as less intelligent while 14 were undecided. Studies by Beckham (1946) and Stewart and Keeler (1965) found no significant difference in the intelligence scores of people with and without albinism. Ezeilo (1989:1129) also argues that if people with albinism do not reach the height of their non affected counterparts, then non-intellectual factors need to be considered.…”

Section: Perceptions About Albinismmentioning

confidence: 99%

A sociological study of children with albinism at a special school in the Limpopo province

2002

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This article maintains that it is the social context, as much as, and sometimes more than the physical condition, that largely structures and limits the lives of people with albi nism. It deals with albinism from a sociological, rather than a medical perspective. Viewed as such the problems experiencing by affected people stem primarily not from their physical differences but from the way others respond to those differences and from the social and physical en vironments they have to cope with. The article is based on a study of 32 children with albinism from a special school in the Limpopo province. Educational, health and social problems, attitudes and perceptions about albinism were tested by way of structured interviews. The data reveal an acute lack of information about the causes and conse quences of albinism. It projects it as a condition still deeply immersed in myths and superstition resulting in the stig matising and rejection of affected people. It also discloses a physical environment which is preventing rather than supporting people with albinism from reaching their po tential. It calls for a reorientation in dealing with albi nism -away from just medical intervention to treating it as a social construct requiring a holistic approach. OpsommingHierdie artikel redeneer dat dit die sosiale konteks, eerder, en nog meer as die fisiese toestand is wat tot 'n groot mate mense met albinisme se lewens beheer en struktureer. Dit beskryf albinisme vanuit 'n sosiologiese, eerder as 'n mediese verband. As sulks is die probleme van mense met albinisme nie primer 'n verskil in fisiese voorkoms gesetel nie, maar in die wyse waarop ander persone op hierdie verskille reageer en in die sosiale en fisiese omgewing waarbinne hulle moet funksioneer. Die artikel is gebaseer op 'n studie van 32 kinders met albinisme by 'n spesiale skool in die Limpopo provinsie. Gesondheids, leer en sosiale probleme, houdings en persepsies oor albinisme is by wyse van g estruktureerde onderhoude getoets. Betekenisvolle bevindinge sentreer om 'n akute gebrek aan inligting oor die oorsake en gevolge van albinisme met gepaardgaande mites en bygelowe. Die gevolg is stig m atiserin g , verw erping en d isk rim in asie van geaffekteerde persone. 'n Verdere bevinding is dat die sosiale en fisiese omgewing waarin persone met albinisme moet funksioneer hulle eerder beperk as ondersteun in die bereiking van persoonlike potensiaal. Dit vereis 'n herorientering in die hantering van albinisme -vanaf 'n oorwegend mediese model na een waarin die toestand as beide 'n fisiese en 'n sosiale konstruksie beskou word en vanuit 'n holistiese benadering hanteer behoort te word.

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“…However, one of the main conclusions suggested that the participants' self-concept lowered when there was a lack of information the individual had on the medical, social, and psychological aspects related to albinism and the more difficulties this person had in meeting basic social needs. The authors of the other studies noted that people with albinism likely develop cognitively similar to their siblings or people without albinism (Beckham, 1946;Fulsher et al, 1995). Educational attainment is not a main issue for these individuals, yet environmental and attitudinal factors in school can be (Thurston, 2014).…”

Section: Research On Psychosocial Aspectsmentioning

confidence: 99%

“…Their findings suggest that the majority of the identified articles explored the presence or absence of a trait in relation to the albinism condition. Those studies focused on the identification of high or low IQ (Beckham, 1946;Fulsher et al, 1995), positive or negative selfconcept (Gavron, Katz, & Galatzer, 1995;Gold, 2002;Palmer, 2007), passive or active behavior during childhood (Javangwe & Mukondyo, 2012), and general attitudes toward people with albinism (George & Duquette, 2006;Lund, 2001;Vander Kolk & Bright, 1983). Rather importantly, many issues have not been linked to various features of albinism as intervening psychosocial adjustment factors.…”

Section: Research On Psychosocial Aspectsmentioning

confidence: 99%

Psychosocial Aspects of Physical Difference: The Experiences of Eight Adults with Albinism in Puerto Rico

Estrada-Hernández

2018

Journal of Visual Impairment & Blindness

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Introduction This article explored the experiences of eight persons with albinism in Puerto Rico in their quest for educational, social, and employment opportunities. Methods Volunteers participated in structured interviews that yielded the information presented in this article. Results Four main areas were identified that best described the stories of these participants: knowledge of and attitudes toward albinism, resilience and other supports, the challenges of albinism, and current needs. Discussion It is clear from the participants' stories that physical attributes are still a prime factor in determining a variety of interactions for persons with albinism, many with potential effects on quality of life. Implications for practitioners This article contributes to the literature documenting psychosocial aspects of the albinism condition. It provides evidence that environmental barriers and attitudes generally affect interactions with persons with albinism, knowledge that can be used by professionals who work with individuals with albinism.

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Albinism in Negro Children

Cited by 9 publications

References 0 publications

Research on psychological and personal aspects of albinism: A critical review.

Research on psychological and personal aspects of albinism: A critical review.

A sociological study of children with albinism at a special school in the Limpopo province

Psychosocial Aspects of Physical Difference: The Experiences of Eight Adults with Albinism in Puerto Rico

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