Ambulatory Assistive Devices for Children and Youth with Cerebral Palsy

Bolton, M P; Donohoe, Maureen

doi:10.1007/978-3-319-50592-3_181-1

Cited by 2 publications

(7 citation statements)

References 43 publications

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“…11,13,15 Findings offer new insights regarding lived experience and healthcare provider perceptions that may inform collaborative care but have rarely been addressed in the literature to date. 4,5 In particular, themes 1 and 2 align with findings reported and research priorities established during Research CP, indicating that current standards of practice may not meet the everyday needs of individuals with CP across the life span aiming to maximize participation and minimize pain and fatigue. 28 The results from theme 2 also reflect the existing literature describing how young children and adolescents perceive SMDs as positive extensions of their bodies that support social and emotional development, along with decreased caregiver stress.…”

Section: Discussionmentioning

confidence: 88%

“…3 To facilitate participation, individuals with CP across the life span benefit from supportive mobility devices (SMDs) such as orthoses, walkers, crutches, or wheelchairs. 3,4 Such devices are considered essential environmental factors from the holistic lens of the World Health Organization's International Classification of Functioning, Disability and Health framework. 3 Within this framework, current standards of rehabilitation practice include SMD provision as a part of individualized, personand family-centered interventions.…”

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confidence: 99%

“…3 Within this framework, current standards of rehabilitation practice include SMD provision as a part of individualized, personand family-centered interventions. 4 However, provision processes vary across regional and clinical context. A lack of resources exist to guide the introduction and evolution of SMDs throughout the life span, especially as ambulatory ability changes over time.…”

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confidence: 99%

“…However, delays in walking and other mobility skills are common 3 . To facilitate participation, individuals with CP across the life span benefit from supportive mobility devices (SMDs) such as orthoses, walkers, crutches, or wheelchairs 3,4 . Such devices are considered essential environmental factors from the holistic lens of the World Health Organization's International Classification of Functioning, Disability and Health framework 3 .…”

mentioning

confidence: 99%

“…Such devices are considered essential environmental factors from the holistic lens of the World Health Organization's International Classification of Functioning, Disability and Health framework 3 . Within this framework, current standards of rehabilitation practice include SMD provision as a part of individualized, person‐and family‐centered interventions 4 . However, provision processes vary across regional and clinical context.…”

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confidence: 99%

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Supportive mobility device use across the life span by individuals with cerebral palsy: A qualitative study

Feldner

Gaebler‐Spira

Awasthi³

et al. 2022

Develop Med Child Neuro

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Aim To understand the mobility experiences, supportive mobility device (SMD) use, and desired participation outcomes of individuals with cerebral palsy (CP) across the life span, and describe how perspectives of rehabilitation care and professional resources may influence mobility decision‐making processes and outcomes. Method In the second phase of an overarching study, focus groups were conducted with 164 participants (68 individuals with CP; 32 females, 36 males; mean age 17y 8mo, SD 11y 11mo, range 3–68y), 74 caregivers (50 females, 24 males), and 22 healthcare providers (14 females, eight males) across four US cities. Sessions were audio‐recorded, transcribed, and analysed using constant comparison. Results Six themes emerged. Five presented across all stakeholder groups: (1) the system is broken; (2) equipment is simultaneously liberating and restricting; (3) adaptation across the life span; (4) designed for transport, not for living; and (5) sharing our stories and sharing resources. One theme (theme 6) was specific to healthcare providers: caught in the middle. Interpretation This qualitative study underscores the simultaneous value and frustration associated with SMDs as described by the community with CP, and recognition among all stakeholders of the need to improve connections and resource networks within the community with CP to improve SMD design and provision processes across device types and across the life span for individuals with CP. What this paper adds Supportive mobility devices (SMDs) were most often equated with freedom, participation, and independence. Frustration with SMDs across the life span persisted with regard to design, function, cost, and maintenance. Stakeholders in the community with cerebral palsy are seeking greater networking and resource sharing to enhance SMD provision processes. Access to appropriate SMDs across the life span and the need for system improvement are critical.

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Section: Discussionmentioning

confidence: 88%

mentioning

confidence: 99%

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confidence: 99%

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confidence: 99%

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confidence: 99%

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Supportive mobility device use across the life span by individuals with cerebral palsy: A qualitative study

Feldner

Gaebler‐Spira

Awasthi³

et al. 2022

Develop Med Child Neuro

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Supported Standing and Supported Stepping Devices for Children with Non-Ambulant Cerebral Palsy: An Interdependence and F-Words Focus

Paleg,

Williams,

Livingstone

2024

IJERPH

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Children functioning at Gross Motor Function Classification System (GMFCS) levels IV–V cannot maintain an aligned standing position or take steps without support. Upright positioning and mobility devices have psycho-social significance for these children and their families, enhancing use of vision, communication, functioning and emotional well-being. Standers and supported stepping devices facilitate opportunities for biomechanical loading, potentially helping to build and maintain muscle and bone integrity, and they promote physical development. However, families are often required to choose between these two devices for their young child. This study aims to synthesize evidence for use and benefits of both supported standing and stepping devices through the lens of two contemporary theoretical frameworks to support clinical reasoning and implementation. The F-words for childhood development (functioning, family, fitness, fun, friends, future) and the interdependence-Human Activity Assistive Technology (iHAAT) models were combined to illustrate the complex interactions between the child, family, caregivers, peers and contextual factors when implementing standing and stepping devices with children at GMFCS levels IV and V. Supported standing and stepping devices provide complementary benefits, and both may be necessary starting at 9–15 months. We propose they both be included ON-Time, along with other age-appropriate positioning and mobility devices, to promote more equitable developmental opportunities for children with non-ambulant cerebral palsy.

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Ambulatory Assistive Devices for Children and Youth with Cerebral Palsy

Cited by 2 publications

References 43 publications

Supportive mobility device use across the life span by individuals with cerebral palsy: A qualitative study

Supportive mobility device use across the life span by individuals with cerebral palsy: A qualitative study

Supported Standing and Supported Stepping Devices for Children with Non-Ambulant Cerebral Palsy: An Interdependence and F-Words Focus

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