An analysis of the diagnostic accuracy and peer‐to‐peer health information provided on online health forums for heart failure

Farnood, Annabel; Johnston, Bridget; Mair, Frances S

doi:10.1111/jan.15009

Cited by 12 publications

(15 citation statements)

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“…Of the 17 studies, 4 (24%) qualitative studies [ 28 , 33 , 39 , 40 ] addressed how people with chronic conditions discussed the power asymmetry characterizing their relationships with HCPs. For example, some people with chronic conditions expressed feeling humiliated, subordinated, rushed through clinical consultations, not listened to, and not taken seriously by HCPs [ 33 , 39 , 40 ]. Consequently, some people with chronic conditions expressed losing trust in HCPs [ 33 ] and encouraged peers to switch HCPs if they did not trust their current one [ 39 ].…”

Section: Resultsmentioning

confidence: 99%

“…For example, some people with chronic conditions expressed feeling humiliated, subordinated, rushed through clinical consultations, not listened to, and not taken seriously by HCPs [ 33 , 39 , 40 ]. Consequently, some people with chronic conditions expressed losing trust in HCPs [ 33 ] and encouraged peers to switch HCPs if they did not trust their current one [ 39 ]. Others questioned whether HCPs prescribed certain drugs for financial reasons rather than medical reasons [ 33 , 40 ].…”

Section: Resultsmentioning

confidence: 99%

“…Consequently, some people with chronic conditions expressed losing trust in HCPs [ 33 ] and encouraged peers to switch HCPs if they did not trust their current one [ 39 ]. Others questioned whether HCPs prescribed certain drugs for financial reasons rather than medical reasons [ 33 , 40 ]. In this sense, people with chronic conditions discussed the powerful position of HCPs as experts and gatekeepers of health services [ 28 , 39 , 40 ].…”

Section: Resultsmentioning

confidence: 99%

“…Of these 53 studies, we excluded 1 (2%) potentially eligible study (listed in Multimedia Appendix 2) as it was reported in a language other than English, Danish, Swedish, and Norwegian. Thus, the full texts of 52 studies were read to determine eligibility, of which 21 (40%) were included in the quality assessment and 17 (33%) were included in the knowledge synthesis (Figure 1) [25][26][27][28][29][30][31][32][33][34][35][36][37][38][39][40][41].…”

Section: Study Selectionmentioning

confidence: 99%

“…[33], 2021 a Q1: quality assessment screening question 1 based on study design (Textbox 1). b Q2: quality assessment screening question 2 based on study design (Textbox 1).c Q3: quality assessment screening question 3 based on study design (Textbox 1).…”

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confidence: 99%

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When People With Chronic Conditions Turn to Peers on Social Media to Obtain and Share Information: Systematic Review of the Implications for Relationships With Health Care Professionals

Kjærulff¹,

Andersen²,

Kingod³

et al. 2023

J Med Internet Res

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Background People living with chronic conditions such as diabetes turn to peers on social media to obtain and share information. Although social media use has grown dramatically in the past decade, little is known about its implications for the relationships between people with chronic conditions and health care professionals (HCPs). Objective We aimed to systematically review the content and quality of studies examining what the retrieval and sharing of information by people with chronic conditions on social media implies for their relationships with HCPs. Methods We conducted a search of studies in MEDLINE (Ovid), Embase (Ovid), PsycINFO (Ovid), and CINAHL (EBSCO). Eligible studies were primary studies; examined social media use; included adults with any type of diabetes, cardiovascular diseases that are closely linked with diabetes, obesity, hypertension, or dyslipidemia; and reported on the implications for people with chronic conditions–HCP relationships when people with chronic conditions access and share information on social media. We used the Mixed Methods Appraisal Tool version 2018 to assess the quality of the studies, and the included studies were narratively synthesized. Results Of the 3111 screened studies, 17 (0.55%) were included. Most studies (13/17, 76%) were of low quality. The narrative synthesis identified implications for people with chronic conditions–HCP relationships when people with chronic conditions access and share information on social media, divided into 3 main categories with 7 subcategories. These categories of implications address how the peer interactions of people with chronic conditions on social media can influence their communication with HCPs, how people with chronic conditions discuss advice and medical information from HCPs on social media, and how relationships with HCPs are discussed by people with chronic conditions on social media. The implications are illustrated collectively in a conceptual model. Conclusions More evidence is needed to draw conclusions, but the findings indicate that the peer interactions of people with chronic conditions on social media are implicated in the ways in which people with chronic conditions equip themselves for clinical consultations, evaluate the information and advice provided by HCPs, and manage their relationships with HCPs. Future populations with chronic conditions will be raised in a digital world, and social media will likely remain a strategy for obtaining support and information. However, the generally low quality of the studies included in this review points to the relatively immature state of research exploring social media and its implications for people with chronic conditions–HCP relationships. Better study designs and methods for conducting research on social media are needed to generate robust evidence.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Study Selectionmentioning

confidence: 99%

mentioning

confidence: 99%

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When People With Chronic Conditions Turn to Peers on Social Media to Obtain and Share Information: Systematic Review of the Implications for Relationships With Health Care Professionals

Kjærulff¹,

Andersen²,

Kingod³

et al. 2023

J Med Internet Res

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Academic Surgery in the Era of Large Language Models

Rengers,

Thiels,

Salehinejad

2024

JAMA Surg

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ImportanceThis review aims to assess the benefits and risks of implementing large language model (LLM) solutions in an academic surgical setting.ObservationsThe integration of LLMs and artificial intelligence (AI) into surgical practice has generated international attention with the emergence of OpenAI’s ChatGPT and Google’s Bard. From an administrative standpoint, LLMs have the potential to revolutionize academic practices by reducing administrative burdens and improving efficiency. LLMs have the potential to facilitate surgical research by increasing writing efficiency, building predictive models, and aiding in large dataset analysis. From a clinical standpoint, LLMs can enhance efficiency by triaging patient concerns and generating automated responses. However, challenges exist, such as the need for improved LLM generalization performance, validating content, and addressing ethical concerns. In addition, patient privacy, potential bias in training, and legal responsibility are important considerations that require attention. Research and precautionary measures are necessary to ensure safe and unbiased use of LLMs in surgery.Conclusions and RelevanceAlthough limitations exist, LLMs hold promise for enhancing surgical efficiency while still prioritizing patient care. The authors recommend that the academic surgical community further investigate the potential applications of LLMs while being cautious about potential harms.

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Patient Information Needs and Decision-Making Before a Cardiac Implantable Electronic Device: A Qualitative Study Utilizing Social Media Data

Nicmanis,

Holmes,

Oxlad

et al. 2024

J Clin Psychol Med Settings

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The decision to receive a cardiac implantable electronic device (CIED) represents a challenging experience for patients. However, the majority of previous research has only considered retrospective accounts of patient experiences. This study aimed to use social media data to characterize the information sought by people anticipating or considering CIED implantation and factors that influence their decision-making experiences. A Python-based script was used to collect posts made to a community intended for discussions concerning CIEDs on the social media platform Reddit. Reflexive content analysis was used to analyze the collected data. From 799 posts collected, 101 made by 86 participants were analyzed. The reported median (range) age of participants was 34 (16–67), and most were anticipating or considering a pacemaker. Three overarching categories classified the data: “Use of social media to meet informational and other needs”; “Factors influencing acceptance of the need for implantation”; and “Specific concerns considered during decision-making.” Participants anticipating or considering a CIED predominantly sought experiential information. Among asymptomatic participants, doubts were prevalent, with acceptance being an influential factor in decision-making. Healthcare professionals should recognize the informational and emotional needs of prospective CIED patients and tailor support mechanisms to better facilitate their decision-making.

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An analysis of the diagnostic accuracy and peer‐to‐peer health information provided on online health forums for heart failure

Cited by 12 publications

References 54 publications

When People With Chronic Conditions Turn to Peers on Social Media to Obtain and Share Information: Systematic Review of the Implications for Relationships With Health Care Professionals

When People With Chronic Conditions Turn to Peers on Social Media to Obtain and Share Information: Systematic Review of the Implications for Relationships With Health Care Professionals

Academic Surgery in the Era of Large Language Models

Patient Information Needs and Decision-Making Before a Cardiac Implantable Electronic Device: A Qualitative Study Utilizing Social Media Data

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