An Integrative Systems Approach to Enhancing Service Delivery for Individuals with Complex Needs

Pei, Jacqueline; Poth, Cheryl; Tremblay, Mélissa; Walker, Meghan A.

doi:10.1007/s40474-021-00223-3

Cited by 10 publications

(16 citation statements)

References 58 publications

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“…FASD services should be individualized, interdisciplinary, trauma-informed, culturally appropriate, family-centered, and lifelong to ensure comprehensive systems of support. Moreover, services should be integrated across systems to address the diverse needs of this population ( Pei et al, 2021 ). More work is needed to explore the ways in which FASD is distinct from other disabilities, as well as shared needs between groups to inform the development of specialized supports.…”

Section: Discussion and Future Directionsmentioning

confidence: 99%

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Responding to the Unique Complexities of Fetal Alcohol Spectrum Disorder

Flannigan¹,

Pei

McLachlan

et al. 2022

Front. Psychol.

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Fetal alcohol spectrum disorder (FASD) is a multifaceted disability, characterized not only by brain- and body-based challenges, but also high rates of environmental adversity, lifelong difficulties with daily living, and distinct sociocultural considerations. FASD is one of the most common neurodevelopmental disabilities in the Western world and associated with significant social and economic costs. It is important to understand the complexities of FASD and the ways in which FASD requires unique consideration in research, practice, and policy. In this article, we discuss our perspectives on factors that distinguish FASD from other disabilities in terms of complexity, co-occurrence, and magnitude. We provide an overview of select literature related to FASD as a socially rooted disability with intergenerational impacts and multiple layers of stigma. These social issues are intertwined with notable experiences of adversity across the lifespan and high rates of co-occurring health concerns for individuals with FASD, all of which present unique challenges for individuals, caregivers, families, service providers, and policy makers. Understanding these factors is the first step in developing and implementing specialized initiatives in support of positive outcomes for individuals with FASD and their families. Future directions are proposed for advancing research, practice, and policy, and responding to the unique complexities of FASD.

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Section: Discussion and Future Directionsmentioning

confidence: 99%

“…The clinical complexities of FASD underscore the multifaceted needs of individuals with this disability and highlight the importance of effective communication, professional education strategies, as well as comprehensive and needs-driven services and supports ( Pei et al, 2021 ).…”

Section: Complexities Of Fetal Alcohol Spectrum Disordermentioning

confidence: 99%

Responding to the Unique Complexities of Fetal Alcohol Spectrum Disorder

Flannigan¹,

Pei

McLachlan

et al. 2022

Front. Psychol.

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“…[5][6][7][8][9] Early identification of FASD, followed by comprehensive assessment, intervention, and appropriate supports, help to foster healthy and positive outcomes. [10][11][12] However, rates of missed detection and misdiagnosis remain high due to multiple complex and intersecting factors, including substantial stigma related to alcohol use in…”

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confidence: 99%

Toward Effective Identification of FASD

McLachlan

Dunleavy

Grubb

2022

Journal of Fetal Alcohol Spectrum Disorder

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The need to improve identification and understanding of individuals who have fetal alcohol spectrum disorder (FASD), including their strengths and challenges, is being increasingly recognized. Identification of FASD via screening is an important system-level intervention that may serve to improve early and accurate recognition of individuals who may have FASD, facilitate the provision of appropriately tailored support and interventions, and in doing so, foster healthy and positive outcomes for individuals and families. Effective and ethical implementation of FASD screening practices requires consideration of several factors for success, ensuring that resulting benefits outweigh potential harms. Using an implementation science framework, this topical review aims to provide an overview of these key considerations in order to guide further research and support practice and decision-making for service providers, organizations, and policy makers in the implementation of FASD identification and screening practices. These include prioritizing partnerships with stakeholders; taking a person-centered and ethical approach to FASD identification and screening; applying rigorous methodological research approaches to screening tool development, validation, and evaluation; increasing broader FASD awareness and response capacity at the system level; and advocating for continued policy reform and resources to enhance effective community-based support andinterventions following identification.

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“…Building upon our best practices for guiding service for individuals with FASD we completed an extensive literature review focused on guiding housing practices (Pei et al, 2021). From our review of 128 peer-reviewed articles, compelling evidence emerged for housing programs, particularly the Housing First model (Adair et al, 2017;Aubry et al, 2015;Stergiopolous et al, 2016;Woodhall-Melnick & Dunn, 2016).…”

Section: How: Our Humanizing Approach Is Guiding the Navigation Of Th...mentioning

confidence: 99%

Leveraging Community-University Partnerships to Develop a Strength-Based and Individualized Approach to Humanizing Housing Service Delivery for Individuals with Fetal Alcohol Spectrum Disorder (FASD)

Pei

Poth²,

Carlson³

et al. 2022

ESJ

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This field report summarizes and advances key learnings for leveraging community–university partnerships addressing housing service gaps for high-risk, marginalized populations with complex needs. We describe our navigation of existing and forged intersections to develop a strength-based and individualized approach to humanizing housing service delivery for individuals with fetal alcohol spectrum disorder (FASD). Our account is framed by four questions: why community and university partners came together to develop a responsive approach through the CanFASD network; who became key stakeholders in the partnership; how our humanizing housing approach is guiding the navigation of complexities inherent in service delivery for individuals with FASD; and what insights about creating intersections are we applying to our community-university partnerships.

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An Integrative Systems Approach to Enhancing Service Delivery for Individuals with Complex Needs

Cited by 10 publications

References 58 publications

Responding to the Unique Complexities of Fetal Alcohol Spectrum Disorder

Responding to the Unique Complexities of Fetal Alcohol Spectrum Disorder

Toward Effective Identification of FASD

Leveraging Community-University Partnerships to Develop a Strength-Based and Individualized Approach to Humanizing Housing Service Delivery for Individuals with Fetal Alcohol Spectrum Disorder (FASD)

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