An eHealth insomnia intervention for children with neurodevelopmental disorders: Results of a usability study

Tan-MacNeill, Kim M.; Smith, Isabel M.; Weiss, Shelly K.; Johnson, Shannon A.; Chorney, Jill; Constantin, Evelyn; Shea, Sarah; Hanlon‐Dearman, Ana; Brown, Cary A.; Ipsiroglu, O.; Reid, Graham J.; Corkum, Penny

doi:10.1016/j.ridd.2020.103573

Cited by 20 publications

(17 citation statements)

References 33 publications

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“…24 The Better Nights/Better Days project analyzed five weekly telephone coaching sessions delivered by trained sleep coaches and found an improvement in sleep measures compared with the waiting-list control group with participants reporting the intervention to be usable, useful, acceptable, and feasible. 22,23 The use of a combination of a video platform for the initial assessment and phone call follow-up for delivery of support in our study has shown similar success in terms of sleep and well-being outcome measures and has confirmed that the video platform was accessible to parents with the additional benefit that the sleep practitioner was able to watch children and their environment during the assessment.…”

Section: Discussionsupporting

confidence: 62%

“…19 The use of more interactive methods, such as cognitive behavioural therapy for insomnia for children and adolescents 20 using videos, automated and written feedback, interactive questionnaires, and individualized advice showed, in a randomized controlled trial, that the children who received this advice had significantly improved sleep compared to the waiting-list control group, although total sleep time did not change. Three studies on direct remote health care also showed improvements in sleep outcomes [21][22][23] as well as improved access to families. 24 An online teaching program that was identical to the face-to-face program led to improvement in sleep scores, similar to the face-to-face group and decreased the number of overnight awakenings.…”

Section: Discussionmentioning

confidence: 98%

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The “Sleep Well, Lincolnshire” Project: Evaluation of an Online Sleep Practitioner Clinic

Elphick

Earley²,

Tyas³

et al. 2021

J Sleep Med

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Objectives: Poor sleep is associated with adverse outcomes during childhood. Behavioral insomnia is the most common sleep difficulty experienced by children. The coronavirus disease 2019 (COVID-19) global pandemic in 2020 has profoundly affected children’s sleep patterns. This project aimed to evaluate a one-toone sleep service delivered via online clinics by community sleep practitioners in the UK.Methods: This was an observational pre- and post-evaluation study over a 12-month period. The intervention derived from aspects of cognitive-behavioral therapy for insomnia. The evaluation was questionnaire-based and assessed sleep parameters and well-being.Results: 104 parents returned completed questionnaires. The average time of sleep onset was 1 hour and 39 minutes pre-intervention and 20 minutes post-intervention. The average number of nights per week that children woke up was 3.9 pre-intervention and 0.9 post-intervention; the number of night awakenings fell from 1.9 to 0.5 and the time that children were awake after sleep onset fell from 66.8 minutes to 5.8 minutes. The average time that children were asleep was 8.0 hours per night pre-intervention and 10.2 hours post-intervention. The improvement in all sleep parameters was statistically significant (p<0.05). All parameters of parental and children’s well-being improved significantly (p<0.05), except for perceived ability to drive (p=0.07). All parents stated that they would recommend sleep support and 20% already had done so.Conclusions: The COVID-19 pandemic has accelerated the development of remote health care solutions, and in the case of children’s sleep clinics, the online mode of intervention delivery that is as effective, acceptable, and accessible as face-to-face delivery.

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Section: Discussionsupporting

confidence: 62%

Section: Discussionmentioning

confidence: 98%

The “Sleep Well, Lincolnshire” Project: Evaluation of an Online Sleep Practitioner Clinic

Elphick

Earley²,

Tyas³

et al. 2021

J Sleep Med

View full text Add to dashboard Cite

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“…In addition to the inclusion of pertinent content, conveying families' experiences was also achieved through imaginative, animated videos giving personal perspectives of parents and children, as well as by including trouble-shooting and frequently asked questions (FAQs) pages specifically covering key issues or concerns for this clinical group. As has been found in other studies (e.g., Tan-MacNeill et al, 2020), parents suggested that the inclusion of this relevant content would add credibility to the material and ideas presented as part of COSI and help parents feel that this was something that they could, and wanted to, engage with.…”

Section: Discussionmentioning

confidence: 59%

Development and Evaluation of the CASTLE Trial Online Sleep Intervention for Parents of Children with Epilepsy

et al. 2021

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Introduction: Many of the sleep problems experienced by children with epilepsy (CWE) have the same behavioural basis as common sleep problems seen in typically developing (TD) children. Behavioural sleep interventions (BSIs) are widely used to treat these sleep problems in TD children and are hypothesised to be effective for CWE. However, specific considerations need to be addressed and incorporated into a BSI for CWE to ensure the intervention is tailored to this population's needs. This paper details developing and tailoring an online BSI for parents of CWE, to be used in the CASTLE (Changing Agendas on Sleep, Treatment and Learning in Epilepsy) Sleep-E clinical trial.Method: In phase one, two existing theory-driven paediatric BSIs were adapted into a novel online behavioural sleep intervention (CASTLE Online Sleep Intervention or COSI) which specifically incorporated the needs and requirements reported by nine parents of CWE. Scoping their needs included conducting interviews with three CWE so that they could contribute to the overall intervention content. In phase two, six of these parents evaluated COSI, reviewing and feeding back on COSI until parental approval for content and functionality was achieved.Results: In phase one, a range of adaptations was made to the content and presentation of standardised intervention material to acknowledge and emphasise the key seizure-specific issues to ensure COSI best met parents of CWE's needs. Adaptations included embedding parent and child experiences in the intervention, including particular information requested by parents, such as the links between sleep and seizures and managing child and parental anxieties around sleep, as well as developing functionality to personalise the delivery of content. In phase two, parents confirmed that they found the final version of COSI to be functional and appropriate (after one round of review) for use by parents of CWE and that 100% would recommend it to other families who have CWE.Discussion: It is hoped that the use of evidence-based BSIs, adapted to consider salient epilepsy-specific factors, will increase parent-engagement, COSI's relevance for this particular patient group and overall efficacy in improving sleep in CWE. The effectiveness of COSI will be tested in the CASTLE Sleep-E clinical trial (https://castlestudy.org.uk/).

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“…Tan-MacNeilla et al [47] evaluated whether parents of children with neurodevelopmental disorders (NDD) perceived the Better Nights, Better Days (BNBD) intervention as usable, acceptable, and feasible. To evaluate these aspects, the authors created questionnaires for before and after the intervention, which were completed by the users.…”

Section: Ux-related Researchmentioning

confidence: 99%

User Experience Factors for People with Autism Spectrum Disorder

2021

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Autism Spectrum Disorder (ASD) is a condition characterized by difficulties with social interaction and communication. Studies show that people with ASD tend to enjoy using technology, as it provides them with a safe and trustworthy environment. Evaluating User eXperience (UX) in people with disabilities has been a challenge that studies have addressed in recent times. Several studies have evaluated the usability and UX of systems designed for people with ASD using evaluation methods focused on end users without disabilities. In reviewing studies that evaluate systems designed for people with ASD, considering the characteristics of these users, we discovered a lack of particularized UX models. We present a proposal of nine UX factors for people with ASD based on two approaches: (1) the characteristics, affinities, and needs of people with ASD, and (2) design guidelines and/or recommendations provided in studies on technological systems for people with ASD and/or interventions with these users. The nine UX factors for people with ASD provide a theoretical basis from which to adapt and/or create UX evaluation instruments and methods and to generate recommendations and/or design guidelines that are adequate for this context.

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An eHealth insomnia intervention for children with neurodevelopmental disorders: Results of a usability study

Cited by 20 publications

References 33 publications

The “Sleep Well, Lincolnshire” Project: Evaluation of an Online Sleep Practitioner Clinic

The “Sleep Well, Lincolnshire” Project: Evaluation of an Online Sleep Practitioner Clinic

Development and Evaluation of the CASTLE Trial Online Sleep Intervention for Parents of Children with Epilepsy

User Experience Factors for People with Autism Spectrum Disorder

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