An Evaluation of a Family-centred Support Service for Children with a Significant Learning Disability

Measures for social support in raising a child with a disability: A scoping review

“…Skok et al () defined social support relating to its effects on stress as a buffer to create coping mechanisms for the caregiver. Fordham, Gibson, and Bowes () used a concrete definition referring to the types of support, whereas Pfeifer et al () referred to the satisfaction with support received and Truesdale‐Kennedy, Mcconkey, Ferguson, and Roberts () referred to the amount of support received. These various definitions of social support are critical to our understanding of this construct and the different aspects thereof.…”

Questioning the Suitability of Traditional Self-Report Family Functioning Measures for Single-Parent Families with Young Children

“…Since its development it has been used in hundreds of studies throughout the world and it has been translated into more than 20 languages (see Ryan et al, 2005). The FAD is a 60-item self-report instrument that comprises six scales that coincide with the six dimensions of family functioning in the theoretical model as well as a seventh scale, General Functioning, which measures overall functioning of the family and is often used by researchers instead of the full FAD (e.g., Truesdale-Kennedy, McConkey, Ferguson, & Roberts, 2006;Wallander, Dekker, & Koot, 2006). 2 Each of the seven scales comprises between 6 and 12 items, with equal numbers of items reflecting healthy and unhealthy functioning.…”

Barriers to non-residential respite care for adults with moderate to complex needs: A UK perspective

“…Carers may instead rely on informal networks, including friends, family, other contacts and the internet (Redmond and Richardson, 2003;Wodehouse and McGill, 2009). Research by both Redmond and Richardson (2003) and Truesdale-Kennedy et al (2006) suggests that dedicated services may be an effective method for providing carers with information, advocacy and support to avail essential services, including respite. However, the apparent information deficit may be a "smokescreen" to cover the gap between the aims of ambitious political programmes and limited resources to fund them properly (Power, 2009: :94).…”

“…'Person centred planning' discourses advocate that respite should be tailored to the needs of service users, not the state, and be delivered with a commitment to the family (Petr and Barney, 1991;Truesdale-Kennedy et al, 2006;Wilkie and Barr, 2008;HM Government, 2008;Mansell and Wilson, 2010). More emphasis on addressing individual family and service user need through "adopting a needs-led philosophy" in the delivery of respite is promoted as central to meeting the needs of families (Wodehouse and McGill, 2009;Truesdale-Kennedy et al, 2006) and delivering more cost effective services (Cotterill et al, 1997: :785;McConkey et al, 2011b). 'Consumer directed care' -in which service users and carers control their own care budget and make choices about the services they access, including who will deliver the services and when -has arisen as part of the drive to give service users and carers more choice and flexibility in respite (Redmond and Richardson, 2003).…”

“…This can include day-trips, short-breaks, leisure activities, and overnight stays in community settings (Caples and Sweeney, 2011;Cotterill et al, 1997), as well as overnight stays in residential accommodation more traditionally associated with respite. 'Person centred planning' discourses advocate that respite should be tailored to the needs of service users, not the state, and be delivered with a commitment to the family (Petr and Barney, 1991;Truesdale-Kennedy et al, 2006;Wilkie and Barr, 2008;HM Government, 2008;Mansell and Wilson, 2010). More emphasis on addressing individual family and service user need through "adopting a needs-led philosophy" in the delivery of respite is promoted as central to meeting the needs of families (Wodehouse and McGill, 2009;Truesdale-Kennedy et al, 2006) and delivering more cost effective services (Cotterill et al, 1997: :785;McConkey et al, 2011b).…”