An in-depth mixed-methods approach to Ryan White HIV/AIDS care program comprehensive needs assessment from the Northeast Georgia Public Health District: The significance of patient privacy, psychological health, and social stigma to care

Huff, Amber; Chumbler, Neale R.; Cherry, Colleen O'Brien; Hill, Miranda; Veguilla, Vic

doi:10.1016/j.evalprogplan.2015.01.003

Cited by 9 publications

(6 citation statements)

References 16 publications

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“…For some people, a structured and interactive approach may be needed to help them weigh the implications of disclosure options and make decisions that are best for them. The findings from the open-ended responses reinforced the importance of peer-based support, a strategy for supporting people living with HIV that is highly favored in the literature [34][35][36]. In our study, respondents living with HIV had more experience and were more confident in supporting workplace decision-making than respondents who are not living with HIV.…”

Section: Discussionsupporting

confidence: 72%

Supporting choices about HIV disclosure in the workplace: A cross-Canada survey of strategies

Restall

Simms

Etcheverry

et al. 2019

WOR

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BACKGROUND: People living with human immunodeficiency virus (HIV) often make highly personal decisions about whether or not to disclose their HIV status in the workplace. OBJECTIVE: We aimed to determine current practices that support people living with HIV to make workplace disclosure decisions and to understand factors that affect disclosure decision-making. METHODS: Ninety-four people who provide health, social and peer-based services responded to an on-line survey about their experiences supporting workplace disclosure decisions of employees living with HIV. RESULTS: Respondents identified a range of strategies to support workplace disclosure decision-making. One-third of respondents were only a little or not confident in their abilities to support people in making disclosure decisions and 32% expressed little or no confidence in the resources available. Respondents working at HIV-specific organizations, as compared to respondents not working at those organizations, were more confident supporting people with disclosure decisions and in available resources, p < .05. Perceived barriers to disclosure decisions included stigma, lack of knowledge, and personal factors. Supports for decision-making resided within personal, workplace and societal contexts. CONCLUSIONS: The study provides important understanding about the complexity of disclosure decision-making and strategies that people living with HIV can use to address this complex issue.

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Section: Discussionsupporting

confidence: 72%

Supporting choices about HIV disclosure in the workplace: A cross-Canada survey of strategies

Restall

Simms

Etcheverry

et al. 2019

WOR

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“…11,12 These consequences may be especially pronounced for individuals residing in the US South, where the population has less exposure to HIV education and prevention strategies coupled with the highest HIV infection rates in the US. [15][16][17] To address these problems, stigma-reduction interventions for healthcare settings-targeting individual, environmental, and policy levels-have been developed and tested in various settings around the globe. 11,18 In their review of this literature, Nyblade et al 11 identified strategies to achieve stigma reduction targeting each level.…”

Section: Introductionmentioning

confidence: 99%

Adaptation and Implementation of an Intervention to Reduce HIV-Related Stigma Among Healthcare Workers in the United States: Piloting of the FRESH Workshop

Batey

Whitfield

Mulla

et al. 2016

AIDS Patient Care and STDs

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HIV-related stigma has been shown to have profound effects on people living with HIV (PLWH). When stigma is experienced in a healthcare setting, negative health outcomes are exacerbated. We sought to assess the feasibility and acceptability of a healthcare setting stigma-reduction intervention, the Finding Respect and Ending Stigma around HIV (FRESH) Workshop, in the United States. This intervention, adapted from a similar strategy implemented in Africa, brought together healthcare workers (HW) and PLWH to address HIV-related stigma. Two pilot workshops were conducted in Alabama and included 17 HW and 19 PLWH. Participants completed questionnaire measures pre- and post-workshop, including open-ended feedback items. Analytical methods included assessment of measures reliability, pre-post-test comparisons using paired t-tests, and qualitative content analysis. Overall satisfaction with the workshop experience was high, with 87% PLWH and 89% HW rating the workshop "excellent" and the majority agreeing that others like themselves would be interested in participating. Content analysis of open-ended items revealed that participants considered the workshop informative, interactive, well-organized, understandable, fun, and inclusive, while addressing real and prevalent issues. Most pre- and post-test measures had good-excellent internal consistency reliability (Cronbach's alphas ranging from 0.70 to 0.96) and, although sample sizes were small, positive trends were observed, reaching statistical significance for increased awareness of stigma in the health facility among HW (p = 0.047) and decreased uncertainty about HIV treatment among PLWH (p = 0.017). The FRESH intervention appears to be feasible and highly acceptable to HW and PLWH participants and shows great promise as a healthcare setting stigma-reduction intervention for US contexts.

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“…People living in rural areas of the United States and its territories often have less access to resources and services for the management of chronic illness than people living in nonrural areas. People living with HIV (PLWH) in rural areas potentially have additional barriers including: isolating stigmas (related to one or more factors including having HIV, sexual orientation, substance use, poverty, race/ethnicity), increased risk of breaks in confidentiality, and fear of being victimized or ostracized within the rural community for disclosure of a stigmatized characteristic …”

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confidence: 99%

Differences in Selected HIV Care Continuum Outcomes Among People Residing in Rural, Urban, and Metropolitan Areas—28 US Jurisdictions

Nelson

Kinder

Johnson

et al. 2016

The Journal of Rural Health

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An in-depth mixed-methods approach to Ryan White HIV/AIDS care program comprehensive needs assessment from the Northeast Georgia Public Health District: The significance of patient privacy, psychological health, and social stigma to care

Cited by 9 publications

References 16 publications

Supporting choices about HIV disclosure in the workplace: A cross-Canada survey of strategies

Supporting choices about HIV disclosure in the workplace: A cross-Canada survey of strategies

Adaptation and Implementation of an Intervention to Reduce HIV-Related Stigma Among Healthcare Workers in the United States: Piloting of the FRESH Workshop

Differences in Selected HIV Care Continuum Outcomes Among People Residing in Rural, Urban, and Metropolitan Areas—28 US Jurisdictions

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