An Internet‐Based Migraine Headache Diary: Issues in Internet‐Based Research

Moloney, Margaret F.; Aycock, Dawn M.; Cotsonis, George; Myerburg, Stuart; Farino, Christopher; Lentz, Martha J.

doi:10.1111/j.1526-4610.2009.01399.x

Cited by 33 publications

(33 citation statements)

References 43 publications

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“…More recently, other authors explored, in migraine patients, the feasibility and acceptability of an internet-based headache diary, compared with their standard paper diary [10]. This study showed that the internet-based headache diary was not only a feasible and acceptable data collection tool, but also an accessible option for different populations.…”

Section: Introductionmentioning

confidence: 99%

An electronic diary on a palm device for headache monitoring: a preliminary experience

Allena

Cuzzoni²,

Tassorelli

et al. 2012

J Headache Pain

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Patients suffering from headache are usually asked to use charts to allow monitoring of their disease. These diaries, providing they are regularly filled in, become crucial in the diagnosis and management of headache disorders because they provide further information on attack frequency and temporal pattern, drug intake, trigger factors, and short-/long-term responses to treatment. Electronic tools could facilitate diary monitoring and thus the management of headaches. Medication overuse headache (MOH) is a chronic and disabling condition that can be treated by withdrawing the overused drug(s) and adopting specific approaches that focus on the development of a close doctor–patient relationship in the post-withdrawal phase. Although the headache diary is, in this context, an essential tool for the constant, reliable monitoring of these patients to prevent relapses, very little is known about the applicability of electronic diaries in MOH patients. The purpose of this study was to evaluate the acceptability of and patient compliance with an electronic headache diary (palm device) as compared with a traditional diary chart in a group of headache inpatients with MOH. A palm diary device, developed in accordance with the ICHD-II criteria, was given to 85 MOH inpatients during the detoxification phase. On the first day of hospitalization, the patients were instructed in the use of the diary and were then required to fill it in daily for the following 7 days. Data on the patients’ opinions on the electronic diary and the instructions given, its screen and layout, as well as its convenience and ease of use, in comparison with the traditional paper version, were collected using a numerical rating scale. A total of 504 days with headache were recorded in both the electronic and the traditional headache diaries simultaneously. The level of patient compliance was good. The patients appreciated the electronic headache diary, deeming it easy to understand and to use (fill in); most of the patients rated the palm device handier than the traditional paper version.

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Section: Introductionmentioning

confidence: 99%

An electronic diary on a palm device for headache monitoring: a preliminary experience

Allena

Cuzzoni²,

Tassorelli

et al. 2012

J Headache Pain

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“…One approach to address this challenge is to provide migraine patients with a headache diary to complete in-between visits (McKendrick and Badcock, 2004b;Nguyen et al, 2014). The diary or series of questions could be incorporated online (Moloney et al, 2009) or into an application that is accessible via portable devices (Turpin et al, 2014) to enable date-and time-stamping and more 'real-time' tracking of changes in an individual's migraine history over time. Given inter-individual variability in migraine features, as well as known fluctuations in the results of clinical tests of vision in migraine sufferers, it is not always useful to simply look for group differences.…”

Section: Do Migraine Medications Affect Clinical Test Results?mentioning

confidence: 99%

Clinical impact of migraine for the management of glaucoma patients

Nguyen

Lek

Vingrys

et al. 2016

Progress in Retinal and Eye Research

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Migraine is a common and debilitating primary headache disorder that affects 10-15% of the general population, particularly people of working age. Migraine is relevant to providers of clinical eye-care because migraine attacks are associated with a range of visual sensory symptoms, and because of growing evidence that the results of standard tests of visual function necessary for the diagnosis and monitoring of glaucoma (visual fields, electrophysiology, ocular imaging) can be abnormal due to migraine. These abnormalities are measureable in-between migraine events (the interictal period), despite patients being asymptomatic and otherwise healthy. This picture is further complicated by epidemiological data that suggests an increased prevalence of migraine in patients with glaucoma, particularly in patients with normal tension glaucoma. We discuss how migraine, as a co-morbidity, can confound the results and interpretation of clinical tests that form part of contemporary glaucoma evaluation, and provide practical evidence-based recommendations for the clinical testing and management of patients with migraine who attend eye-care settings.

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“…These studies have been limited in their sample selection (e.g., Barrett and Barrett, 2001; Helzer et al, 2006; Kaminer et al, 2006; Kranzler et al, 2004; Lee, Choi, and Beal, 2006; Toll et al, 2006; Vivoda and Eby, 2006), variety of method use (e.g., Armeli et al, 2008; Baer, Saroiu, and Koutsky, 2002; Herbenick et al, 2011; Kiene et al, 2009; Moloney et al, 2009; Park, Armeli, and Tennen, 2004), topical focus (e.g., Armeli et al, 2008; Baer, Saroiu, and Koutsky, 2002; Herbenick et al, 2011; Kiene et al, 2009; Moloney et al, 2009; Park, Armeli, and Tennen, 2004), and time span of data collection (e.g., Aldridge-Gerry et al, 2011; Merz and Roesch, 2011). Although these studies have made important contributions to the usage of new technologies in data collection, few, if any, studies have attempted frequent measurement using self-administered methods on a probability-based sample.…”

Section: 1 Journal Keepingmentioning

confidence: 99%

Response of sensitive behaviors to frequent measurement

Axinn

Jennings

Couper

2015

Social Science Research

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We study the influence of frequent survey measurement on behavior. Widespread access to the Internet has made important breakthroughs in frequent measurement possible—potentially revolutionizing social science measurement of processes that change quickly over time. One key concern about using such frequent measurement is that it may influence the behavior being studied. We investigate this possibility using both a population-based experiment with random assignment to participation in a weekly journal for twelve months (versus no journal) and a large scale population-based journal-keeping study with weekly measurement for 30 months. Results reveal few of the measured behaviors are correlated with assignment to frequent measurement. Theoretical reasoning regarding the likely behavioral response to frequent measurement correctly predicts domains most vulnerable to this possibility. Overall, however, we found little evidence of behavioral response to frequent measurement.

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An Internet‐Based Migraine Headache Diary: Issues in Internet‐Based Research

Cited by 33 publications

References 43 publications

An electronic diary on a palm device for headache monitoring: a preliminary experience

An electronic diary on a palm device for headache monitoring: a preliminary experience

Clinical impact of migraine for the management of glaucoma patients

Response of sensitive behaviors to frequent measurement

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