‘Always the guiding hand’: parents' accounts of the long‐term implications of developmental co‐ordination disorder for their children and families

Stephenson, Elizabeth A.; Chesson, Rosemary

doi:10.1111/j.1365-2214.2007.00805.x

Cited by 85 publications

(99 citation statements)

References 34 publications

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“…Motor clumsiness has previously been suggested as a risk factor for bully victimization (16,17,45,46). This was supported by our data among girls (but not boys) and influenced by shared genes predisposing individuals to both motor coordination problems and bully victimization.…”

Section: Social Interaction and Motor Control As Unique Predictorssupporting

confidence: 78%

Childhood neurodevelopmental problems and adolescent bully victimization: population-based, prospective twin study in Sweden

Törn

Pettersson

Lichtenstein

et al. 2015

Eur Child Adolesc Psychiatry

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Section: Social Interaction and Motor Control As Unique Predictorssupporting

confidence: 78%

Childhood neurodevelopmental problems and adolescent bully victimization: population-based, prospective twin study in Sweden

Törn

Pettersson

Lichtenstein

et al. 2015

Eur Child Adolesc Psychiatry

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“…It was concluded that, overall, the MZ twin relationship was close and mutually supportive regardless of status for DCD; however, perceptions of family functioning differed between twins affected and unaffected for DCD in DCD discordant pairs. It was suggested that, as with non-twin siblings (Stephenson & Chesson, 2008), this might relate to differences in family attitude towards twins with and without DCD. Consequently, this study assists in forming the foundation for further research into the effects of even minor and moderate movement disorder on family functioning and sibling relationships, and possible implications for policy and clinical practice.…”

Section: Resultsmentioning

confidence: 99%

“…Considering that their co-twins with DCD had movement disorder in the mild range, it is not possible to draw any conclusions as to whether this negative perception of family functioning was related to their co-twins' motor difficulties. However, in their study on the effects of DCD on the family, Stephenson and Chesson (2008) reported that the whole family was impacted by the long-term difficulties experienced by young people with DCD. Shere (1956Shere ( , 1957, who reported on twins discordant for mild, moderate and severe CP noted that, because of attention paid to, and allowances made for, the sibling with movement disorder, twins without CP reported family functioning less favorably than did the co-twins with CP.…”

Section: Discussionmentioning

confidence: 99%

“…If mental retardation is present, motor deficits must be more than anticipated with mental retardation (Criterion D There has been little exploration into the long-term implications for families caring for children and young people with DCD, and for the young people themselves. Stephenson and Chesson (2008) used questionnaire data from 35 families of children with DCD, and semi-structured interviews with 12 of those mothers six years after attendance at a screening clinic, to ascertain outcome in their children aged 11 to 17 years. All 12 mothers reported…”

Section: Developmental Coordination Disorder (Dcd) Is the Term Appliementioning

confidence: 99%

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Monozygotic Twins Concordant and Discordant for DCD: Two Sides to the Story

et al. 2011

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Being an identical twin does not necessarily mean having identical perceptions of family functioning, nor of the twin relationship. Using the co-twin control design, the aim of this study was to explore perceptions of family dynamics and the twin relationship in monozygotic (MZ) twins discordant and concordant for Developmental Coordination Disorder (DCD). It was hypothesized that, as has been found in twins discordant for cerebral palsy, twins without DCD would perceive family functioning as less healthy than would their co-twins with DCD. It was also hypothesized that the twin relationship would be regarded generally as mutually supportive. Questionnaire data on 866 sets of MZ twins aged 6 to 17 years were used to identify seven sets discordant, and two sets concordant for DCD. Quantitative (General Functioning Scale of the Family Assessment Device — FAD), and qualitative (semi-structured interview) measures were used to assess family dynamics and the twin relationship. In discordant sets, six of seven twins without DCD rated family functioning at a less healthy level than did their co-twins with DCD. All twins in the DCD concordant sets rated their family functioning at a healthy level. From the semi-structured interviews, emergent themes included friendship, support, minimal sibling rivalry, and minor difficulties. It was concluded that, overall, the twin relationship was regarded as close and mutually supportive, with an ambivalent polarity between the best and most difficult aspects of being an identical twin. Implications for research, policy and clinical practice are discussed.

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“…Without appropriate support, these children are at increased risk of depression, anxiety, decreased selfesteem and physical fitness, and childhood obesity 5,6 . Despite the fact there is a consensus on the importance of providing information to families to raise their awareness about the condition and build their capacity to manage the health condition 1,2 , parents of children with DCD often report having a lack of information 7 , which echoes parental reports for other childhood disability conditions 8,9 .…”

Section: Introductionmentioning

confidence: 99%

Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

Camden

Foley

Anaby

et al. 2016

Disability and Health Journal

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Background : Developmental coordination disorder (DCD) is a prevalent neurodevelopmental disorder. Best practices include raising parents' awareness and building capacity but few interventions incorporating these best practices are documented. Objective : To examine whether an evidence-based online module can increase the perceived knowledge and skills of parents of children with DCD, and lead to behavioural changes when managing their child's health condition. Methods : A mixed-methods, before-after-follow-up design guided by the theory of planned behaviour was employed. Data about the knowledge, skills and behaviours of parents of children with DCD were collected using questionnaires prior to completing the module, immediately after, and three months later. One-way repeated measures ANOVAs and thematic analyses were performed on data as appropriate. Results : Fifty-eight participants completed all questionnaires. There was a significant effect of time on self-reported knowledge [F(2.00,114.00)=16.37, p=0.00] and skills [F(1.81,103.03)=51.37, p=0.00] with higher post-and follow-up scores than pre-intervention scores. Thirty-seven (65%) participants reported an intention to change behaviour post-intervention; 29 (50%) participants had tried recommended strategies at follow-up. Three themes emerged to describe parents' behavioural change: sharing information, trialing strategies and changing attitudes. Factors influencing parents' ability to implement these behavioural changes included clear recommendations, time, and 'right' attitude. Perceived outcomes associated with the parental behavioural changes involved improvement in well-being for the children at school, at home, and for the family as a whole. Conclusions : The online module increased parents' self-reported knowledge and skills in DCD management. Future research should explore its impacts on children's outcomes long-term. Enclosed please find the research article entitled "Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder"-for consideration by Disability and Health Journal. The article consists of a mixed-method, before-after trial with a threemonth follow-up. In this trial, parents of children with Developmental Coordination Disorder (DCD) completed an online evidence-based module providing information and strategies to manage this prevalent and potentially disabling chronic health condition. This manuscript will be of interest to your journal as the families of children with motor delays, or "suspected DCD", typically visit physicians and many other health care professionals to find out "what is wrong with their child". Previous papers have suggested that providing evidence-based information to families is a key strategy in equipping families to support their children with DCD. However, no specific intervention has been tested so far to evaluate the impact of providing information to families. This study evaluated whether an evidence-based online module could inc...

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‘Always the guiding hand’: parents' accounts of the long‐term implications of developmental co‐ordination disorder for their children and families

Abstract: The study suggests a need for occupational therapists to reframe their current ideas regarding service provision, with improved support for families, increased interagency working and more service-user involvement.

Cited by 85 publications

References 34 publications

Childhood neurodevelopmental problems and adolescent bully victimization: population-based, prospective twin study in Sweden

Childhood neurodevelopmental problems and adolescent bully victimization: population-based, prospective twin study in Sweden

Monozygotic Twins Concordant and Discordant for DCD: Two Sides to the Story

Using an evidence-based online module to improve parents' ability to support their child with Developmental Coordination Disorder

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