An expanded Transactional Stress and Coping Model for siblings of children with sickle cell disease: family functioning and sibling coping, self‐efficacy and perceived social support

Gold, Jeffrey I.; Treadwell, Marsha; Weissman, Lina; Vichinsky, Elliott

doi:10.1111/j.1365-2214.2008.00810.x

Cited by 29 publications

(28 citation statements)

References 45 publications

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“…Other researchers have examined the psychosocial adjustment of healthy school-age siblings of children with sickle-cell disease or severe emotional disturbances. These studies documented multiple factors within the family, such as support, expressiveness, low levels of conflict, family cohesion, and the quality of the sibling relationship, as factors that contributed to adjustment by healthy children (Gold, Treadwell, Weissman, & Vichinsky, 2008; Kilmer, Cook, Taylor, Kane, & Clark, 2008). …”

Section: Discussionmentioning

confidence: 99%

Caregiving by Teens for Family Members With Huntington Disease

et al. 2009

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The purpose of this report is to describe caregiving by teens for family members with Huntington disease (HD). Thirty-two teens in HD families in the United States and Canada participated in focus groups from 2002 to 2005 in a study to identify concerns and strategies to manage concerns. An unexpected finding was 24 (77%) described caregiving activities. Descriptive analysis of caregiving statements identified themes of Tasks and Responsibilities, Subjective Burden, Caregiving in Context of Personal Risk for HD, and Decisional Responsibility. Teens took an active part in nearly all aspects of care with the exception of contacting health care providers and attending doctors’ appointments. Some described emotional distress, and many provided care knowing they had the potential to develop HD. Teens recognized the need for decisions but lacked the authority to make these decisions. Findings may be relevant for other teens who strive to meet caregiver and student roles and developmental tasks.

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Section: Discussionmentioning

confidence: 99%

Caregiving by Teens for Family Members With Huntington Disease

et al. 2009

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“…Such questions may measure the social interactions people have with others in general, but such questions are too vague to measure social support for people with chronic health conditions. Gold et al (2008) divided social support into two dimensions: perceived positive regard from significant others and emotional support. Kang (2007) identified four dimensions of social support: personal network, estrangement, alienation and personal reliance, but did not define well how these dimensions were conceptualized and measured.…”

Section: Deficiencies In Social Support Researchmentioning

confidence: 99%

The social support model for people with chronic health conditions: A proposal for future research

Frohlich

2014

Soc Theory Health

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Social support is an important component of health care for people with chronic health conditions. Previous research has described the types of messages created in support groups and found evidence for positive health outcomes of social support. Social support has been conceptualized in myriad ways, however, making it difficult to have a unified body of research. I propose a model to explain how the social support process works for people with chronic health conditions. I articulate what facets of the social support process need more study, and how the support environment should be conceptualized. Researchers should study a person's entire support environment, rather than isolated support groups, as research has often been limited to in the past, taking into account the particular issues of any chronic illness.

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“…B. Gold, Treadwell, Weissman, Vichinsky, 2007;Houtzager, Grootenhuis, Hoekstra-Weebers, Last, 2005). Achilles, I.…”

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Hampel

Salisch²

2017

Praxis der Kinderpsychologie und Kinderpsychiatrie

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An expanded Transactional Stress and Coping Model for siblings of children with sickle cell disease: family functioning and sibling coping, self‐efficacy and perceived social support

Abstract: Findings suggest that family-centered interventions stressing family expressiveness and support, while minimizing conflict, will contribute to sibling psychological adjustment.

Cited by 29 publications

References 45 publications

Caregiving by Teens for Family Members With Huntington Disease

Caregiving by Teens for Family Members With Huntington Disease

The social support model for people with chronic health conditions: A proposal for future research

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