Algorithmic identification of persons with dementia for research recruitment: ethical considerations

London, Alex John; Karlawish, Jason; Largent, Emily A.; Hey, Spencer Phillips; McCarthy, Ellen P.

doi:10.1080/17538157.2023.2299881

Informatics for Health and Social Care

2024

DOI: 10.1080/17538157.2023.2299881

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Algorithmic identification of persons with dementia for research recruitment: ethical considerations

Alex John London,

Jason Karlawish,

Emily A. Largent

et al.

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2024

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Paving the way for Alzheimer's disease blood‐based biomarkers in primary care

Erickson,

Largent,

O'Brien

2024

Alzheimer's & Dementia

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Blood‐based biomarkers (BBBMs) for Alzheimer's disease (AD) have the potential to revolutionize the detection and management of cognitive impairment. AD BBBMs are not currently recommended for use in primary care but may soon be as research demonstrates their clinical utility for differential diagnosis and patient management. To prepare for the incorporation of AD BBBMs into primary care, several practical challenges must be addressed. Here, we describe four immediate challenges: (1) preparing primary care providers to order and disclose AD BBBMs, (2) expanding the dementia‐capable workforce, (3) ensuring equitable uptake of AD BBBM testing, and (4) securing access to AD treatment. We conclude by discussing future directions and challenges for use of AD BBBMs in primary care, including screening for preclinical AD and dementia detection algorithms.Highlights Alzheimer's disease (AD) blood‐based biomarkers (BBBMs) may be well suited for primary care. Many changes are needed to prepare the workforce and ensure patient access. Paving the way for AD BBBMs in primary care will require a multi‐pronged approach.

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Paving the way for Alzheimer's disease blood‐based biomarkers in primary care

Erickson,

Largent,

O'Brien

2024

Alzheimer's & Dementia

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Ready or Not: A Conceptual Model of Organizational Readiness for Embedded Pragmatic Dementia Research

Boltz,

Van Haitsma,

Baier

et al. 2024

Research in Gerontological Nursing

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The National Institute on Aging Alzheimer's Disease/Alzheimer's Disease and Related Dementias Research Implementation Milestones emphasize the need for implementation research that maximizes up-take and scale-up of evidence-based dementia care practices across settings, diverse populations, and disease trajectories. Organizational readiness for implementation is a salient consideration when planning and conducting embedded pragmatic trials, in which interventions are implemented by provider staff. The current article examines the conceptual and theoretical underpinnings of organizational readiness for implementation and the operationalization of this construct. We offer a preliminary conceptual model for explicating and measuring organizational readiness and describe the unique characteristics and demands of implementing evidence-based interventions targeting persons with dementia and/or their care partners. [ Research in Gerontological Nursing, xx (x), xx–xx.]

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Algorithmic identification of persons with dementia for research recruitment: ethical considerations

Cited by 2 publications

References 50 publications

Paving the way for Alzheimer's disease blood‐based biomarkers in primary care

Paving the way for Alzheimer's disease blood‐based biomarkers in primary care

Ready or Not: A Conceptual Model of Organizational Readiness for Embedded Pragmatic Dementia Research

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