An Effective Communication Initiative: Using parents' experiences to improve the delivery of difficult news in the NICU

Macdonell, Kristy; Omrin, Danielle; Pytlik, Kasia; Pezzullo, Sam; Bracht, Marianne; Diambomba, Yenge

doi:10.1016/j.jnn.2015.01.002

Cited by 12 publications

(13 citation statements)

References 17 publications

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“…Thus, communication needs to include staff awareness of the broader issues and the ability to share information about those issues with parents. This is in contrast to other work on communication that focuses on the "here and now" of the parents' experiences [10,11,[13][14][15]29] or has focused on training physicians about research [30].…”

Section: Discussionmentioning

confidence: 86%

“…Improving stakeholder engagement and understanding of the importance and unique challenges of research in neonates requiring intensive care are important goals given the lack of evidence behind many therapies commonly used in the NICU. Establishing best practices for researchrelated communication will build on existing good practice for communication in general by extending the content of communication but also the methods of communication [10,11,[13][14][15]29].…”

Section: Discussionmentioning

confidence: 99%

“…INC's primary focus is on developing practical tools and processes to facilitate the conduct of ethical and efficient neonatal clinical trials. The literature describes communication in general on neonatal units [10][11][12][13][14][15] and challenges posed to parents and staff by research [16][17][18][19][20][21]. This literature includes some suggestions about how to improve communication in general but does not report on the application to neonates of insights from other specialties [22][23][24][25].…”

Section: Introduction and Statement Of The Problemmentioning

confidence: 99%

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The culture of research communication in neonatal intensive care units: key stakeholder perspectives

et al. 2021

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Objective To assess the perspectives of neonatologists, neonatal nurses, and parents on research-related education and communication practices in the neonatal intensive care unit (NICU). Study design Questionnaire circulated through interest groups and administered using the internet. Results 323 respondents responded to the survey. 52 were neonatologists, 188 were neonatal nurses, and 83 were parents of NICU graduates. Analysis was descriptive. Differences were noted between stakeholder groups with respect to whether current medications meet the needs of sick neonates, research as central to the mission of the NICU, availability of appropriate education/training for all members of the research team, and adequacy of information provided to parents before, during, and after a research study is completed. Conclusion Engagement of nurses and parents at all stages of NICU research is currently suboptimal; relevant good practices, including education, should be shared among neonatal units.

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Section: Discussionmentioning

confidence: 86%

Section: Discussionmentioning

confidence: 99%

Section: Introduction and Statement Of The Problemmentioning

confidence: 99%

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The culture of research communication in neonatal intensive care units: key stakeholder perspectives

et al. 2021

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“…Indeed, providing medical information and follow‐up allows parents to be involved in their child's decision‐making and care. It also promotes a sense of control over the situation, which is beneficial to the relationship with the healthcare professionals, the parents’ well‐being and that of their child 18,19 . Furthermore, it has been reported that the perception of shared decision‐making has been associated with lower grief scores in the long term, compared to paternalistic decision‐making 20 .…”

Section: Discussionmentioning

confidence: 99%

How doctors communicated with parents in a neonatal intensive care: Communication and ethical issues

et al. 2020

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Communication between doctors and their patients and families is one of the most important elements of medical care 1 for three key reasons. Firstly, it enables shared decision-making. 1,2 Secondly, it creates good inter-personal relationships, which is important because the perceived quality of these relationships can be regarded as a prerequisite for medical care. Thirdly, it promotes interaction between the relevant parties so that they can exchange information, ask questions and share views. The environment of the neonatal intensive care (NICU) presents healthcare staff and parents with particular challenges with regard to communication and information. It is important that parents are kept informed while their baby is in the NICU, because they are confronted with feelings of shock and stress and need to cope with fear and to deal with anticipation and uncertainty. 3-5 The parents' emotions have consequences with regard to their ability to concentrate,

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“…Parents reported that they wanted the information to be conveyed in an understandable and consistent manner and they wanted to be included in the decision-making process for the care of their baby. Respect for and responsiveness to the family's well-being, preferences, and cultural values is also important when providing services in a family-centered model (Macdonell et al, 2015).…”

Section: Discussionmentioning

confidence: 99%

The Effectiveness of Family Communication Strategies for Family Members with Health Problems: A Systematic Review

Riskika

Pertiwi²,

Primasari³

et al. 2020

DNHJ

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Introduction: Many things are done by a person to get peace in his life, but sometimes someone does not realize the importance of interacting with other people, in this case communication. Communication is very crucial in life, especially in family life. Someone who is experiencing illness also needs clear communication to help the healing process, be it communication with family or communication with health workers. Method: The literature search was carried out by looking for literature studies in Scopus and in ScienceDirect with the theme of communication in the family. Results: After applying the eligibility criteria in the review, the 15 studies that had been obtained were included. The 15 studies, it shows that the communication provided by the family to other family members is very important in supporting the recovery of a sick family member, even a baby who is sick will gradually improve if he gets good communication from his mother, in the form of communication with physical contact. and attachment. The study of communication is important considering that many do not understand that communication is very important in life. Effective and open communication is also one of the keys to achieving a harmonious life in the family. Conclusion: Effective and open communication is important to apply, especially in family life, and also in the hospital environment, good communication between health workers, patients and families will help heal patients who are experiencing illness

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An Effective Communication Initiative: Using parents' experiences to improve the delivery of difficult news in the NICU

Cited by 12 publications

References 17 publications

The culture of research communication in neonatal intensive care units: key stakeholder perspectives

The culture of research communication in neonatal intensive care units: key stakeholder perspectives

How doctors communicated with parents in a neonatal intensive care: Communication and ethical issues

The Effectiveness of Family Communication Strategies for Family Members with Health Problems: A Systematic Review

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