2018
DOI: 10.1002/pd.5348
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An assessment of the general public's knowledge of fatal fetal anomalies

Abstract: This study identifies lack of accurate knowledge on FFA, its classification, diagnosis, survival, and supports available following a diagnosis of FFA among the general public. This knowledge deficit highlights the need for improved health information about FFA in antenatal education and public health campaigns to facilitate informed decision-making following a FFA diagnosis.

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Cited by 7 publications
(7 citation statements)
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“…While volunteers are willing to provide peer-to-peer support, they may lack the competence to respond appropriately to the needs of their peers (Department of Health and Children, 2010). This is of particular importance where Power et al (2018) highlighted the need for improved health information about FFA to respond to the lack of accurate knowledge on FFA, diagnosis, survival, and supports available among the general public. As previously suggested, inadequate support and care at the time of parent’s bereavement can result in long-lasting psychological effects.…”
Section: Discussionmentioning
confidence: 99%
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“…While volunteers are willing to provide peer-to-peer support, they may lack the competence to respond appropriately to the needs of their peers (Department of Health and Children, 2010). This is of particular importance where Power et al (2018) highlighted the need for improved health information about FFA to respond to the lack of accurate knowledge on FFA, diagnosis, survival, and supports available among the general public. As previously suggested, inadequate support and care at the time of parent’s bereavement can result in long-lasting psychological effects.…”
Section: Discussionmentioning
confidence: 99%
“…At that time, health care professionals could legally inform women of their care options and abortion services available in other jurisdictions and provide follow-up care following TOP (Medical Council, 2016). However, an Irish study revealed the limited knowledge the general public has regarding such follow-up care (Power et al, 2018). This potentially led to parents considering and deciding on a TOP for FFA seeking peer-to-peer support.…”
Section: Introductionmentioning
confidence: 99%
“…Within this study, information delivered would suggest that at times information in the media was misrepresented to create potential distortion. This creates concern as Power et al (2018) identified a lack of accurate knowledge on FFA among the general public and recommended the need for improved health information about FFA to facilitate informed decision-making.…”
Section: Discussionmentioning
confidence: 99%
“…Within this study, information delivered would suggest that at times information in the media was misrepresented to create potential distortion. This creates concern as Power et al (2018) identified a lack of accurate knowledge on FFA among the general public and recommended the need for improved health information about FFA to facilitate informed decision-making. This is of significant relevance as all media attention which focused on FFA, referred to the restrictive abortion laws in Ireland and significantly influenced and led the way to the recent referendum.…”
Section: Truth and Misrepresentationmentioning
confidence: 99%
“…Parents have the right to accurate and comprehensible information, on which they base their maternity care decisions . Power et al, however, identified that the Irish public has limited knowledge of FFA and demonstrated that there is much confusion around what conditions are associated with this term . This is no surprise when there is a lack of an agreed international definition of FFA …”
Section: Introductionmentioning
confidence: 99%