2020
DOI: 10.1093/trstmh/traa090
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An exploration of family quality of life in persons with leprosy-, lymphatic filariasis– and podoconiosis-related disabilities and their family members in Ethiopia

Abstract: Background Leprosy, podoconiosis and lymphatic filariasis (LF) may adversely affect the social, economic and psychological well-being of persons affected and their families. The objectives of this study were to assess and compare family quality of life of persons affected and their family members, explore the relationship between family quality of life and perceived stigma and activity limitations and explore what factors influence family quality of life. … Show more

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Cited by 8 publications
(10 citation statements)
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“…Finally, BC-FQoL total scores are higher among persons affected by leprosy in comparison to persons with podoconiosis. This finding supported by the study done in Ethiopia [57] persons affected by podoconiosis more stigmatized and discriminate than persons affected by leprosy. Persons affected by leprosy were association members that gave chance of getting support from the peers and this provide sense of empowerment [62].…”
Section: Discussionsupporting
confidence: 80%
See 1 more Smart Citation
“…Finally, BC-FQoL total scores are higher among persons affected by leprosy in comparison to persons with podoconiosis. This finding supported by the study done in Ethiopia [57] persons affected by podoconiosis more stigmatized and discriminate than persons affected by leprosy. Persons affected by leprosy were association members that gave chance of getting support from the peers and this provide sense of empowerment [62].…”
Section: Discussionsupporting
confidence: 80%
“…In this validation study, the mean total score of BC-FQoL scale is higher in male participants. This is supported by the study conducted in Ethiopia [57]. Because females engaged more in caregiver stress and not taking on major social roles in education and employment [58].…”
Section: Discussionmentioning
confidence: 76%
“…[12][13][14][15][16] Stigma is also associated with low self-esteem, low mental wellbeing, and reduced quality of life of persons affected. [17][18][19] People who are stigmatised, such as persons affected by leprosy, often experience intersecting forms of stigma. This means they have multiple stigmatized identities such as their gender, class, (dis)ability and socioeconomic status -which can exacerbate their experiences of stigma.…”
Section: Introductionmentioning
confidence: 99%
“…Social consequences of all three conditions may include reduced work and education opportunities, social isolation, exclusion and problems in interpersonal relationships, including marital problems. 15–18 Psychological consequences may include feelings of shame, low self-esteem, mental distress, depression, anxiety, and decreased individual and family quality of life. 15–18 In addition, these conditions may impose a social and economic burden on families.…”
Section: Introductionmentioning
confidence: 99%
“… 15–18 Psychological consequences may include feelings of shame, low self-esteem, mental distress, depression, anxiety, and decreased individual and family quality of life. 15–18 In addition, these conditions may impose a social and economic burden on families. 16 19 Family members may also experience stigma.…”
Section: Introductionmentioning
confidence: 99%