Almost at Home: Modes of Tinkering in Hospice

Pasveer, Bernike

doi:10.1007/978-981-15-0406-8_10

Cited by 3 publications

(3 citation statements)

References 15 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…In other parts of the literature within the field, there is an increased interest in the role of mundane or everyday objects . This includes studies highlighting the importance of hygiene products in family care (Araujo et al 2020) and of familiar objects when moving into a care setting (Pasveer 2020).…”

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

The Role of Incidental Objects in ‘Making Things Work’: An Example from Assisted Living Facilities for Young Adults

Hoydal,

Thygesen

2023

Scandinavian Journal of Disability Research

View full text Add to dashboard Cite

This article studies material practices in assisted living facilities (ALF) for young adults, building on empirical data from fieldwork and on analytical resources from the research field of science and technology studies (STS). For the analysis, we made use of the notions of 'fit' and 'misfit' to zoom in on and illuminate the complexity of service provision at ALFs and of the materialities involved. The article mainly focuses on trivial and easily overlooked objects, which we name 'incidental objects', and how these are mobilized in order to 'make things work' in the intersection of residents, carers, and their material surroundings in everyday life. Our analysis revealed that incidental objects are key components in the process of handling situations involving misfits, and hence in enabling participation, flexibility, and agility in everyday life. Moreover, it unveiled that the incidental objects have important common characteristics.

show abstract

Section: Discussionmentioning

confidence: 99%

“…Within this body of literature, there is increasing interest in the role of materialities and things that may go unnoticed or be perceived as mundane or unimportant. This includes items such as clothing, photographs, hygiene products, and household objects (see, for instance Araujo et al 2020;Latimer 2018;and Pasveer 2020).…”

Section: Policy and Researchmentioning

confidence: 99%

The Role of Incidental Objects in ‘Making Things Work’: An Example from Assisted Living Facilities for Young Adults

Hoydal,

Thygesen

2023

Scandinavian Journal of Disability Research

View full text Add to dashboard Cite

show abstract

“…Hence, a discrepancy may occur between the actual and preferred place of death (Kaufman 2005;Stonington 2020;Visser 2019). Addressing these concerns, palliative care institutions and staff, the ethnographic record shows, often put great effort into creating a 'homely' atmosphere, a place that is familiar to patients and their relatives (Pasveer 2020;Lemos Dekker and Pols 2020). For example, Annelieke Driessen, Erica Borgstrom, and Simon Cohn (2021) describe the efforts of palliative care teams in a UK hospital to create a familiar, personal, and meaningful space for the dying person in the institutional environment, in order to make it suitable for dying-a practice the authors call 'placing work'.…”

Section: Palliative Care and The Good Deathmentioning

confidence: 99%

Palliative Care

Lemos Dekker

2023

OEA

View full text Add to dashboard Cite

show abstract

Human and Person When Life Is Fragile: New Relationships and Inherent Ambivalences in the Care of Dying Patients

Cohn

Driessen

Borgstrom

2023

Science, Technology, & Human Values

View full text Add to dashboard Cite

In this paper, we focus on how medical staff care for people who are dying and on the increasing use of diverse technologies to ease the experience of dying. Because it is accepted patients cannot recover, the primary value to preserve life underpinning much of biomedical practice is contrasted by a commitment to make people’s last period of life as fulfilling and meaningful as possible. Drawing on illustrative cases from an ethnography of palliative care in central London, we discuss how these different priorities construct the patient in different ways. We present two different repertoires of practice, the first of which cares for human life, while the second adopts an idea of personhood to support and maintain patients’ social ties with the wider world. The two concepts inscribe different boundaries of the patient and can help guide what might be the best thing for staff, patients, and others to do. Our examples show that while these two repertoires can emerge in tension in end-of-life care, they are never fully opposites. We argue for a reaffirmation of the concept of the person to accompany contemporary posthuman and more-than-human debates in order to think about “more-than” beyond a focus on the material.

show abstract

Almost at Home: Modes of Tinkering in Hospice

Cited by 3 publications

References 15 publications

The Role of Incidental Objects in ‘Making Things Work’: An Example from Assisted Living Facilities for Young Adults

The Role of Incidental Objects in ‘Making Things Work’: An Example from Assisted Living Facilities for Young Adults

Palliative Care

Human and Person When Life Is Fragile: New Relationships and Inherent Ambivalences in the Care of Dying Patients

Contact Info

Product

Resources

About