An interoperable common storage system for shared dialysis clinical data

Vito, Domenico; Casagrande, Giustina; Bianchi, Carlo; Costantino, Maria Laura

doi:10.1109/embsisc.2016.7508626

Cited by 5 publications

(4 citation statements)

References 4 publications

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“…In our system, we introduced a document management system for several measures to transfer HD reports from an EHR, dialysis systems, or original documents. Although specific information systems were launched elsewhere [ 15 , 16 ], we successfully integrated the sharing of HD reports into the main HIE system without the high cost of additional implementation. This system is based on document sharing.…”

Section: Discussionmentioning

confidence: 99%

Hemodialysis Record Sharing: Solution for Work Burden Reduction and Disaster Preparedness

Ido¹,

Miyazaki²,

Nakayama³

2022

JMIR Form Res

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Background After the Great East Japan Earthquake in 2011, backup systems for clinical information were launched in Japan. The system in Miyagi Prefecture called the Miyagi Medical and Welfare Information Network (MMWIN) is used as a health information exchange network to share clinical information among various medical facilities for patients who have opted in. Hospitals and clinics specializing in chronic renal failure require patients’ data and records during hemodialysis to facilitate communication in daily clinical activity and preparedness for disasters. Objective This study aimed to facilitate the sharing of clinical data of patients undergoing hemodialysis among different hemodialysis facilities. Methods We introduced a document-sharing system to make hemodialysis reports available on the MMWIN. We also recruited hospitals and clinics to share the hemodialysis reports of their patients and promoted the development of a network between emergency and dialysis clinics. Results In addition to basic patient information as well as information on diagnosis, prescription, laboratory data, hospitalization, allergy, and image data from different facilities, specific information about hemodialysis is available, as well as a backup of indispensable information in preparation for disasters. As of June 1, 2021, 12 clinics and 10 hospitals of 68 dialysis facilities in Miyagi participated in the MMWIN. The number of patients who underwent hemodialysis in Miyagi increased by more than 40%. Conclusions Our backup system successfully developed a network of hemodialysis facilities. We have accumulated data that are beneficial to prevent the fragmentation of patient information and would be helpful in transferring patients efficiently during unpredictable disasters.

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Section: Discussionmentioning

confidence: 99%

Hemodialysis Record Sharing: Solution for Work Burden Reduction and Disaster Preparedness

Ido¹,

Miyazaki²,

Nakayama³

2022

JMIR Form Res

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“…Similarly, Nicholas Nicholson and Andrea Perego of the European Commission's Joint Research Centre [ 14 ] emphasized the importance of interoperability between medical registries to facilitate the integration of data from diverse sources. Likewise, in their study conducted as part of the Italy-Switzerland INTERREG Dialysis cooperation project, Vito et al (2016) [ 15 ] highlighted the necessity of making the information systems adopted in dialysis centers interoperable. They also presented "La Dialysis MatLib," a dialysis data library capable of converting and harmonizing raw data from different information systems.…”

Section: Methodsmentioning

confidence: 99%

The Potential for Information Sharing Between an Electronic Medical Record System and the Moroccan Transplantation and Dialysis Registry: Examining Semantic Interoperability

Bennis,

El Bardai,

Chouhani

et al. 2024

Cureus

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Background and aim In 2005, the Moroccan Ministry of Health established Magredial, a registry to track and monitor patients with end-stage renal disease (ESRD), with the aim of improving healthcare outcomes. After achieving initial success, Magredial’s activity decreased, leading to its inactivity by 2015. Currently, efforts are underway to revive Magredial's use. The main goal of this study is to investigate the feasibility of data transfer between the electronic medical records (EMRs) of Hassan II Hospital of Fes, Morocco, and the registry by achieving semantic interoperability between the two systems Materials and methods The initial phase of this study involved a detailed review of existing literature, highlighting the importance of registries, especially in nephrology. This part of the study also aims to emphasize the role of semantic interoperability in facilitating the sharing of data between EMRs and registries. Following that, the study's second phase, which centered on the case study, conducted a detailed analysis of the data architectures in both Magredial and the EMR of the nephrology department to pinpoint areas of alignment and discrepancy. This step required cooperative efforts between the nephrology and IT departments of Hassan II Hospital. Results Our findings indicate a significant interoperability gap between the two systems, stemming from differences in their data architectures and semantic frameworks. Such discrepancies severely impede the effective exchange of information between the systems. To address this challenge, a comprehensive restructuring of the EMR is proposed. This strategy is designed to align disparate systems and ensure compliance with the interoperability standards the Health Level 7 Clinical Document Architecture (HL7-CDA) set forth. Implementing the proposed medical record approach is complex and time-consuming, necessitating healthcare professional commitment, and adherence to ethical standards for patient consent and data privacy. Conclusions Implementing this strategy is expected to facilitate the seamless automation of data transfer between the EMR and Magredial. It introduces a framework that could be a foundational model for establishing a robust interoperability framework within nephrology information systems in line with international standards. Ultimately, this initiative could lead to creating a nephrologist-shared health record across the country, enhancing patient care and data management within the specialty.

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“…Many data exchange systems are based on existing protocols such as FTP on SSL [11,12]. Other solutions call upon the Secure Shell protocol (SSH), which may turn into a serious issue when used through a virtual private network.…”

Section: Related Workmentioning

confidence: 99%

A Sensitive Data Access Model in Support of Learning Health Systems

et al. 2021

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Given the ever-growing body of knowledge, healthcare improvement hinges more than ever on efficient knowledge transfer to clinicians and patients. Promoted initially by the Institute of Medicine, the Learning Health System (LHS) framework emerged in the early 2000s. It places focus on learning cycles where care delivery is tightly coupled with research activities, which in turn is closely tied to knowledge transfer, ultimately injecting solid improvements into medical practice. Sensitive health data access across multiple organisations is therefore paramount to support LHSs. While the LHS vision is well established, security requirements to support them are not. Health data exchange approaches have been implemented (e.g., HL7 FHIR) or proposed (e.g., blockchain-based methods), but none cover the entire LHS requirement spectrum. To address this, the Sensitive Data Access Model (SDAM) is proposed. Using a representation of agents and processes of data access systems, specific security requirements are presented and the SDAM layer architecture is described, with an emphasis on its mix-network dynamic topology approach. A clinical application benefiting from the model is subsequently presented and an analysis evaluates the security properties and vulnerability mitigation strategies offered by a protocol suite following SDAM and in parallel, by FHIR.

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An interoperable common storage system for shared dialysis clinical data

Cited by 5 publications

References 4 publications

Hemodialysis Record Sharing: Solution for Work Burden Reduction and Disaster Preparedness

Hemodialysis Record Sharing: Solution for Work Burden Reduction and Disaster Preparedness

The Potential for Information Sharing Between an Electronic Medical Record System and the Moroccan Transplantation and Dialysis Registry: Examining Semantic Interoperability

A Sensitive Data Access Model in Support of Learning Health Systems

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