An exploratory study of young carers and their families in New Zealand

McDonald, Janet; Cumming, Jacqueline; Dew, Kevin

doi:10.1080/1177083x.2009.9522448

Cited by 20 publications

(53 citation statements)

References 14 publications

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“…Study findings also confirm that care is provided for chronically ill mothers in the majority of cases [5,15]; the results on this aspect vary between 67 and 75% [12,13,[16][17][18][19][20]. Apart from the mothers, it is often the grandmother who receives care from young carers, followed by chronically ill siblings.…”

Section: Characteristic Values Of Young Carerssupporting

confidence: 67%

“…The results presented by Nagl-Cupal et al [5] also show the enormous amount of time that young carers spend on supporting their families; they identified great differences between non-caregiving and caregiving children in [17,23]. The amount of these tasks depends on the care and support needed, and varies according to the course of the disease and the stress involved [13,15,19,24]. According to the Austrian school survey [5], 15% of the children and young carers are very often completely on their own with their caregiving duties.…”

Section: Characteristic Values Of Young Carersmentioning

confidence: 87%

“…The negative emotions range from anxiety and guilt up to embarrassment through the affected family member. Fear both for [15,27] and of the parents are typical for these children. They suffer when the parents are in pain or react with extreme anxiety if acute danger to life occurs.…”

Section: Emotional Impactmentioning

confidence: 99%

“…Apart from the mothers, it is often the grandmother who receives care from young carers, followed by chronically ill siblings. Less often do young carers care for male members of the family [5,15,21].…”

Section: Characteristic Values Of Young Carersmentioning

confidence: 99%

“…This includes the emotional and practical support for other members of the family [5,14,15,19,21,[23][24][25][26][27][28]. Two of the included studies developed a categorical system from their available data [13,19].…”

Section: Characteristic Values Of Young Carersmentioning

confidence: 99%

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Young carers: growing up with chronic illness in the family - a systematic review 2007-2017

Chikhradze

Knecht

Metzing

2017

J of Compassionate Health Care

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Background: Young carers are children or young people who look after family members who are ill or have disabilities. They take over similar caregiving responsibilities to those of adult family carers and need special support. The purpose of this literature review was to summarize the body of knowledge about young carers' lives with a special focus on their personal experiences, impact of caring, needs and coping behaviors. Method: A systematic review was carried out, including quantitative and qualitative studies as well as reviews published in English or German. The following databases were searched: Cinahl, Embase®, PubMed®, Gesis sowiport, ERIC®, Cochrane Library, Pubpsych, PsychArticles (1/2007 to 6/2017). The Critical Appraisal Skills Programme (CASP) and the methodology checklist NICE were used to assess the literature. Results: After appraisal, 25 studies which considered young carers between four and 25 years of age were included. Studies reported that many children in families with chronically ill members are highly involved in caring. Due to this responsibility, they spend most of their time at home. Although the caregiving experiences are pervasive, the children conceal the conditions of their relatives from others. They also do not want to be identified as young carers. Thus, their social experiences are limited. These children or adolescents would like to live a "normal live". They prioritize their family member's needs over their own. They would like professional support, which recognizes the real needs of their family members.Conclusions: This systematic review shows that since 2007 the situation of affected children and adolescents has achieved an important place in international research and also in German-language countries. Based on the included studies, it has been possible to identify theoretical models that help to describe and explain the phenomenon of young carers. In order to provide appropriate support and interventions, it is of importance for the professionals to know and consider that a family-oriented perspective is vital.

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Section: Characteristic Values Of Young Carerssupporting

confidence: 67%

Section: Characteristic Values Of Young Carersmentioning

confidence: 87%

Section: Emotional Impactmentioning

confidence: 99%

Section: Characteristic Values Of Young Carersmentioning

confidence: 99%

Section: Characteristic Values Of Young Carersmentioning

confidence: 99%

See 3 more Smart Citations

Young carers: growing up with chronic illness in the family - a systematic review 2007-2017

Chikhradze

Knecht

Metzing

2017

J of Compassionate Health Care

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Change and Adaptation in Families with Young Carers

McDonald¹,

Dew²,

Cumming³

2010

Aust J Social Issues

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Using grounded theory methodology, members of nine families with 'young carers' were interviewed to explore their experiences of caring. A dynamic theory of change and adaptation emerged in relation to changes in who cares within families, in external support and in the attitudes of young carers towards caring. Adaptations included becoming used to the way life is, knowing how to care, balancing and trading off, rewarding care, and anticipating future adaptations. A model has been developed to offer an explanation of factors which influence young caring in families. These include family expectations about caring; who is available to care; the willingness and capability of young carers to help; and the degree of choice or obligation they experience. Formal and informal support services from outside the family, and environmental adaptations, can reduce the amount of family caregiving required, increase choice and contribute to balancing life for carers.

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Are there young carers in oncology? A systematic review

et al. 2021

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Objective This systematic review aims to investigate the support children provide in the case of a relative's cancer. Methods Searches were performed on four electronic databases (Embase, PsycINFO, PubMed and ScienceDirect) to identify studies that report on the support provided by children to a relative diagnosed with cancer. Two researchers independently evaluated the eligibility of the studies and cross‐checked them for accuracy. The Crowe Critical Appraisal Tool (CCAT) was used to assess the quality of the studies included. Results Out of the 10948 articles screened, 30 were included in this review. Results highlighted that cancer provokes changes in families, such as shifts in roles and increased responsibilities for the youth. Children often provided significant support to their sick relative and family members, including practical, emotional, and medical support such as household duties, medical assistance, companionship, and distraction. However, they were designated as young carers in only one study. The support provided was associated with negative effects such as stress and fatigue, and with positive effects such as increased empathy and independence. Children wished to support their family but also named several needs, such as time for themselves and the opportunity to enjoy their childhood. Conclusion The results of this systematic review highlight the importance of taking into account the support provided by young people facing the cancer of a relative and designating them as young carers. Much remains to be accomplished to officially recognize their role and to support them properly.

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An exploratory study of young carers and their families in New Zealand

Cited by 20 publications

References 14 publications

Young carers: growing up with chronic illness in the family - a systematic review 2007-2017

Young carers: growing up with chronic illness in the family - a systematic review 2007-2017

Change and Adaptation in Families with Young Carers

Are there young carers in oncology? A systematic review

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