An Exploration of Dyadic Relationship Approach-Avoidance Goals and Relationship and Sexual Satisfaction in Couples Coping with Endometriosis

McKay, Cheryl Leigh; Niekerk, Leesa Van; Matthewson, Mandy

doi:10.1007/s10508-021-02150-1

Cited by 9 publications

(4 citation statements)

References 49 publications

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“…The list of symptoms was derived from commonly reported endometriosis-related symptoms (e.g. DiVasta et al, 2018; McKay et al, 2021) and the distress rating scale is consistent with validated distress measures (e.g. Pilkonis et al, 2011).…”

Section: Methodsmentioning

confidence: 99%

“…Pain-related symptoms including dyspareunia are commonly reported (Giudice and Kao, 2004). Persistent pelvic pain is strongly associated with endometriosis as lesions most commonly develop in the pelvic region, and the debilitating effects on women’s sexual functioning and quality of life are well-established (Facchin et al, 2015; McKay et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

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Health-related quality of life in endometriosis: The influence of endometriosis-related symptom presence and distress

2022

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This international cross-sectional study examined the relationships between endometriosis-related symptom experience and health-related quality of life (HRQoL) in 318 women with endometriosis. Measures of symptom burden and distress, pain, psychological wellbeing, and HRQoL were collected via an online survey. Age, symptom duration, burden, and distress were associated with lower psychological wellbeing and HRQoL, with small to medium effect sizes. Somatic concern, depression, pain, dysmenorrhea, clitoral pain, dyspareunia, and bloating were found to be significant correlates of HRQoL. The findings highlight the importance of considering a broader range of endometriosis-related symptoms than pain alone and the ongoing need to reduce diagnostic delay in endometriosis.

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Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Health-related quality of life in endometriosis: The influence of endometriosis-related symptom presence and distress

2022

Self Cite

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“…Dyadic coping in couples living with chronic illness is associated with better physical health, well-being, and overall relationship satisfaction [ 80 ]. In couples dealing with endometriosis, McKay et al [ 81 ] also discovered a link between higher levels of perceived emotional intimacy and the relationship satisfaction of both partners. Overcoming the joint struggle of living with endometriosis could even serve as an opportunity for mutual growth, creating a stable, lasting relationship [ 46 ].…”

Section: Systems For Social Processesmentioning

confidence: 99%

Understanding Psychological Symptoms of Endometriosis from a Research Domain Criteria Perspective

Stein

Schubert

Ditzen

et al. 2023

JCM

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Endometriosis is currently the second most common gynecological disease and is associated with severe pain, vegetative impairment, and infertility. In association, there are considerable psychological symptoms that limit the quality of life of those affected. In this narrative review, the Research Domain Criteria (RDoC) framework was utilized to display the different transdiagnostic processes involved in disease progression and maintenance in regard to psychosocial functioning. Using the RDoC framework, it becomes clear that immune/endocrinological dysregulation is interlocked with (pelvic) pain chronification processes and psychological symptoms such as depressive mood, loss of control, higher vigilance toward the onset or worsening of symptoms, social isolation, and catastrophizing. This paper will discuss and identify promising treatment approaches, in addition to medical care, as well as further research implications. Endometriosis can come with substantial psychosomatic and social burden, requiring more research to understand the interdependence of different factors involved in its chronic development pathway. However, it is already clear that standard care should be extended with multifaceted treatments addressing pain, as well as the psychological and social burden, in order to halt the cycle of aggravation of symptoms and to improve quality of life for patients.

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“…People with endometriosis often need to seek regular care from general practitioners, medical specialists (e.g., gynaecologists), allied health providers (e.g., mental health practitioners, and physiotherapists) and complementary therapists (e.g., massage therapists and acupuncturists)(R. O'Hara et al, 2020). Similarly, McKay et al (2021) found that individuals with symptomatic endometriosis reported engaging in multiple management options including pelvic physiotherapy (26%) and psychology (24%), with only 8% of the sample indicating that they were not engaged in active treatment (McKay, Van Niekerk, & Matthewson, 2021). In addition to seeking out support from health professionals, many of those with endometriosis are also self-managing by changing diets (Armour, Middleton, et al, 2021) or using cannabis medicinally (Sinclair et al, 2019).…”

Section: Self-management For Endometriosis Symptomsmentioning

confidence: 99%

Lessons from implementing the Australian National Action Plan for Endometriosis

Armour

Leonardi

Niekerk

et al. 2022

Reproduction and Fertility

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Endometriosis is a common yet under-recognised chronic disease with 1 in 9 (more than 830,000) women and those assigned female at birth diagnosed with endometriosis by the age of 44 years in Australia. In 2018 Australia was the first country to develop a roadmap and blueprint to tackle endometriosis in a nationwide, co-ordinated manner. This blueprint is outlined in the National Action Plan for Endometriosis (NAPE), created from a partnership between government, endometriosis experts and advocacy groups. The NAPE aims to improve patient outcomes in the areas of awareness and education, clinical management and care and research. As researchers and clinicians working to improve the lives of those with endometriosis, we discuss our experiences since the launch of the plan to highlight areas of consideration by other countries when developing research priorities and clinical plans. Historically, major barriers for those with endometriosis have been twofold; firstly, obtaining a diagnosis and secondly, effective symptom management post-diagnosis. In recent years, there have been calls to move away from the historically accepted “gold-standard” surgical diagnosis and single provider specialist care. As there are currently no reliable biomarkers for endometriosis diagnosis, specialist endometriosis scans and magnetic resonance imaging incorporating artificial intelligence offer a novel method of visualisation and promising affordable non-invasive diagnostic tool incorporating well established technologies. The recognised challenges of ongoing pain and symptom management, a holistic interdisciplinary care approach and access to a chronic disease management plan, could lead to improved patient outcomes while reducing healthcare cost.

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An Exploration of Dyadic Relationship Approach-Avoidance Goals and Relationship and Sexual Satisfaction in Couples Coping with Endometriosis

Cited by 9 publications

References 49 publications

Health-related quality of life in endometriosis: The influence of endometriosis-related symptom presence and distress

Health-related quality of life in endometriosis: The influence of endometriosis-related symptom presence and distress

Understanding Psychological Symptoms of Endometriosis from a Research Domain Criteria Perspective

Lessons from implementing the Australian National Action Plan for Endometriosis

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