“All of a sudden we noticed a difference at home too”: parents’ perception of a parent-focused early communication and AAC intervention for toddlers

Fäldt, Anna; Fabian, Helena; Thunberg, Gunilla; Lucas, Steven

doi:10.1080/07434618.2020.1811757

Cited by 36 publications

(12 citation statements)

References 45 publications

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“…The perspectives of parent-focused intervention groups provided by these parents supported findings from previously published studies by Baxendale et al (2001), Gibbard and Smith (2016), Davies et al (2016), andFäldt et al (2020). They provided new information about how parents experience an intervention approach used routinely by SLTs, including processes in initial sessions, contributions of peer groups to providing safe spaces as well as opportunities and challenges, emotional costs of intervention, and impacts of differences between individual parents and peer groups.…”

Section: Discussionsupporting

confidence: 65%

“…They described increasing knowledge and skills, echoing parent perceptions previously identified by Baxendale et al (2001) and Gibbard and Smith (2016). They also reported developing greater understanding about their child, echoing Fäldt et al (2020). While increased understanding is identified as an intervention aim by SLTs (Roulstone, 2015), the current study provided additional perspectives from parents about its effects.…”

Section: Parents' Experiences During Intervention Facilitate Personal Changesupporting

confidence: 63%

“…Increased confidence and understanding alongside changed self-perceptions and increased personal agency suggest significant personal impacts underlying behaviour changes. Parents' views that other carers should experience interventions first-hand to maximize benefits, and Janet's description of greater learning through participation, also indicated that participants perceived intervention as having strong personal impacts on those attending as well as supporting findings from Fäldt et al (2020).…”

Section: Parents Experience Personal Costs and Benefits Of Interventionmentioning

confidence: 98%

“…Participants reported increased confidence following intervention. Recently Fäldt et al (2020) interviewed parents about an intervention including group sessions and alternative and augmentative communication (AAC); they focused on outcomes, intervention format and useful learning strategies. Participants described learning from other parents and perceived attending with co-parents as beneficial; some reported developing new insights about their child.…”

Section: Perceptions Of Parent-focused Interventionsmentioning

confidence: 99%

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Exploring parents’ experiences: Parent-focused intervention groups for communication needs

Harris

2021

Child Language Teaching and Therapy

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Perceptions of a convenience sample of 10 parents (one father, nine mothers) who had completed one or more group-based, parent-focused interventions for their children’s communication needs were explored during semi-structured interviews. Nine different intervention groups (EarlyBird programmes, early communication skills training, or Makaton training) were discussed. Inductive and grounded theory approaches were used during thematic analysis to focus on parents’ priorities. Themes identified were: (1) intervention purposes, including initial session purposes; (2) groups as supportive/safe spaces; (3) personal change (behaviours and self-perception); (4) challenges of groups; (5) costs and benefits, including emotional costs. Parents supported previously reported findings about changes in knowledge, understanding, and perception of their role. Parents provided insights into how changes occurred, including helpful processes and professional strategies. They described emotional impacts of parent-focused intervention, particularly parental guilt. Participants perceived peer groups as contributing safe spaces and opportunities, but also challenges. Two parents experienced reduced benefits due to significant individual differences relating to their child’s more complex needs. Participants confirmed some speech and language therapists’ (SLTs’) perceptions about how interventions work and challenged others. Key findings were that (1) parents’ experiences during intervention facilitate personal change; (2) parents experience personal costs and benefits of intervention; (3) peer groups contribute to intervention effectiveness. These findings indicated that parents experience significant personal impacts from parent-focused intervention groups, and that groups provide a specific intervention type that differs from individual input. Clinical implications are that professionals need awareness of impacts on parents to support effective intervention and avoid harm; peer groups can facilitate learning and parental agency; dissimilarity to peers can make group intervention inappropriate. Study limitations included fewer perspectives from parents of children with primary communication needs. Further exploration of interventions’ emotional impacts, how group processes support parental confidence and agency, and effects of individual differences on suitability of group intervention are suggested.

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Section: Discussionsupporting

confidence: 65%

Section: Parents' Experiences During Intervention Facilitate Personal Changesupporting

confidence: 63%

Section: Parents Experience Personal Costs and Benefits Of Interventionmentioning

confidence: 98%

Section: Perceptions Of Parent-focused Interventionsmentioning

confidence: 99%

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Exploring parents’ experiences: Parent-focused intervention groups for communication needs

Harris

2021

Child Language Teaching and Therapy

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“…For example, they expressed their "difficulties sourcing pictures" for low-technology systems such as communication books and PECS. Therefore, parents felt frustrated because their responsibilities increased after the introduction of AAC [24,26,27,[29][30][31][32]35,[38][39][40]: "I work full-time as a nurse, and my husband works full-time, and three kids and two older kids who are running in six directions. And unfortunately, we probably fall short of making time [to support AAC use]."…”

Section: Theme 3 Integration Of Aac In Daily Life Subtheme 8: Familymentioning

confidence: 99%

Parents’ Perceptions and Experiences with Their Children’s Use of Augmentative/Alternative Communication: A Systematic Review and Qualitative Meta-Synthesis

Berenguer

Martínez

Stasio

et al. 2022

IJERPH

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Augmentative and alternative communication (AAC) consists of any method of communicating that supplements or completely substitutes oral and/or written language when it is impaired. Therefore, it enables children with complex communication needs to develop their full communicative potential. However, despite the many benefits of AAC and its widespread use, several review studies have underscored the problems faced by parents and children who use AAC in their daily lives. The general objective of this systematic review and qualitative meta-synthesis is to provide a complete overview of parents’ experiences and perceptions with their children’s use of AAC. Specifically, it aimed to identify common themes and subthemes of interest and to analyze the research quality of the selected studies. An exhaustive literature search was carried out using different electronic databases. Nineteen studies were included, involving 297 parents. A thematic synthesis was undertaken. Three main themes and nine subthemes were identified: service support (accessibility, providers and coordination); characteristics of AAC systems (usability and acceptability, features, cost and funding); and integration of AAC in daily life (family, school, social and community). Findings raise a need for more services that support children with complex communication deficits in different contexts, more functional use of AAC systems at school and in real-world situations, as well as service assistance over an extended time period.

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Caregiver-Implemented AAC Interventions for Children with Intellectual or Developmental Disabilities: a Systematic Review

Elmquist

Crowe

Wattanawongwan

et al. 2023

Rev J Autism Dev Disord

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“All of a sudden we noticed a difference at home too”: parents’ perception of a parent-focused early communication and AAC intervention for toddlers

Abstract: Lucas (2020): "All of a sudden we noticed a difference at home too": parents' perception of a parent-focused early communication and AAC intervention for toddlers, Augmentative and Alternative Communication,

Cited by 36 publications

References 45 publications

Exploring parents’ experiences: Parent-focused intervention groups for communication needs

Exploring parents’ experiences: Parent-focused intervention groups for communication needs

Parents’ Perceptions and Experiences with Their Children’s Use of Augmentative/Alternative Communication: A Systematic Review and Qualitative Meta-Synthesis

Caregiver-Implemented AAC Interventions for Children with Intellectual or Developmental Disabilities: a Systematic Review

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